Matisse

Note that Dr. Alessio Fasano who was basically the father of endoscopy as being the gold standard is now less certain. He gives 5 diagnostic criteria and says you need to meet 4 to be diagnosed with celiac. Thought folks might find this abstract interesting. Celiac disease diagnosis: simple rules are better than complicated algorithms. Catassi Carlo...

3. tTG IgA IgG came back negative (false negative she asks?) From what you wrote under #3 you were tested for tTG IGG. If you were not you should definitely be tested for total IGA. Also, you could be tested for the full panel of tests since not everyone tests positive for every celiac test. If it were me I would want to know with as much certainty...

"or is it possible to have one copy of a gene and not pass it on to your children?" Yes, that's correct. He has two copies and the way genetics work is our children receive only one copy. In your case you have two DQ8 so your daughter had to receive a DQ8.

Sugar free gum has sorbitol. The sorbitol can cause the symptoms you are describing. They happen to me when I used to chew gum. Here's some information on sorbitol.

Hi Ravenwoodglass, Afterglow lipsticks are gluten and soy free. You can order them at their on-line website. Matisse

Thanks for your reply. I was just curious as to which gliaden test you had. As far as the gene test, LabCorp only reports whether or not you have DQ2 and/or DQ8. They don't test for the other DQs. I'm only aware of Enterolab testing for the other DQs, but they only do the beta DQs in order to keep the cost of the test down. Yes, it's the transglutaminase...

[quote I've had mild problems with hypermobile joints since I was a teenager but four years ago, I developed repetitive strain injury (a risk for hypermobile people) in my arms - this quickly progressed to being muscle tension/pain, muscle weakness and joint pain across my body. On bad days, I can't hold my arms up either. I manage it with physio, exercise...

By any chance do you have hypermobility in your joints (double jointed)?

I am curious whether all the anti-gliadin tests you've tested positive with have been the older one your mentioned in one post. I wasn't sure if the doctor said she wanted to also test you with the older gliadin test, implying you first had the deamidated gliadin test. Also were you negative for the tTG? I am asking because I've tested positive twice...

My doctor's office will fax me the lab results when I ask. Most copiers have faxes. It sounds like it would be really helpful for you to have the actual results now so you'd be better informed about what you are experiencing. Then you could do a web search and/or post them here to get more info. Short of that, maybe someone at your doctor's office would...

Thanks for your response. Yes, I'm in the unknown zone. I hope I'll have greater clarity as celiac genetics evolve. Interestingly, my brother has rather classic celiac symptoms and has tested negative. Unfortunately his doctor gave him the anti-gliadin test rather than the newer anti-DGP (as well as the tTG IGG). I sent him the information on the anti...

Thank you for your detailed reply on the genetics. Yes, I do plan to continue gluten-free until my anti-DGP levels go to zero and then see how I feel. It's helpful to get confirmation and support from others on that. As I understand the anti-DGP it is not helpful for the gluten ataxia symptoms. That is one of the criticisms some have of the new anti...

Yes, it is true that the fact that the antibodies are falling since I've been on a gluten-free diet helps make the case. To that end, I also wonder if I might have non-celiac gluten intolerance except that the deamidated gliadin test is really much more of a celiac test than a non-celiac gluten intolerance test. My rheumatologist is very aware of celiac...

Sounds like you're all saying to assume I have celiac and that I'm an exception to the gene tests. Is that correct? I keep thinking I may be exception to the deamidated gliadin test. It's accuracy for positive results is somewhere between 96-99%.