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Aeva

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Aeva

  1. Aeva
    Thanks for the replies guys! My doctor didn't say that I don't have celiac, she simply said the biopsy and serology came back negative. She wants me to continue of the gluten-free diet until we get some more answers in regards to possible causes of the ongoing issues. It's possible that I could be getting CC, I eat out a fair bit and live with my non...
  2. Aeva
    Rawr. You just confirmed my suspicions (which I didn't want to be true!). I've got a (second) lactose tolerance test in 2 days, so we'll see what that says. Like I said in the original post, she's also retesting the genetic bloodwork. My doctor promised that 2 days was enough, but who knows. I think I'm going to start keeping a log again and see if there...
  3. Aeva
    I'm very confused. I was diagnosed about a year and a half ago with celiac based on these bloodwork results: Deamidated Gliadin Abs, IgG: 51.1 DQ8: positive Then I had an intestinal biopsy and more bloodwork the other day (new GI) and nothing pointed to celiac. The supposedly 99% reliable biopsy came back negative (I was told to eat gluten for 2 days...
  4. Aeva

    ARCHIVED Oh Boy...

    Aeva replied to Aeva's topic in Coping with Celiac Disease

    I agree that it is somewhat understandable to not know what gluten means. But this poster was diabetic (double-checked several of her other questions), meaning this failure to google could have had serious ramifications. If you have an issue with a certain type of food, you usually know what you can and can't have.
  5. Aeva

    ARCHIVED Oh Boy...

    Aeva posted a topic in Coping with Celiac Disease

    I know there was a post in this vein somewhere, but I can't find it. Anyhow, I was surfing yahoo answers, and came across this, and I just thought I'd share it with you all: This was the question posted: Whats the difference between gluten and sugar? When a particular food is ''gluten free'', does that mean it is sugar free?? Is it suitable for diabetics...
  6. Aeva

    ARCHIVED Missing Classes

    Aeva replied to Aeva's topic in Coping with Celiac Disease

    The acidophilus sounds like a good plan, I shall check into that. Several people have mentioned the dairy thing to me, and it confuses me slightly. In the quest to diagnose my tummy troubles, I've been tested for lactose intolerance, and it's been negative. But does that not necessarily mean that cutting out dairy wouldn't help? I unfortunately can not...
  7. Aeva
    I'm still fairly new to being gluten-free, so my body is still adjusting, and I'm figuring out just how strict I have to be. Because of this, I'm still getting sick on a semi-regular basis. I've already missed 2 classes because I got glutened last week, and had D for several days...not good for the first week of school. In most of my classes there is a strict...
  8. Aeva
    We are planning on moving in together as soon as we can afford it. Even though I'm working full time, he doesn't have a job (and he graduated college this year too, so he hasn't got classes either), so it's not really in the cards til that happens. Thanks for your advice, I will think all of this over.
  9. Aeva
    I've only been gluten-free for 4 months, and pretty much know what I can and can't eat. My parents, however, are having a harder time adjusting, and can't really seem to get the cross-contamination issue set. They will, for instance, pick me up a burger or something, and neglect to tell me that it originally had a bun and they simply removed it, or use ingredients...
  10. Aeva
    First off, I love my boyfriend with all my heart, and a lot of that has to do with how compassionate he is. We've been dating for almost a year and a half, more than a year of that being before I was diagnosed. Whenever my stomach is acting up, he immediately asks if there's anything he can get me, and is generally very understanding about it all. In all...
  11. Aeva
    I've never heard of that, but that wouldn't surprise me. I've had 15-20 bouts of parasites (always one of two species) in the last 10 years. After being diagnosed as Celiac, I thought it may have been the other way around...damaged intestines caused me to be more susceptible to the little buggers. Who knows!
  12. Aeva
    Aeva, 18 I've had ongoing stomach issues my whole life. I got unofficially diagnosed a few years ago, gave up with no improvement and have now officially been told (yay bloodwork!) that I am, in fact, gluten intolerant. It's been about 4 months now, and I haven't seen that much improvement yet, although I've got a few other minor health things going on...
  13. Aeva

    ARCHIVED Alcohol

    Aeva replied to rossi01's topic in Introduce Yourself / Share Stuff

    Idk if anybody's tried it, but Redbridge is actually a fairly decent gluten-free beer. Even my bartender boyfriend agrees, and he's kind of a snob when it comes to that stuff. It's made from sorghum, which is (if I remember right) an African relative of corn. I'm not sure how readily available it is, but I know a lot of the speciality-type places (like Whole...
  14. Aeva
    For me it seems to depend on what I've eaten recently, and what it is that's glutenous. If it's a drink, it's pretty much immediate (maybe a 10-15 minute delay at most). If it's food, almost always between the 3 and 4 hour marks. Even my boyfriend will occasionally shout "horray!!" when it's been 4 hours since I've eaten something questionable, and have...
  15. Aeva
    He doesn't mind Redbridge, but he is a connoisseur of all things alcohol, especially beer (just got his bartenders licence last week actually), and I wouldn't make him give that up. I guess we'll just have to be extra careful. Grrrr.
  16. Aeva
    One thing I'm also really worried about is kissing. I know several people that get "glutened" if they kiss their significant other, and they've just eaten pizza/been drinking beer, etc. My boyfriend is very diligent about making sure I'm safe when we go out to eat (and his caterer mother is a sweetheart and always makes me gluten-free meals), but I'd feel...
  17. Aeva
    And I've had the lactose intolerance test, with a negative result.
  18. Aeva
    Did you ever find someone? I live in Westchester, and am looking for someone too. Please let me know!
  19. Aeva
    I was diagnosed with celiac 3 months ago, after a lifetime of stomach issues. I seem to be improving a bit, but have these insane stomach cramps on and off, which I think may be constipation/gas pains, with no improvement or worsening when I eat. Is this typical, and if so, what can I do to relieve it? Also, how do I know how careful I have to be? I know...
  20. Aeva
    Oh my gosh!! I've always thought it was bizarre that poison ivy or oak didn't effect my super-sensitive skin that goes haywire if I even use too much shampoo. I figured maybe I'd just misidentified the fiend, or hadn't been exposed as much as I'd thought. But I'm not crazy! Hardly makes up for the other stuff that comes along with celiac, but it's still...
  21. Aeva
    I am still consuming dairy, but it's pretty much limited to a little bit of milk in my coffee in the morning, and only butter on rare occasion. Ice cream every month or so. In regard to the beauty products, I rarely use anything but eyeliner (Maybelline) and mascara (Covergirl), both of which I have confirmed as being gluten-free!
  22. Aeva
    When I went on the gluten-free diet several years ago, I hadn't had an actual diagnosis. We were still pretty much doing trial and error (oh, the joys of colonoscopies, endoscopies, barium x-rays and the like) at that point. I had a ton of blood tests actually done by my specialist gynocologist for other issues, although she'd also suspected Celiac was the...
  23. Aeva
    I've had GI issues for 13 years (currently being 18), diarrhea being my main complaint (several times a week). I'd tried the gluten-free diet for about 9 months several years ago, but gave up due to no actual diagnosis, and no improvement in my symptoms. About two months ago, I got my results back, which was normal apart from: Deamidated Gliadin Abs, IgG...
  24. Aeva
    I will call and ask tomorrow. She has very odd office hours, so it's not always easy to get in touch with her. It took her a week to get back to me after I returned her call saying that my results were in! But thanks for all the great advice guys, and I will definitely post back here when I know the exact numbers. It is also not so astounding that she has...
  25. Aeva
    No, the high test she saw was not the gene. She said I displayed the gene in addition to having an extremely high result in another area. I don't have a copy of the labs, so I don't know exactly what was high and what was normal, but I will be seeing her in a few weeks and will ask for a copy then.
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