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missceliac2010

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missceliac2010 last won the day on August 8 2010

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My name is Heather and I was diagnosed with Celiac Disease in July 2010. I am a mother to 2 children, one of which is also gluten-intolerant. Darned genetics! My father has celiac disease, my grand-father has Ulcerative Colitis and my sister has Chrone's disease, so I assume genetics has something to do with all of these awful syndromes!

I am learning how to live gluten-free, but I am still frustrated by occasional accidental glutenings. My symptoms of eating gluten include upper abdomen distention, (I look like I'm several months pregnant), extreme pain, and foul smelling gas. The cycle of detoxing from an accidental glutening takes me many hours. The tummy goes down, I expel gas, and eventually the pain subsides. It's a horrible thing to have happen, and I am thrilled to report that I have lowered the number of occurrences from frequent to rare. I will achieved this through education and trial and error.

I am happy to have found this website, as it has been a life saver for me as I go through this diagnosis process alone. The site is great, and the people are even better!

I have 2 great boys, ages 11 and 13. The 11 year old is also a Celiac.

**O, and btw, when opening my account, my screen name came to me as I was sitting watching "Toddlers and Tiara's on TLC." The little girls were getting crowned "Miss this...and Miss that.." I laughed and thought, ha ha...I'm Miss Celiac! LOL!

  1. I had a similar and strange (while driving) foggy, dizzyness experience the other day. I was driving my kids to school and then heading to work. On a major freeway, I got very dizzy and foggy-headed. My son yelled "MOM, WATCH OUT!" (He's 13.) HE had to grab the wheel and put us back in our lane!! Oops. I was veering towards a big rig next to me. I pulled...
  2. I have to put the package down and slowly back away from the food item if it says "produced in a facility that also processes wheat." I know from personal experience that it will 9 times out of 10 make me very ill. But I am just that sensitive. I'm pretty new myself, but from what I hear, our sensitivity may or may not become less intense as time goes on...
  3. LOL! Yeah, I probably should have ran to the grocery store last night, but I've been so busy! I have time to run today while "the men" load the heavy stuff into the UHaul. Great ideas friends! Thanks! :0)
  4. 3 cheers for Purely Decadent and Coconut Bliss! I'm very dairy intolerant (it seems to have gotten worse over the past few months...). Those two brands are the only ones that work for me, and don't taste like ka-ka! Good luck! Read labels, and call and bug manufacturers! They love it when we do that! I do it all the time! If I'm in a grocery store, odds...
  5. Hi all! Today is moving day for me, and boy am I nervous about it! On moving days, typically I get donuts in the AM for my volunteer helpers and pizza after as a thank you! That's out! I suppose I can still get the little devilish gluten filled monstrosities, but I fear even touching them will make me sick! Is it rude to just offer coffee and sandwich...
  6. Yay yay yay yay yay! Congats! I'm in a similar boat...been feeling great for over a month now! I'm trying to not let "pessimistic" Heather back into my brain, but it's still hard. My paranoia runs deep because my symptoms of glutening are so intense! Good job again, and good job for staying vigilant! Mad props to you!
  7. You go! Good for you! My first eating out experience was very scary. I was so paranoid, and kept "checking myself" internally with every bite I ate. As the meal continued however, I still felt good! It was so exciting! I now hit In-And-Out Burger frequently to get their protein style burger and dedicated fryer french friend. As far as sit down places...
  8. I tried the daily pro-biotic route at some point in my life. I found that it just drained my wallet and didn't do much good. I now just eat a soy yogurt once a day, but even that I am bad about remembering. If I start having tummy problems, yogurt is the first thing I turn to. Maybe it's in my head, maybe it's proven science, but it makes me feel better!...
  9. This rings so true for me! Getting glutened = raving lunatic mom! I get upset and irritable, volatile, curse a lot and am a generally horrible person to be around. I thought I was seriously depressed and/or bi-polor. Turns out, I just have Celiac Disease. I still take xanax as needed, because I have a lot of stress in my life regarding my son's failing heart...
  10. Thanks SeaShell! Sorry to hear about your child, and thanks for the kind words about my boy. He's a trooper, and he'll get through it fine. It's mommy having mental breakdown that I'm afraid of...haha....j/k. And thanks Raven! Good idea. I had already planned on bringing myself a lot of snacks, bread, fruit, etc, so I can avoid CC while bedside for a week...
  11. I'm with the rest. If you're going to prep for a colon, then go for the upper GI as well. Personally though, I fear that all tests might show up negative with you being gluten-free already. It happened to me. I was in the hospital sick as a dog and deemed "nothing by mouth" (NPO) and fed liquid nutrients and glucose through my IV. Just those 3 days was enough...
  12. Ah yes, the "lesser of many evils" debate... I am lactose intolerant, but I have been able to indulge in a gluten-free chocolate chip cookie a time or two (or three...LOL) with the use of lactaid. However, I could take a whole bottle of Lactaid, and still get sick from ice cream, yogurt, regular milk, etc. My suggestion.... bring a cooler full of goodies...
  13. Welcome to your new and improved life Lindsay! Here is my best shot at answering questions: 1. I didn't get new pots/pans/silverware. I have a dishwasher, which I put to the highest temp setting and cleaned everything. As far as my baking stuff is concerned, I scrubbed them with something called "bar keeper's friend." It's less abrasive than comet. We...
  14. I made my kids a giant gluten-free cookie cake last week...to celebrate "back to school!" I am sure their are rice-free gluten-free "flour" mixes. It came out totally yummy, and they scarfed it down! I followed the Bob's recipe but instead of making cookies, I pressed it into a round pizza cookie sheet. I made it gluten-free, but not dairy free, because he...
  15. Hello Friends, I just found out that my youngest son, Tyler, has to have his 3rd open heart surgery. He has a severe heart condition and will require another new pulmonary heart valve placed in 2-3 weeks. His old valve, placed in 2006, has totally failed... My question is related to the hospital diet. Has anyone had experience with requesting a gluten...
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