Jump to content

IngridBeth

Advanced Members
 View Profile  See their activity

  • Posts

    25

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by IngridBeth

  1. IngridBeth
    Arrgh, I am frustrated!!! Today I was running back-to-school errands with the kids, and though we don't often do fast food we swung by McDonald's for some lunch. I asked them about gluten-free info, and the girl had no idea what I was talking about so she got the manager. He just showed me a "nutrition information" list which had only fat and calorie info...
  2. IngridBeth
    I'm pretty new at this myself being only about 5 weeks gluten free, but I can tell you that First, your symptoms sound a lot like mine (Fibromyaglia diagnosis in my case, high bp, etc.) Second, my doctor acknowledged that blood tests can be misleading and based on a number of other factors, he diagnosed me with "probably Celiac but certainly gluten...
  3. IngridBeth
    Hey, does anyone know if Curly's Baby Back Ribs are okay? I ate some tonight thinking they were (DH is usually really really careful about label reading) but now have terrible heartburn, aching, exhuastion. Now it could be a coincidence, and I am only about one month gluten free so it's still up and down anyway (plus I've just recently gone dairy free as...
  4. IngridBeth
    My blood tests were suppoedly negative as well (I haven't seen the actual results nor do I know the specific tests they did) BUT my doctor diagnosed me as "probably Celiac - certainly gluten inolerant" based on a number of other factors. I feel like his dx is plenty good enough - I am responding to gluten free diet and now learning I have to go dairy free...
  5. IngridBeth
    Okay, so I know many of us with the eventual Celiac diagnosis have previousy been diagnosed with Fibromyalgia. I got a diagnosis of FM in 2003 - and had it confirmed by several doctors (I think I was in a bit of denial as I didn't really believe it the first few times I heard it). My symptoms did improve over time but only after years of serious exhaustion...
  6. IngridBeth
    I got bad headaches too, for a few days during the first week of gluten free life! I had other weird symptoms too, it has been up and down. Today is an "up" day (it's week three now) and I hope there are more of these ahead. But I know I am a believer in gluten withdrawal now! Also I have had a few major intestinal attacks, not sure that is withdrawal...
  7. IngridBeth
    This is certainly strange! I can't imagine anyone thinking Celiac was contagious...? BUT just to put a different light on it here are two other possibilities: First, you metioned having had several miscarriages and obviously you want children very much! Do you think it's possible that she (misguidedly) thinks it would be emotionally hard for you...
  8. IngridBeth
    Hi guys - I too have been facing the fact that I have to part with most of my beloved lipsticks...so I've been doing a lot searching for information about gluten free makeup. Here is what I have seen so far: MAC has a lot of gluten free options. AND the great part is if you bring in six old containers of their makeup, you get a new lipstick for free...
  9. IngridBeth
    Well, I have had symptoms for years apparently, that were diagnosed as IBS and Fibromyalgia, as well as a host of other things like asthma, sleep problems, and others that have gone on for a good part of my life! I had no idea they could be something like Celiac, and certainly not that it was possible all these varying symptoms could be part of the same...
  10. IngridBeth
    Sorry for your experience - most folks in health care professions are wonderful, but sometimes you encounter one who makes you wonder why on earth they went into a people-helping profession! I just wanted to share that I too tested "negative" (not technically in the positive range) BUT my GP still feels there is strong enough evidence of Celiac based...
  11. IngridBeth
    Well I just wanted to say thanks for all the good advice here, and I spoke to my doctor today. Althought the antibody test was negative, he feels that based on symptoms and response to diet, he feels it is "probably Sprue or at the very least gluten intolerance." So...I feel kind of good that he agrees we are on the right track here. Very encouraged to...
  12. IngridBeth
    Okay maybe this has nothing to do with gluten issues - but since going gluten free I have had strange cravings, especially for mustard! Is that weird, or what? It could be a coincidence but I was just curious if anyone else experienced anything like this...?
  13. IngridBeth
    Did anyone else get "flrae ups" (episodes of bad stomach pain, diarrhea, etc.) after they've been doing better off gluten, and can't pinpoint the source? I have had this twice since going gluten free last week - otherwise I feel better. But in both cases I do not know what caused it! Once was pretty much right after lunch, what I thought was a gluten...
  14. IngridBeth
    Thank you for the responses! I feel so frustrated right now with testing negative and yet responding so much to the diet change. I know people say just do the diet anyway and I certainly will, but for dealing with friends, family and even my other doctors I just would really like to have an actual diagnosis. Even if it's just gluten sensitivity or something...
  15. IngridBeth
    Thanks guys! I had a small (black) coffee from DD today and it seemed fine - phew! I don't particularly like to drink it black but right now dairy doesn't agree with me Maybe I'll get used to carrying around a gluten free non dairy creamer
  16. IngridBeth
    Okay, I am full of questions since my doctor said I might have Celiac or gluten intolerance of some kind. I was dx with Fibromyalgia in '03, and blood tests for all auto immune diseases (I guess the symptoms overlap so it's normal to test FM patients for them) were negative...EXCEPT Rheumatoid factor! My specialst (a rheumy) does not believe I have RA...
  17. IngridBeth
    Thank you everyone! Yes I am still going to stay gluten free...I do have a question though. Is it worth going to an allergist or some other specialist to try and sort it all out, or should trial and error be just as good? I mean, I suspect I have a dairy sensitivity (not obvious before I took out gluten), and now I wonder if there might be other things...
  18. IngridBeth
    Hi everyone! I am fairly new to this and still in the ongoing testing stage, but have been gluten free for a week now with some pretty big changes (long history of health issues - never thought they could be Celiac!). Anyway, I have read that Dunkin' Donuts coffee is okay...I love their coffee and as a busy mom, buying a cup of DD coffee on the go is...
  19. IngridBeth
    What you both say makes a lot of sense. True I had been avoiding bread though not altogether...maybe enough to makea difference. And yeah, I will listen to my body. That is very sound advice! Next question is what kind of doctor might be able to further help me figure out food allergies or intolerances? Or is it all trial and error anyway?
  20. IngridBeth
    Ugh I am so confused! Last Thursday I finally told my GP that I feel better when I don't eat bread (I was dx with IBS in '94, Fibromyalgia in '03, and a host of other issues especially exhaustion, weak muscles, pain and major sleep issues). I have known for quite some time but that my body "doesn't like" bread and cookies and other things like that but...
  21. IngridBeth
    I am very new to this - gluten free for six days and awaiting blood test results - but I will NOT eat gluten again for a biopsy. My body does not like gluten - whether it's a sensitivity, allergy, Celiac, etc., I do not know and while it would be nice to have an answer, you could not pay me to go back to gluten. So, I certainly understand and don't think...
  22. IngridBeth
    Thank you for the explanations - it certainly feels like I cannot handle dairy right now and I was not expecting that! I am feeling better today so far! I am finding out what my system does and does not like. I can see this is a bit of along process but so worth it. I am finding out that things I've had for half my life, things I long ago gave up hope...
  23. IngridBeth
    Also why did I have horrible stomach pain and diarrhea after just eating what I thought was a gluten-free lunch? I am confused and frustrated - thanks for listening
  24. IngridBeth
    Thank you for the replies! I am so glad to know that others opt not to eat gluten again for further testing....I was afraid that nobody would understand that choice but it's very affirming to know I was wrong! One question: What exactly goes on inside our bodies when we stop eating gluten??? I stopped last Thursday and have had the strangest physical...
  25. IngridBeth
    I am so glad to have found this forum! Okay, quick history: I was dx in 2003 with Fibromyalgia, had that dx confirmed by several docs and a rheumy (specialist). Been through he** with trying different medications over the years but finally got some relief with Lyrica. Still have lots of issues though. I noticed by trial and error I feel way worse when...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.