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MacieMay

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  1. Any of the above willing to share some yummy gluten-free Thanksgiving recipes? I love to try a coffee cake and a spinach casserole. I'm looking for a cornbread recipe too. I want to have a gluten free thanksgiving/birthday dinner this weekend at home with my husband and 3 daughters (daughter age 2 is gluten intolerant). Trying to get the whole family...
  2. HI There! I love orzo salad with fresh tomatoes, cucumbers and basil. Can anyone think of good subsitute for orzo? I'm thinking maybe a brown rice. Has anyone tried anything like this? Thanks!
  3. My toddler has a Non-Celiac Gluten Intolerance. She had a lot of the same symptoms your describing, she had those terrible diaper rashes, no solid BM's, she would cry in her sleep and wake up in the middle of the night. She was growing OK so it was hard to get the Dr's to believe there was something wrong with her. She has been off all gluten and dairy...
  4. WE eliminated dairy only because we thought that was primary culprit (whole milk) although she did improve when we removed diary she did not improve completely until we eliminated gluten. It turns out she was lactose intolerant secondary to the gluten intolerance (just like in Celiac). While this was all happening she started showing signs of her disease...
  5. Hi Cara in Boston, I think it is 100% possible to have a gluten-intolerance that has the same symptoms of Celiac without the Villi destruction. My daughter is 2, she is gluten-intolerant, she started showing symptoms when we introduced solids. WE saw GI @ Childrens Boston too. Just as an FYI, if your sons endo come back negative don't rule out Gluten...
  6. HI There! My daughter does not have RA but she has another autoimmune called Juvenile Dermatomyositis (JDM), they are similar. JA affects the joints and JDM affects the muscles and the skin. She is 2 and was dx @ 18 mos with JDM. She is also gluten intolerant. She started showing symptoms of the gluten-intolerance when we introduced solids. I would...
  7. My daughter has a gluten-intolerance, she just turned two. She started showing signs when we introduced solids. It took us forever to figure out what was going on. She had Lots of poops, not D but mushy, smelly, pale and grainy (like there were pieces of sand in them). She had the distended belly. She had terrible terrible diaper rashes, like I had...
  8. I would ditch the dairy too. My daughter could not tolerate milk. She just turned two. I can even begin to tell you the change I have seen in her since we've been dairy and gluten-free. She used to wake up in the middle of night too cry in her sleep. : ( She hasn't done that in ages. She is so much happier! Good luck!
  9. Poor little guy!! All the sleeping is probably good for him. All the trama his little body has been through. He's probably just catching up. The body heals and babies grow when sleeping.
  10. Just as FYI... My daughter has a gluten-intolerance ALL testing for Celiac came back negative. She was 18 mos when we went through all the testing. According to research and what I've read on here, testing in small children in unreliable. Keep this in mind if testing comes back negative. What you can do is ask your Dr. to follow your daughters progress...
  11. My daughter just turned 2 and tested negative (two celiac panels, biopsy and gene). Her GI Dr. diagnosed her with a gluten intolerance due to a positive response to the diet. According to what I've read on here testing in small children is unreliable. My daughter was also lactose intolerant. Both of your sons could be Celiac or a have a gluten-intolerance...
  12. Cheese Gluten-free pretzels Chips (we do lays because they are thin and dissolve easily) snap pea crisps raisins craisins popcorn gluten-free bread with PB yogurt cottage cheese
  13. My daughter's tests came back negative too (she is 2 now) but had all the testing at 18 mos. She had the same problem with dairy. WE have been gluten-free since sept and she is WAY better. I agree with your husband, I would wait to do the challenge until he is older and he can tell you how he is feeling. Good luck
  14. GI Dr. but I had to insist. After being sent away with no way no how does she have celiac. I called her back and told her about her positive response to the diet and that is what she based her diagnosis on. I was worried if I didn't get the diagnosis that we would run into problems while being treated for her other autoimmune disease. I was forseeing...
  15. I should also add, that at the end of the summer, my daughter was finally diagnosed with Juvenile Dermatomyositis (JDM). It's an auto-immune. So, not only did she have the gluten-intolerance/lactose intolerance (yes...she had a problem with lactose too) she had the JDM. I think my husband was going through some sort of weird denial and couldn't accept...
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