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Loey

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Loey

  1. Sorry you're suffering from the back pain. As many others have noted Celiac is connected to all sorts of diseases. I, too, have scoliosis and it turned out the pain I attributed to celiac was the scoliosis and the pain radiated. I agree that you need a DEXA Scan to make sure there's no bone loss. Good luck and feel free to PM me if you want to vent about...
  2. This is a reply to all of my dearest psilles. I don't know if you can possibly understand how much your love, kindness and support is helping me. This morning Clark discussed possibly suing Pfizer if they won't extend his time there. They totally uprooted us with false promises and I'm in no condition to relocate anywhere. Hopefully it won't come down to...
  3. For those of you not connected to the psillies live email group here is a hysterical version of the royal wedding (and I suppose the closest we'll get to it): Open Original Shared Link
  4. Hi Dear Psilles, Just popping in to say hi. My bug turned out to be pneumonia and I've been completely wiped out. Also we discovered that the pain I was attributing to celiac is scoliosis. Having a lumbar MRI to make sure there's no cancer there. Clark is still figuring out his future. He spoke to his boss about staying o longer to get data to publish...
  5. I just finished reading The Walk and enjoyed it so much I pre-ordered Miles to go. Loey
  6. Hello my dear psilles, Russell Brand alert tomorrow (Friday April 15) for Rachael Ray. I don't think it's a rerun because Arthur just came out. Any more news about the tix and plane for the royal wedding? Hugs, Loey
  7. I'm really impressed!!!!! I'm phailing in my art class. Everyone else is so professional and my work looks like a 5 year old could do it. Will continue because it's relaxing and hopefully I'll improve over time. Hugs, Loey
  8. Hello my dear psilles, Just wanted to let you know I'm keeping up with reading the posts. I have the flu again. At least i finally know why I keep getting sick. It's due to the CLL. My doctor was upset that I didn't go in to see her sooner but I don't want antibiotics or prednisone if my body can still fight off the infection. Evidently that's not the...
  9. Hi My Dear Psillies, Finally got through most of my testing. Think I mentioned I'm in the watch and wait stage of the CLL. Back is a major issue (scoliosis and curvature) plus rheumatoid arthritis and osteoporosis (in addition to Celiac), I'm writing to let you knpw I'll be offline until the weekend My son is coming home to look for a summer job...
  10. Hi Brigit, I'm sorry you were so frustrated. I find that the longer I'm on the diet, the more people around me pick up on what foods I can eat. I usually have people over to my house for dinner because it just makes it easier. Hang in there and remember that you're not alone. Feel free to PM if you need to vent. Loey
  11. So sorry to hear that. Was it harder on you or J? Sending extra (((HUGS))) Loey
  12. Hope you're feeling better today Shroom!!! Hugs, Loey
  13. Oh Ra-Shelle, This brings back memories of all the movies we took Tony to and I had to get a "Reel Sorry" pass to come back to see another movie for free and play video games with him while Clark finished watching the movie. Tony was also afraid of clowns. Hugs, Loey
  14. The shot was REALLY painful. Today I can sit up for shot periods of time. He said it would take 2-3 days to work. I pointed out another area i was having pain and he ordered a pelvic CT scan to make sure my hip is all right. It's funny that my spine is giving me more trouble than the celiac and might have been causing my pain all these months. So glad I changed...
  15. Oh Rachelle, so good to have you back where you belong, but so sorry about your travails. Please take care of yourself. Damn them for absconding with your jam. They probably had it with biscuits and tea!!!! Love & Hugs, Loey
  16. I'm having "time machine errors" and disc read problems. Clark's been trying to fix it. It's a pain in my big arse!!!! Will be offline today. Back too bad to sit up. Never thought I'd be looking forward to a needle in my lumbar! Hugs, Loey
  17. All Hail Queen Em, Your Mighty Subject, Lois Lane (aka Loey )
  18. Hi, Body Sense (bodysense.com) has some decent hair products but nothing works like the oldies but goodies. I finally broke down and bought two wigs and use the gluten-free products. I feel like I look normal again when I'm wearing the wigs. Hope you don't have to resort to that. Loey
  19. For your amusement Loey Ladies in a Sauna THREE WOMEN, TWO YOUNGER , AND ONE SENIOR CITIZEN, WERE SITTING NAKED IN A SAUNA. SUDDENLY THERE WAS A BEEPING SOUND. THE YOUNG WOMAN PRESSED HER FOREARM AND THE BEEP STOPPED. THE OTHERS LOOKED AT HER QUESTIONINGLY. 'THAT WAS MY PAGER,' SHE SAID. I HAVE A MICROCHIP...
  20. I'll be sending positive energy that your swelling goes down and the docs have a reason to tell you your fine!!!!! Hugs, Loey P.S. I swear I'm keeping the doctors and labs in RI and Ct. in business!!!
  21. LOL Happy St. Patty's to all my psillies! Update: Went to the oncologist and got good news. I'm in the "watch and wait" stage of CLL and might be around 30 years to annoy everyone (especially Clark). I have to have some CT Scans to rule out anything that might have been missed but now I see her every 3 months to see how my white cel count...
  22. No Tony is a 19 year old college freshman who should be doing his own laundry by now. If I had it all to do over again .... (right Kareennggg???) Loey
  23. It's me psillies )and Clark) that keep me going!!!!!!! Loey
  24. Are you sure you're not talking about my Tony? Loey
  25. When I first joined the psillies and wanted to hear the story of Jess and BE I read the thread from the start of their relationship. I really have to get a life (other than going to doctor's offices)! Hey, at least today's doctor's appointment is just for eyeglasses - no poking and prodding. Tomorrow is the follow-up with the Oncologist and Friday the Neurologist...
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