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pelsteen

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About Me

I have had

--increasing needs for sleep for a decade up to 18 hours in bed June-July 2010

--increasingly nasty abdominal cramping

--Restless legs at night, awake and asleep, for five years

--periodic diarrhea, probably after high gluten intake, for two decades and constant "borderline diarrhea" for at least five years

--Low iron levels for a decade

--Lactose intolerant for a quarter century

--Mostly sick for most of the winter for a decade, many doctor visits for sinus and ear infections, bronchitis, and pneumonia for two decades until taking Flonase, Singulair, and loratadine, and eliminating corn three years ago

On July 31, after two months of horrible cramping, restless legs, and needing 18 hours in bed to get inadequate sleep, I cried out to God for help, asking why life was worth living in these circumstances.

On Sunday August 1, God told me that I had Celiac disease. On Tuesday 8/3 my doctor said "maybe, go back on gluten for a blood test which misses 20%" On 8/17, I had my last intentional gluten and got the blood test. On 8/19, doc's message: test was negative, continue eating gluten-free it it helps

Two children, son age 15, daughter turning 13,

  1. Lemon or Grater glutened me! Three and one half months after going gluten free, I was sick for 5 days, cramping all night for 14-16 hours in bed, and unable to figure out what was wrong. I ate only single ingredient foods or combinations of them. I went off all five drugs I would normally take, and was still sick. As I lay in bed awake and cramping...
  2. I have had --increasing needs for sleep for a decade up to 18 hours in bed June-July 2010 --increasingly nasty abdominal cramping --Restless legs at night, awake and asleep, for five years --periodic diarrhea, probably after high gluten intake, for two decades and constant "borderline diarrhea" for at least five years --Low iron levels for a decade...
  3. I have been gluten free since 8/17/2010 but have continuing low-level cramping disrupting my sleep. I've been taking 2 5mg chewable Singulair tablets for about 5 years due to allergies, sinus infections, and comstant respiratory illness. Since I got my latest refill, I have been spending 2-3 hours/night cramping and not sleeping when I take one tablet before...
  4. I have been to a sleep doc at Mayo who seemed to know all about Celiac. It seems that about half of people with narcolepsy have Celiac disease. Now, three months off gluten, I am sleeping quite well most nights, have seen no more sleep attacks, paralysis, or waking dreams. I now have tremendous energy and a clearer head than I've had in a decade! For...
  5. I don't have any formal diagnoses, but horrible cramping and needing 18 hours in bed each day greatly diminished immensely after my last gluten on 8/17/10. My sleep needs, gradually increasing from 8 to 12 over 5 years, are now up to 14.5. My sleep is usually sound now for most of the night but I still usually have a bit of cramping and needing to use the...
  6. I got nasty cramping, but thank God for only a few hours of the night, after eating halloween's Reese's PB cups. I think that what happened is that I got a tiny bit of gluten somewhere and had cramping from the Lactose which is in them. If you are lactose intolerant and want to try again, take lactase enzyme, sold as dairy digestive aid in many stores,...
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