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lucky97

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Everything posted by lucky97

  1. lucky97
    I am also dead sick of thinking about every damn thing I put in my mouth, not being able to go out with friends anymore or having to be "different" at a restaurant (if I can find one), not able to drink what I want and searching for stuff I can have. It SUCKS. Celiac disease SUCKS...there I said it!
  2. lucky97
    Am I to understand that coffee I buy myself (like Maxwell House or Folgers) for my coffee maker can be cross-contaminated? Really?
  3. lucky97
    I can tell you that Aldi's has more and more products labeled "gluten free" almost by the month. I found Choceur's Dark Chocolate (made in Austria) labeled with the "naturally gluten free" symbol. Several of their chocolates were. It's the same gluten free symbol that's on the other products, although sometimes is says "naturally gluten free" or just...
  4. lucky97
    So my doctor says I'm still "slightly positive" for Celiac which surprised me since I went gluten free in November 2010, the week before friggin' Thanksgiving (my absolute favorite holiday of the year because of my mom's cooking). Sheesh! I wonder if I was getting "glutened" by: bacon at restaurants (I cut out ordering bacon, my arteries are happier...
  5. lucky97
    You will get the hang of it, I was overwhelmed at first...particularly after the diagnosis when I walked into a grocery store like I always did but first realized "Hey, I can't eat most of this stuff anymore." It was totally weird. But not now, I'm over it. The best thing to do I think is to make a couple lists. You won't need them forever, but will...
  6. lucky97
    Hi, I was diagnosed with Celiac at age 45 with no prior history in my family, but a significant, sudden liver problem that led them to the Celiac. The endoscopy is pain-free (and outpatient). It is a standard procedure. For the record I also had a liver biopsy (that came first to rule out liver tissue problems--it did) and that was equally pain-free...
  7. lucky97
    I did post this on another board but my Celiac was diagnosed only after a serious liver illness that didn't point to any of the other scary, nasty things that make one turn banana yellow. The specialist kept telling me how "lucky" we were to correctly diagnose the celiac as opposed to putting me on steroids because it sure looked like a liver autoimmune...
  8. lucky97
    Hello and thanks for the reply. My liver problem 16 months ago was significant and what started everything... over about a month's time I had been COMPLETELY exhausted, lost 25 pounds and went jaundice. Spent five days in the hospital while they took all sorts of pictures but found no tumors in the places they looked. I was on complete bed rest for five...
  9. lucky97
    I guess I would have to ask one question on that point then: How long does one think molecules of gluten can survive on a plastic cutting board that gets washed every time? Well-kept but not perfect non-stick Teflon that gets washed? Seasoned cast-iron cookware...although I guess nothing with gluten goes in my cast-iron skillets anyway, or hasn't for...
  10. lucky97
    Quite frankly I am quite surprised that pre-celiac disease cookware has to be eliminated...I didn't think gluten would survive the regular, daily cleaning process of dishes, cookware, silverware, etc...am I wrong about that? I don't see how it could. As far as gluten in the diet, your best new friend is the internet and google searches. Personally, now...
  11. lucky97
    So my gastroenterologist tells me my blood levels are "slightly abnormal" and he says having an Transglutaminase IgA reading of 21 is also "slightly abnormal." So I assume this means I'm still getting a little gluten SOMEWHERE after starting my gluten free diet in November 2010. He also said the blood readings and the celiac are "two separate issues." ...
  12. lucky97
    No, I only drank gluten free hard ciders...Strongbow, Woodchuck (yuk), Magners if it was available and it rarely was. None of the "amber ciders."
  13. lucky97
    BarryC, uh, maybe you already know this but there's no more beer if you have Celiac (you said you had one drink and had an allergic response--don't know if it was beer). There are other gluten-free drinks but not beer (unless it's a gluten free beer, not impossible but not easy to find). If your one drink was beer you are priming yourself for serious health...
  14. lucky97
    Well thanks for all the quick replies... As far as my blood work (which is extensive every four months) I do remember my WBC was 3.74 (low normal--but that's up from before), my platelets were at 149 (150 is low normal) and, the only other thing I remember seeing was the mono% was I think at 14 (13 is high normal). That and the IgA at 21 (under 20 would...
  15. lucky97
    Hi, I was diagnosed a little over a year ago, and have been gluten free (to the best of my knowledge) since November 2010. I still test slightly positive for Celiac (transglutaminase IgA is 21, where a weak positive is 20-30). I'm going to see a nutritionist this week to comb through my diet but I only eat things that are labeled gluten free. That...
  16. lucky97
    This is great news, as I have a new craving for them and just had a couple...then thought twice and looked them up on this site. Kind of reverse of what I do! Whew!
  17. lucky97
    Hi, I have wondered this for a long time now. My celiac numbers are going down, but slower than I would hope...as I've asked about in other topics, but I do like my Strongbow cider from the bar. From the tap, the only way they serve it there. Is there a chance I'm getting cross-contaminated by the bar glasses? Sure they wash them but beer and everything...
  18. lucky97
    A crushing depression is not what I know as something that is associated with the Celiac or being "glutened" in particular instances. I have always had issues with Dysthymia but, even after the Celiac diagnosis, they did not change because of the radical change in diet. I wish it were so. If feeling very differently low you should treat it like a true...
  19. lucky97
    Well, now feeling downright miserable and, seeing Theraflu on this list, I'm going to take some. Always worked pretty good in the past before I was diagnosed. Wish me luck. Oh, here's the list... Open Original Shared Link
  20. lucky97
    After almost one year of being a Celiac, I've found absolutely nothing even remotely close to bread as I knew it. Almost resorting to learning how to bake my own and FORGET that Bob's Red Mill stuff.
  21. lucky97
    Hi, Is Theraflu Flu and Sore Throat gluten free? I see it contains maltodextrin which, in medications, is supposed to be suspect. IF it is NOT gluten free, can I take regular aspirin or widely-known pain reliever? I haven't been sick since getting this diagnosis last year and really need some relief but haven't taken anything yet. As an aside...
  22. lucky97
    Is this question a joke??? I'm unamused as gluten-free bread is garbage.
  23. lucky97
    Sorry to ask again...what readings of the blood workup comprise the celiac panel? Thank you much!
  24. lucky97
    What readings in my blood tests should I be looking at to follow this celiac panel? Gawd knows the cost of this blood work...thanks! Still cutting out the BW3 wings anyway until my next blood work-up in December. Thanks!
  25. lucky97
    Hi there, I hope that is the way to word this topic. I've been eating gluten free since about last December at the adivce of the specialist. I had all the testing and got my official diagnosis of Celiac in Feb. 2011. It's now September 2011 and he says I'm still "positive" for Celiac, which to me means there must still be some gluten in my system...
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