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newmom07

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Everything posted by newmom07

  1. We couldn't be 100% sure going gluten-free would change my DS's life when we started last spring. Within days he could be put down, within weeks he was running around again. Seeing his turn-around, I would give it a try. If you want a positive diagnosis, you'll need to keep or return to the gluten. For us, getting him growing again was more important...
  2. We are just realizing DS doesn't do well with corn. Crabby and uncomfortable with soft yellow stool for days. This includes corn & corn tortilla meals, but not corn tortilla chips or gluten-free cornbread. Still, I think we'll cut all corn. Thankfully he doesn't get the gas, bloating and all-night screaming from gluten!
  3. DS went gluten-free in February at age 20 mos. He is now almost 2 1/2. This summer his feet were smaller than his brother's at the same age. No biggie, by the end of the summer he had grown into that size. We went shoe shopping yesterday - he is now the same size his 4 year old brother was just this past spring! His feet have gone from a size 6 to a...
  4. Brianna, Welcome! Although I know here is the last place you want to be, this is a great community full of answers. My son, age 2, went gluten-free this spring and also couldn't seem to live without milk. He didn't tolerate it well, but he wanted it so badly. So, we tried lactaid since it seems that some folks have trouble with the lactose and some the...
  5. Welcome, Rachel. Celiac is scary, but so are the symptoms you are living with. We discovered my son's condition 6 months ago and honestly, we have no trouble with 99% of our life. Our home is gluten-free, which makes things easier. We don't eat out much, and we carry snacks/gluten-free treats so we can participate in other activities. There are so many...
  6. DS was glutened last night by Hershey Kisses. I had read on a list of safe Halloween candies from a blog and thought they were safe. Not so. He screamed for 4 hrs last night. It reminded me of the days before we took him off gluten. It was the worst response he has had since we started this 6 months ago. He has been cross-contaminated before and has...
  7. My poor little 2 yr old had the worst reaction since we discovered his condition 6 months ago from Hershey chocolate last night. He has had the fun size bar before with no reaction and ate 1, but he had 5 hershey kisses and wow. He was up for FOUR HOURS screaming in pain last night and is refusing anything to eat this morning (likely the beginning of his...
  8. My DS (age 2) gets a pink tint around his eyes when exposed to gluten. It went away being gluten-free, but when I see it, it is often my first clue that something got him. Sometimes it is followed by other symptoms, sometimes it clears up without more obvious impacts.
  9. I just needed to thank this community for its wisdom and support. In February, my 20 mo old son was going down-hill fast. He couldn't keep weight on and was constantly sick. His belly was crazy distended and his arms/legs were withering. He was looking gaunt. My 10 lb baby was just 23 lbs and had shrunk to 10-25% for weight and 25% for height. A...
  10. I can only share our story and hope it helps. Like you, our child is about 2. We realized he might have gluten intolerance in Feb at age 20 mos. He weighed 23 lbs. His belly was totally distended and had the classic skinny arms/legs. He was clingy, and had been sick for 6 weeks seemingly constantly. We went gluten-free and he gained 2.5lbs in 6 weeks...
  11. My DS is nearly 2 and has been gluten-free for 2 mos, with major improvements and many thanks to this group! We are going on our first road trip, and I'd love some tips for a full day living out of the car/ what road-trip restaurants might be safe for us. We have gluten-free snacks, but aside from pulling over for pb + apple, I'm just not sure how to keep...
  12. I could have written your post 2 mos ago. We has DS blood tested after being gluten-free 1 week. Negative. I hemmed and hawed about restricting him to gluten-free without "proof" but after support from here, and a push from DH, we stayed gluten-free. We also ordered the enterolab, but the results aren't in yet. But here's what I know - he no longer has...
  13. Sounds exactly like my son, who is 21 mos and seriously is it strange how similar our posts are except for the poop color (we go orange-yellow). We took him gluten-free 3 weeks ago and then switched him to lactaid. He is a different child - and he has gained 1.5 lbs in 3 weeks. He hasn't been sick since - even though his brother was - he is so happy. ...
  14. We thought my 21 mo old son might have a wheat or gluten issue, but his labs came back in negative. He has the classic look of very thin arms/legs and a large distended belly. It is like a miracle since we put him gluten-free -- he was sick at least every other week for months and months and for 6 weeks straight, now he has been healthy for 3 weeks. He...
  15. Thank you all so very much. Your responses were so thorough and helpful in our meeting with the Dr. today. I actually printed the thread and brought it with me. Our Dr. is ordering the celiac panel described above, a common allergen panel and a stool sample to check for malabsorption. Of course, our poor little guy's veins weren't cooperating today so...
  16. Hi, We think our 20 mo old son may have a wheat allergy. Our Dr. is less interested, but is ordering the celiac panel recommended here, a panel of common allergies and having his stool evaluated for malabsorption. My DH found this lab which tests using a stool sample, but seemed to be respected among the celiac community. Open Original Shared Link Anyone...
  17. Hi, My DS2 is 20 mos and we believe he may have celiac or an intolerance to wheat or something in that genre (sorry I'm still learning the distinctions). Here is a little about us, but if you have *any* feedback - things to ask the dr., things we should be doing, things we shouldn't do etc, I could really use some guidance from people who have BTDT. ...
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