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goodnews

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Latest Celiac Disease News & Research:

Everything posted by goodnews

  1. goodnews
    You know, thinking more about your comment also lets me know that going gluten free doesn't just heal the gallbladder. Mine is (or was) at 23%. If you were already gluten free for a year and problems started and then they are getting work...looks like gluten free doesn't just heal the already damaged gallbladder. Obviously both can be going on and celiac...
  2. goodnews
    Yes, I definitely could have both going on. I have been feeling the worst ever since last night. Indescribable Nausea, off and on stomach cramping and aching gallbladder with little stabs of pain here and there. About to go back to bed but just ate a little applesauce and can't lay back down after eating or I am sure I will feel worse. I am still trying...
  3. goodnews
    Thanks...I feel awful today (much worse than any day in the last couple weeks). Although last time I tried the gluten free I felt pretty sick to my stomach the first couple days too. Isn't that odd to feel worse?? So this morning I ate 2 small gluten free waffles. For lunch (still wasn't hungry then) ate leftovers of a frittata I had made and a small...
  4. goodnews
    So....I started the gluten free thing again today just to see. Not sure if it will work out because of how much time it will take to tell and I am having a surgeon consult on Monday. If my pain isn't worse I may put it off for a bit and see. Maybe schedule the surgery for the middle or end of May to give me some time to tell. Of course I worry about the...
  5. goodnews
    Ms. Curious - Hope your upcoming trip goes well and you find some good gluten free food and that you are feeling some relief soon. Let us know when you get the other results from the doctor and what they say. Mushroom and Zimmer - I agree that if I had to have my gallbladder taken out and go gluten free after anyhow that would be awful. Of course if...
  6. goodnews
    I know I know. If I was single or didn't have kids It would be so much easier to just start that diet. I also wish it would clear up quickly and my stomach would feel better quickly after starting that kind of diet so I wouldn't have to wait forever to see if it is working. Oddly enough in those 5 days my stomach felt a little worse then it feels now...
  7. goodnews
    Well I am sure you are glad that is over with! So glad you will be getting some answers soon. I can't imagine a dr. suggesting you go gluten free unless the saw something indicating it would be necessitated or beneficial. That really stinks about the dairy part too. My dr. seems to feel like it's all the gallbladder. Although he did tell me that some...
  8. goodnews
    That's just it...I haven't had celiac diagnosed at all. I just have strong genes for it and symptoms. Of course the symptoms could be related to the gallbladder. Or, the trauma of gallbladder surgery could cause celiac to start. Sometimes I wonder if that is why it happens in that order. gluten causes the gallbladder to fail...and then celiac starts...
  9. goodnews
    Thanks so much for your input and thoughts. I too am a more conservative person and not a fan of surgery. My gallbladder doesn't have any stones, just not functioning right (functioning at 23%). I am guessing it is inflamed as they guy told me how it was a very big gallbladder. (or maybe it's just big and not inflamed, who knows). Please let me know...
  10. goodnews
    Oh, and I probably should add that I am 33, eat a lowfat low meat diet already...with lots of fruits and veggies. I was vegetarian for 13 years of my life and eat quite healthy as it is. I am avg weight (maybe a little under) and in pretty good shape...although with the pain I have stopped running and working out. So...I don't see how much a dietary change...
  11. goodnews
    I really am just not sure what to do. The one doctor said that at the low functioning level it is at no dietary changes would help heal it. And honestly, I have been searching all over the internet to hear a story about someone who had a gallbladder functioning at that level with pain that was somehow healed on a diet and have yet to find one. If you see...
  12. goodnews
    I swear for most of my life (especially in the last 10 years or so) I have constantly had at least one canker sore in my mouth. Usually more than one. On avg each one takes several weeks to heal.
  13. goodnews
    Absolutely. I plan on doing it after the I get my gallbladder out if I still have these same symptoms (or if any of my symptoms don't clear up). And getting my daughter tested too with all her symptoms. Is there any way from my results to see if they came from both or just one parent? I want my mom to get tested too. She has a bunch or symptoms. We...
  14. goodnews
    On my results near the bottom it says that 85% of Celiacs have DQ2 and 5% have DQ8...of course the combo makes the risk go up higher.
  15. goodnews
  16. goodnews
    So they said I was "very high" risk...but got the results back. I don't quite get it but maybe someone can enlighten me. Here is the data of what they found DQ2.5 (HLA DQA1*05, DQB!*0201) DQ8 (HL DQA1*03, DQ8B1*0302) Also it says that I am at 14X greater risk. What exactly does that mean....14X more likely then someone in the general population...
  17. goodnews
    Yes I know....and honestly if I don't feel better after getting it out I will definitely try it. I have plenty of gluten free food and my own little cupboard already. I am just in too much pain with the gallbladder to prepare or plan for much of anything...plus trying to eat really low fat and bland stuff. It's just too hard right now. I had a negative...
  18. goodnews
    Well...I have a "consult" with the surgeon scheduled for early next week (it was further out but I called and got it moved up a whoppin' 3 days). Then I guess they schedule the surgery from there. I don't know if I am going to make it that long. I guess I will eat bland foods until then because I really don't want to have to go in for emergency surgery...
  19. goodnews
    Thanks Trish! Glad you got yours out and you are starting to feel better. I am really hopeful it is mainly just the gallbladder. When they did the HIDA scan that is supposed to mimick the pain you are feeling, it really hurt my whole stomach...it was all cramping like it does. So I guess it can effect the whole stomach like that. I am hopeful I don't...
  20. goodnews
    Well the good news is I got a call from the dr. and they said that that biopsy does not show Celiac. She said it did show some inflammation mostly with the esophagus which is probably due to acid reflux (related to gallbladder). So they are going to schedule the gallbladder surgery I guess. I would like to get it out soon because my symptoms are getting...
  21. goodnews
    The problem at this point is that I am not aware of which foods bother me. I have constant stomach pain and constant pain/pressure under my right rib (that part is definitely my gallbladder because it hurt in the same spot and way when they did the scan). But also when they did the scan my whole stomach hurts like it does now too. So I am just not sure...
  22. goodnews
    I may consider it. I shouldn't be getting any more endoscopies...have had 2 within a 30 day period since they didn't do enough biopsies the first time. Hopefully I am done with that for a while. I am not at all feeling any better yet...but today is only day 4. Of course I am confused though because maybe I shouldn't have started it yet since my gallbladder...
  23. goodnews
    Yes, it was Tinkyada brown rice pasta. Quite good actually. I am baking some bread now from a mix so I can use it for sandwiches this next week. I haven't been eating a lot of the other flours and stuff and trying to eat more basic things....but I would just love a piece of toast in the morning. I tried Grits and I liked those. Of course I am a cereal...
  24. goodnews
    Yes, for a while at least. I am still feeling sick and want to know if it will help. Plus according to my genes I am at high risk of developing it and am going to have a gallbladder surgery coming up.....so with my luck even if I don't have it now it will kick in then I am thinking that other things are bothering me too because I had some icecream...
  25. goodnews
    Well so far (only day 3) I am definitely irritable, with a little more energy but stomach has been the same and a little worse last night and this morning. Dull headache (nothing major) and I have been going to the bathroom more regularly (was constipated before so this is kind of a good thing). Had some brown rice pasta last night and it was actually...
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