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beachbirdie

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Everything posted by beachbirdie

  1. beachbirdie
    Thanks for sharing the results. Yes, your daughter has an elevated TSH which means underactive thyroid. It would be VERY important to get her T3 and T4 checked, those are the actual hormones produced by the thyroid gland (make sure they test "free" and not "total"). At the tender age of 3, your daughter very much needs her thyroid to be functioning well...
  2. beachbirdie
    Mine was done by Labcorp, and I got a specific value for my TtG IgG. The ranges were very different from yours however. I'm not sure the exact value matters. If you came in positive, you are positive. The degree of damage does not necessarily correlate with the number of antibodies, some people have low or no antibodies and still have lots of damage...
  3. beachbirdie
    Wow! I am so hopeful after hearing you all talking about your improved allergies! I've been having a horrible time, worse than I've had in years with reactive airway and sinus troubles! I was wondering if it had anything to do with the gluten binge I've been on for the last six months. I'm waiting now to see if un-glutening will make a difference...
  4. beachbirdie
    I meant to ask you on your other thread and forgot. Have they checked you for gall bladder problems? Hiatal hernia? Ulcers?
  5. beachbirdie
    Welcome to the forum! What did they mean by saying your daughter's thyroid was slightly elevated? Did they mean her TSH (which would mean underactive thyroid) or did they mean her thyroid hormone levels were elevated (which would mean overactive thyroid)? What were the exact celiac tests they did on you? It would be helpful to know, sometimes they...
  6. beachbirdie
    I am trying to manage the diet of my 85-year old mom from 600 miles away. She is not able to do her own shopping or food preparation, she has care in her home around the clock. I started her on a gluten-free diet in early April because she has so many symptoms that could point to celiac, as well as a related blood cancer (or two, hematologist can't...
  7. beachbirdie
    I had the same thing! Got blown off by several docs because my TSH was not high enough and T4 not low enough for them, even though I had symptoms. My current doc is the one who said "we can put this to rest right now with a trial of meds". In six weeks, I was a different person. I was growing hair. I wasn't having anxiety attacks. And more. My first...
  8. beachbirdie
    I am so sorry you are feeling so badly. It is very scary when you have these symptoms and you don't know what is going on. It is compounded by the worry about the cost of accessing care. Be sure to make a written list of all your symptoms, maybe even print one for the doctor. It is easy to forget details that might be important for the doc to know....
  9. beachbirdie
    Dropped a message in the other topic where you asked for help in Australia. Hope it will help!
  10. beachbirdie
    I was looking around the 'net a bit, and found a Open Original Shared Link in australia...can't figure out exactly where, but they might be able to connect you with others in Oz! Have you had any luck with groups like Open Original Shared Link? There will be a "Open Original Shared Link" in Sydney later this year...maybe you could find helpful information...
  11. beachbirdie
    It is meaningful that you tested positive, even "low" positive, for gliadin antibodies. Your body is seeing gluten as an invader, and attacking it. If not celiac, you are gluten sensitive. I have always heard Hashi's patients should avoid gluten, and having hung out on several thyroid forums for over 10 years. The experience of fellow Hashi's sufferers...
  12. beachbirdie
    First question: What celiac tests did they do? That is important to know, because often they only do ONE of the tests. There are several tests they should run, and many celiacs only end up positive on one of those...not every celiac tests positive on the same test. Ask your doctor to give you a paper copy of your lab work, and let us know what they...
  13. beachbirdie
    I'm so sorry to hear about your father. It's hard to look back and think how things might have been different with a little bit of knowledge . My mom has early stage multiple myeloma (not yet malignant) and indications of possible non-Hodgkins lymphoma as well. Both supposedly can be related to celiac. Hope you'll be able to get your family...
  14. beachbirdie
    I think that your response is quite natural! I am starting to get a mental picture of "Open Original Shared Link" every time I see billboards featuring hamburgers in buns, pizza, breaded chicken, that kind of thing! My husband just laughs because I'm always saying "they need to get their thyroid checked" or "they should be tested for celiac" when I notice...
  15. beachbirdie
    Raynaud's can also accompany thyroid disease. I would get my thyroid test results and evaluate them myself. They too often say your thyroid is normal, when it isn't in a good place for YOU. If they tested only TSH and didn't look at antibodies or actual thyroid hormones, the testing is incomplete. Do you know what thyroid tests were done? Thyroid can...
  16. beachbirdie

    ARCHIVED Family

    beachbirdie replied to MistyRG's topic in Coping with Celiac Disease

    My family has been experimenting for a while, and my husband is the challenging one! My kids are adults, and two of them live away from home. The two still at home are very happy to be gluten-free for many reasons. One of the other two is gluten free and probably celiac, the last one doesn't even try but will eat gluten free when she comes to visit. ...
  17. beachbirdie
    Hello Kassie, welcome to the forum! That is quite a story, and I love the spirit in which you told it, thanks so much for sharing! Sorry for the painful childhood events, but you sound like you came through it with a great deal of strength rather than having it destroy you. You've been through and overcome a lot. I see that picture and it makes me want...
  18. beachbirdie
    It's time for me to get serious about gluten free living. She was great actually. I resisted seeing her because she is new to my doctor's office, and my doc is an excellent and intuitive integrative medicine doctor with whom I've built great trust. She really thinks "outside the box". Turns out the FNP also has celiac, and is very knowledgeable. I...
  19. beachbirdie
    You have some positive celiac tests. The EMA tests antibodies to a specific kind of tissue, a thin layer that covers muscle tissue. If that is positive, it indicates autoimmune damage to the lining of your intestine. The TtG test is also a test of autoimmune activity against your gut. The positive gliadin antibodies show that your body is reacting negatively...
  20. beachbirdie
    Don't worry about bumping your own topic. They always come to the top when there are new things added to the conversation. It's sometimes the only way I find my way back to something I was reading because I forget I can look in "my content", LOL. You have a lot going on, and I think everyone in here is happy to do their best to help you! Do you...
  21. beachbirdie
    Well, celiac is defined as gluten intolerance, but you need a doctor to really give you the word. All I can say is with your labs, you're looking like a contender...
  22. beachbirdie
    For me gluten free is not radical. The time we spent exploring SCD (Open Original Shared Link) was radical! Going totally grain-free was quite a learning experience that makes gluten free look EASY! I still do a lot of SCD because my daughter-in-law needs it due to HER intestinal issues (recovering from near-death c. diff infection). Interesting to...
  23. beachbirdie
    I'd love for him to read here, but he won't! I know I'm just going to have to work around him. I'm thankful that I'm not a "super-sensitive", so I don't get sick from tiny bits of contamination. I don't really know how careful I need to be...my DH does NOT get the idea of keeping crumbs out of the butter dish, he thinks it's "overkill". I don't even know...
  24. beachbirdie
    Are you substituting gluten-free baked goods for those with gluten? If you are eating a lot of bread products you might be sensitive to the gums they use. Some people find they cannot tolerate xanthan gum or guar gum, and have reactions similar to being glutened. Actually the gums are uses in a lot more than just baked goods, they are in lots of frozen...
  25. beachbirdie
    Ahhh! Thank you. Well, you have one positive test, the anti-gliadin IgA. That says your body IS reacting to gluten. The only problem here is that you say you've been gluten-free for two months. If you have been totally free of gluten, you have altered the diagnostic accuracy of your tests because you have removed the substance to which your body reacts...
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