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beachbirdie

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Everything posted by beachbirdie

  1. beachbirdie
    My doc is an integrative MD, but is not a major wacko witch doc type. She uses diet and other good health practice first, does not use homeopathic stuff, and would be the first to slap a patient in surgery if cardiac bypass is what would save their life. She was a regular mainstream MD until she got some health issues, she figured out what worked (NOT...
  2. beachbirdie
    Perhaps the opposite approach would be more fruitful? Since you aren't able to do the endoscopy, and probably not the genetic testing, you might go strictly gluten-free for 6 months; this means, seriously, NO cheating, and careful label reading. Ask the doctor to repeat the test at that point. It sounds like your doctor is not one to brush off the idea...
  3. beachbirdie
    I also tested positive only on the TtG IgG. My doc was willing to believe that it is celiac (I also have a genetic marker for celiac) and said so. We know it wasn't liver disease and we know it wasn't Crohn's, two of the main conditions that also raise the TtG IgG. No matter which condition you might have, the positive test IS an indicator of auto-immune...
  4. beachbirdie
    Wow. That's an interesting challenge! I've not made them, but would sure love them! I wonder if you could try doing a wheat-free tempura batter, which would be egg, cornstarch and a gluten-free flour mix (your rice flour would probably work). You would want to roll the chicken in your flour before dipping in batter so it will stick. For more texture...
  5. beachbirdie
    You don't have to go without pasta! There are several good brands of gluten-free pasta out there, some are better than others. You'll have to give them all a try and see which one satisfies your family the best. Open Original Shared Link makes one with rice, potato,and soy. I don't use it much because I avoid soy as much as possible, but it cooks up...
  6. beachbirdie
    Did you use regular Coffe-mate or did you use their "natural bliss" product? Did you use the name-brand, or a knock-off? Coffee-mate is non-dairy and is supposed to have no lactose, as well as having no gluten. So the PA called it IBS? I wish I had a dollar for every gluten-sensitive person who was told they have IBS. IBS is a name they give people...
  7. beachbirdie
    Some of the symptoms do sound like they could be celiac, but there is likely something else going on as well. Celiac would not necessarily cause fevers, a low-grade fever is generally a sign of infection somewhere. Among the tests they did before, was your daughter tested for juvenile rheumatoid arthritis? That causes a lot of similar symptoms and actually...
  8. beachbirdie
    So glad you posted! I am happy to hear you are doing great with the diet. You are sure right, even if the doctor won't call it what it is, it's good to listen to your body! So strange your doc wouldn't give you a dx, even with the scalloping and the positive bloodwork. Thankfully this is not a condition where we have to fight for the dx in order to...
  9. beachbirdie
    ravenwoodglass posted a link here to an article on testing that looks VERY promising, too bad its not in use yet! They can challenge the cells in a dish and get an accurate diagnosis! If they get this into production, no more gluten-loading!
  10. beachbirdie
    Hi beachymama, welcome to the forum! Don't apologize for a long explanatory post, it's perfectly fine! As for testing, you are correct. They did not do a very complete job of testing. In addition to what they tested, they should have done: Deamidated gliadin peptides, both IgA and IgG version anti-EMA (anti-endomysial antibodies...
  11. beachbirdie
    ROFL!!!!! I love your sense of humor!
  12. beachbirdie
    Yikes. Just re-read my post and realized it could be terribly offensive referring to beer aficionados as "beer snobs". That's actually a term used affectionately in my household for people who have discriminating taste buds and like to talk about what they taste! I could have and should have simply said "beer fans" or something. I apologize if...
  13. beachbirdie

    I read where you described not losing weight and feeling swollen. You wanted to know about an article on obesity and celiac. I read that article and it was no help to me. I have been gluten-free for 5 months and have not lost an ounce! I am 50lbs over weight and am not losing weight. I think we are in the same boat...

  14. beachbirdie
    I don't have an answer for your question, but I did want to stop and send a {{{{HUG}}}} your way. Finding out one has this condition and making all the required life changes is a BIG deal, and a stressor for everyone in different ways. It sounds like you are a person of faith, so I hope you won't be offended if I respond from my faith...sometimes we are...
  15. beachbirdie
    GladGirl, do you happen to have the name of that thread about fighting to lose weight, or a link to it? I'm really struggling right now! Gluten free for only 3 weeks. It used to be that if I changed my diet, I could lose 6 pounds of water weight almost instantly. This time around, the first time I've ever gone truly gluten free, I am still quite swollen...
  16. beachbirdie

    ARCHIVED A Biopsy

    beachbirdie replied to cristalbleu13's topic in Doctors

    Kind of depends on your body. Some people heal more quickly than others. Were you feeling fairly well before you were taken on this misadventure? It is possible it could take up to some months to heal. Because celiac is an autoimmune response to the gluten, you will have a lot of inflammation in your body. That takes time to overcome, even after...
  17. beachbirdie
    So wonderful to hear your good news! Your story is inspiring, for sure, and it's so good to know how well you are doing after your struggles. I actually HAVE been feeling pretty hopeless the last couple of days and you brought a ray of sunshine into the gloom!
  18. beachbirdie

    ARCHIVED A Biopsy

    beachbirdie replied to cristalbleu13's topic in Doctors

    Ahh...I just went back and found one of your original posts in which you shared your whole story. I am dumbfounded that a doctor put you back on a "normal" diet after having been diagnosed celiac. And that they went fishing for other things when you started getting sick. Celiac is not something you "get over", and you simply must be gluten free...
  19. beachbirdie

    ARCHIVED A Biopsy

    beachbirdie replied to cristalbleu13's topic in Doctors

    The grade 4 atrophy rating is a measurement of damage to the villi in your intestine. A rating this high is usually seen in untreated celiac. When was this biopsy done? If recent, you have serious intestinal damage going on. And at risk for a lot of stuff.
  20. beachbirdie
    Well, first of all, your doctor is wrong about your digestive episodes. Many celiacs do not have digestive issues, many have no symptoms at all. That should not be a reason to rule OUT celiac. I don't know much about the testing for this, but if you had a C.Diff infection, your gut flora is seriously messed up. It does not necessarily recover on its...
  21. beachbirdie
    That will be a great start. At least you are going to see a doc who is (hopefully!) more knowledgeable about digestive issues. Keep on eating a gluten diet until you are completely through the diagnostic process! You need to be eating it in order for testing to be accurate!
  22. beachbirdie
    Hi Missy, welcome to the forum! Do you by chance have the names of the tests your doctor did? It would be really helpful to have you list them, and what the results were. Sometimes doctors don't do a complete panel, and without knowing that you wouldn't automatically want to assume you are completely negative for celiac. Of course there can be some...
  23. beachbirdie
    As others said, simple foods are best. It may not be perfect, but it works. I've been in the situation of having to "make do" with what we could afford when my husband was unemployed for almost a year. Rather than trying to replace the gluten foods like bread and pizza, you might have to eat really different. And maybe your family could eat without...
  24. beachbirdie
    You can find articles searching Open Original Shared Link. If you have access to a university library, you can find stuff there. That's where I go, to my university library which can get access to pretty much any full-text article that might not be available on PubMed. You can find a lot of stuff using Open Original Shared Link. I'm sure...
  25. beachbirdie
    The test is negative. When it says "reflex to titer" it means they will perform dilutions to find out how strongly positive it is, if they find antibodies. If it is negative (they don't find antibodies), they will not perform the dilutions. They did not do complete testing. You should have the complete panel mentioned by others. Many people with celiac...
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