stanleymonkey

I'd keep taking her to the er when she is bad, it may make them bring the gastro to YOU! If they suggest the gluten free diet, make sure they know the gastro said no till he has seen her. They will like lynhave a gastro down there pretty quick! While we were waiting on tests for our daughter she was really ill, and they sped up our initial visit from 5 weeks to a few days. ER docs get a bad rap sometimes, nut it was our ER doc that said huh she's got a huge belly and is really skinny, has anyone suggested celiac disease? At that point we'd been told toddler diarrhea.

Hope the next 5 days go quick. If the gastro wants more waitin time before he does an endoscopy tell him how worried you are with her medical condition right now, ask if he'll diagnose on the blood work, and a response to the diet. My husband works in a hospital he say all the time there is no such thing as anborderline positive. It's negative or positive. He's sen a gastro since his teens and worked with him for 10 years and he told him the same.

We were told our daughter just had toddler diarrhea, turns out she was realllllly backed up the diarrhea was just leakage. But it was the same kind of response, she's growing she doesn't look like a starving child, so she's fine.

Our allergist said that she wished our daughter had been sent to her first, she would have diagnosed celiac on the spot with the rash (she said by looking at it it was very likely DH), her symptoms and her positive genetics, and given that pretty much all her health issues disappeared gluten free including anaphylactic allergies.

Celiac is an autoimmune condition, so if she is an allergist/ immunologist she is well within her rights to order a celiac panel, ours did

Testing in young kids can be very hit and miss. My 4 yr old was tested at age 2 she had the full panel everything was negative apart from the genetic test. My 2 yr old was tested a few months ago, only thing that showed up was aneamia that was slow to respond to iron supplements. Thankfully our ped said given her sisters reactions, and genetics, and the factbshevwas anemic ti just assume celiac.

Some schools and colleges will not accommodate needs without an official diagnosis. But at this age the tests are so unreliable, and there s also the chance it is non celiac gluten intolerance.

I hate not knowing for sure with both kids, especially has there are so many other autoimmune diseases in the family, but on the other hand I don't want to make them sick and the tests be negative.

Our allergist said to try a gluten challenge at age 5 I really don't know what to do. It's a hard decision.

Our 2 yr old never seemed to be in pain, now after one tiny slip up she screamed for 6 hrs solid. My 4 yr old suffers with pain constipation skin and behavior issues after any gluten.

We taught our daughterno ingredients no eat, so if she sees no ingredients on something she refuses to eat it even if we offer it to her! She started preschool at 2 1/2 and we told her no food from anyone other than mom and dad, and she has never accepted anything. I think the age when a child is old enough to be an advocate for themselves depends on their personality. My monkey told the nurse who gave her her 12 month shots "no no no I don't like you I don't want it" so we figured she'd be pretty strong when it came to no to food!

If you need prepackaged snacks just to keep n hand for emergencies try enjoy life, free of the top 11 allergens,

We were told me eldest could not possibly have any issue with gluten because she was following her growth curve, she wasnaround the 25 th percentile for height and weight, both her dad and I are on the shorter side so they said no issue, gluten free she grew 3 inches in 3 months! And hit the 50 th percentile.

Growing doesn't mean damage isn't being done. And as for the allergies, my daughter had anaphylactic allergies to milk and eggs, gluten free they disappeared. If she gets glutened she'll get hives from milk. Our allergist said her immune system was so taxed with the gluten reactions, it just basically freaked out.

I'd try gluten free as a trial, and I am sure her allergies will ease a little.

I know it may sound. Bit mean but there may be a silver lining to this... Your daughter will probably remember how I'll the cookies made her. This may be the perfect opportunity to explain that the gluten made her so I'll, that is why it is very important that she only eats food you send her with. She may be sad at not getting the treat everyone else had, but she can have something else when she gets home.

My then 2 1/2 yr old ate something she shouldn't and told us her tummy hurt. We used it to reinforce being an advocate for herself. She never eats anything without asking, she turns down food from friends, and relatives without question. If they try to entice her she tells them she has to ask her mom and dad first. She has just turned 4 and tells people gluten makes her sick, and she gets a really sore tummy. She is also very strong willed, which helps her stand up for herself.

I second talking to the teacher, and resend any letters documentation to her to reinforce how serious the issue is. If you get no response, go to the school district. Would they give a cookie to a child with an anaphylactic allergy? No! So why would they give a cookie to a child who could suffer permanent complications from gluten? If necessary print out the long term effects of gluten, it might seema. Bit heavy handed but will get the point across. My daughters preschool asked for the info, and now her preschool is "crumb free" to keep her safe.

Our daughters allergist uses skin prick tests but explained they aren't always accurate, your skin isn't your gut. Our daughter had a small hive for milk and a low igE blood test, but one sip of milk and she was a mess. The only true way to know if you are allergic to something is by ingestion. Talk to yor allergist about an elimination diet, and a food challenge for things you really have issues with

When my 4 yr old gets constipated she gets reflux and complains of right sided pain, something to do with the change from small to large intestine being in that area her GI said(if I remember rightly) and if you are really backed up, nothing can go down, so it has to come up

It's good you can tolerate oats, if she has oatmeal she's regular as clockwork! Try also a teaspoon of ground flax seed in your oatmeal, chock full of fibre

That's the thIng they are not poor, their income is at least twice ours,

Because we live with my inlays we have to be careful ot to rock the boat, but they seem to think everything is theirs! They even took one of kids tops because they liked it and hadn't seen our eldest wear it for a while, needless to say the next time we were at their house I just took it back and wrote the name of my youngest in it!

Does anyone have a relative like this?

We live with my husbands parents. His brother and wife come round for dinner at least once a week and NEVER bring anything, and even take the leftovers for THEIR kid for daycare. They always ask us to take things to their house though.

Now they have decided to have an Easter egg hunt at their house. They want everyone to bring food, AND eggs!

Mmmmm think I might be too busy to take the kids round!

My daughter tested negative for everything under the sun, despite having diarrhea 20+ times a day, no fat on limbs but huge belly, thinning hair, nails not growing, horrific rashes that didn't respond to treatment, odd behavior

Our original diagnosis was reflux, and to cut out juice (which she never ever drank) and dairy ( which she had an anaphylactic reaction to so I would have known if she was getting any!)

She got to the point she was lying on the look all day crying, not eating, sleeping our growing, bt all her bloodiest were negative fr everything from parasites, celiac, diabetes, etc

Ct out gluten.......by magic she is all better

Our pediatrician said celac can affect yor gut, our blood is not your gut, don't believe blood tests blindly...........which is why he is still or doctor!

My then 2 yr old had what we were told was excema, no creams fixed it, gluten free did. Her behavior was odd, she was scared of the stairs one day! That stopped gluten free. We're still,working on the bed wetting, but 2 1/2 yrs of chronic constipation have made it hard. I've read a lot of people on here mentioning anxiety as a symptom. Our youngest didn't have any GI issues beyond mild constipation, but she cried all day long, had bizarre rashes, gluten free she is happier. The eldest was tested at 3 for celiac disease but came up negative, but she had the genes. We went gluten free anyway. Her little sister was aneamic, that was enough for us. If she is obviously better gluten free, go with your gut and go gluten free after the testing.

Nay inside is good, I think they now have a soy free

We usually mix almond and coconut flour with a little bit of rice flour, and rice chex crunched up, gluten free rice krispies work well too, we marinate the chicken in lemon and then egg, flour mix, egg, flour mix

If you bread it twice it comes up crispier( my father in law owned a Chinese restuarant for 20+ yrs and said secret to crispy even coating is double coat)

She has had a positive genetic test and grew 3 inches and put on 4 pounds in 3 months gluten free. Our original gastro wanted a scope to rule out or rule in celiac but because the gastro deptbat hospital say no, that's the end of everything, no diagnosis, no chance to find out what is really going on, which sucks as her dad has Crohns and it would be nice to know whether that is an issue or not

We have an allergist and a child nutritionist be ause she used to have allergies, milk and soy cause issues when taken in large quantities, but we tend to avoid them

Our daughter is starting kindergarden in September, and we are very nervous. My husband and I are both teachers, so even thoug people tell us it will be okay we know the reality when you have so many kids in a class.

Our main concern is a lack of diagnosis, just our experience.

Age around 26 months sent to gastro for chronic diarrhea losing lots of weight. Turns out she was horrifically constipated, the diarrhea was stuff leaking out around the blockage. Asked about celiac after many visits to hospital, being told she's okay it's just a bug. ( seriously, green water for poop for months and losing weight is just a tummy bug! No one else got sick!)

Put on peg for 3 months, no real change.

Blood work okay so told keep on suing peg.

Mhorrific behavior, thought it could be because of the new baby. Rash we were told was except that nothing would get rid of.

Finally gastro listened and agreed maybe gluten was an issue. As before all bloodwork was okay, but she has genes for celiac.

Age 3 finally see gastro at local kids hospital, who diagnosis her with reflux. Says he doesn't need to scope her to rule in/or put celiac. Just give her Zantac. Zantac only made her sleep.

Finally we decided to try gluten free out of desperation. 2 weeks later she was like a new child. Went back to gastro who apologized said he was obviously wrong. Said it was a shame she was off gluten as that meant he couldn't scope her, and given how she had been, to never give her gluten again, and that a gluten challenge was out of the question as it could kill her.

Fast forward to now....

How am I to get school to take me seriously with the no gluten issue, when all the doctors will write is MAY have a gluten sensitivity?

Gluten makes her I'll for at least a week, we are not talking sore tummy here either, think crying 22 hrs a day for dys on end, bloating, diarrhea, aggressive behavior, vocal tics, scratching her "excema" till she bleeds, fatigue for a few weeks.

If she misses too much school we are worried she might get held back a grade as she is already only 2 weeks before the cut off date, and she is a child who does not need to be kept back, she was assessed in a university infant study as having the cognitive age of a 6 yr old at age 3 yr 9 months!

How do we get the school to take us seriously?

How do we get them to understand the effect gluten has on her if no doctors will back us up besides our pediatrician ( who can't write a letter contradicting the gastro!)?

she may not be happy st first, but be assured she won't starve. My 3 yr old would only eat rice the first few days gluten free, then decided she was hungry, and now we can't keep her full. We've worked with a dietician due yo other health issues, and she made the suggestion of not putting food on her plate, but the food in the middle often table and let her serve herself, giving her control over what she chooses to eat and how muc h will help her adjust, it worked really well forus as my in-laws are Chinese and that is how dinner is anyway. And if she didn't want anything or said she didn't like anything we just said okay and left it at that. If you make a big deal out of meal times she will, so be relaxed, and let her have a little control, and soon she'll be eating you out of house andhome!

also I know gluten can have an opiate like effect on people, so when she goes gluten free she may get withdrawal, my little one did, once it passed she wasn't fussy anymore, in fact we just came from dinner an she ate green things!

guys don't stop growing on average until 21, girls 18 as they usually hit puberty earlier, so fingers crossed!

they are in b.c too, in fact we have a box in the cuoboard

take any old test results with you

prepare a list of questions you want to ask, I got to see the head of department for my daughter and I wish now I'd prepared because there were things I never for to ask

a family history if there are autoimmune conditions - on my husbands side there is crohns, hypothyroidism, hyperthyroidism, anaemia and our pediatricians said that combined with positive genes and diet response is enough to convinced him she has celiac

hemolyzed is the most common reason for lab results bring rejected do yours aren't completely reliable because of this so he should run them ALL again

also hemolysed blood can be due to anemia , an autoimmune (!) condition, or plain sloppy lab tech's

remember lots of handwashing,just in case it is a bug,

I glutened my 3 yr old, I felt awful, I cried with her when she was in agony

hugs from Vancouver

no, if you have an allergy to milk protein, you cannot have any dairy at all, my 3 yr Oldham an anaphylactic allergy to milk, while the allergy tends to be to the protein, which is what allergy testing tests for, most with milk allergies are also allergic to the whey part

caesin is in pretty much if not all dairy, when you change the milk to cheese or yoghurt you change the proteins chain, but he milk protein chain is so large that even when changed it is still big enough for the body to recognise and attack

with kefir they ferment the lactose, but if you have a child allergic to milk protein I wouldn't even try kefir