Jump to content

lucky28

Advanced Members
 View Profile  See their activity

  • Posts

    103

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by lucky28

  1. lucky28
    Well I had my biopsy done this morning- obviously I don't have the pathology results yet but I do have my images. Classic scalloping, mosaic pattern to my duodenum. Dr circled and labeled these images. Surprisingly he told me to not worry about changing my diet yet!? He wants to see me in 2 weeks in the office. Well, I had already decided to go gluten free...
  2. lucky28
    Thank you both! I appreciate you taking the time.. I guess I was just a little worn down today and second guessing myself. I am looking forward to going gluten-free-especially if it will help clear up my exhaustion and memory issues. The stomach issues I have dealt with so long they are pretty much a part of my routine by now (gotta get up extra early so...
  3. lucky28
    Finally I will have my biopsy tomorrow. I have been impatiently waiting, eating as much gluten (and feeling miserable) in the meantime. I thought I would feel relief, but I really have alot of mixed emotions. I plan on going gluten free after tonight. But what if my biopsy comes back negative? I know that you can have false negatives but I will feel like...
  4. lucky28
    I'm down to my last 12 days before my biopsy. (blood work came back positive ttg and DQ2 positive (2.5 variant) last month. I have had years of "IBS-D" which has gotten much worse in the last year and a half. I also have been consistently Vit. D deficient for the last few years as well as other sx that might be too long to list. Well I had the bright idea...
  5. lucky28
    Oh as you can see by my original registration date- I thought for a long time that I may have celiac- my original gastro sent me for bloodwork in 05 that came back negative-he didn't pursue it and I wasn't proactive! Only went to this new one after my "ibs" was starting to interfere with my daily life, vitamin b and d deficiencies, exhaustion etc.
  6. lucky28
    Hi daisy-I've been kinda following your post- my bloodwork came back with the same results as you. ttg elevated, the rest normal and in addition my dr ordered genetic testing that came back positive. I am not scheduled for my biopsy for almost a month-aug 9th. I am actually hoping that it comes back positive-I have been feeling so miserable lately-especially...
  7. lucky28
    Well I got my test results total IGA- 242 in normal range IGA gliadin normal TTG (iga)- Normal The lab then chose not to do the TTG(igg), Endomysial (iga) and the Endomysial titer. So because of the first 3 tests came back negative-they stated the rest of the tests were "Not Required". I was really surprised at #1 the results and #2 that they wouldn...
  8. lucky28
    Yeah, it does mean rule out, it is a good sign, it means your doctor is taking seriously the fact that you may have celiac and he has "put it on the table" of diagnosises(sp?) that he is considering and will test for. Good luck with your surgery
  9. lucky28
    That's the plan, I'm tired of being tired, bloated, gassy etc etc. I look like I'm 3 months pregnant and have no enegy. I'm fairly certain I have celiac disease but I over analyze everything and just want to get the testing done so I know for certain, I'm asking my gp to send me for a full celiac panel, as well as to a dermatologist to biopsy a rash I have...
  10. lucky28
    HI, I just had another piece of the puzzle put into place, I had a chat with someone who new my mother before she passed away-my mom was great but headstrong--example: she was diagnosed with type 1 diabetes at 40 something but refused to believe the diagnosis and continually ate wrong etc etc. Well this friend said that my mom told her she never drank beer...
  11. lucky28
    I never thought about that, great suggestion!!! I'll look into it asap-I'm tired of the intestinal problems--it DOES suck!! So anything to speed up testing is worth it. Thanks, Tarnalberry!!
  12. lucky28
    Well, I will finally have health insurance for testing, starts October 1st!!! I have reintroduced gluten into my diet, daily at least 3 slices of wheat bread or equiv. starting august 30,the day I found out I would be receiving a scholarship through the local hospital that includes full medical. My question is when should I try to schedule an appt.???I am...
  13. lucky28
    I don't have alot of time or money either. But it does get easier. My son is grown and out of the house so I don't know if my shortcuts will work for you but I usually take time out one afternoon or evening and do most of my cooking for the week. I usually make a batch of brown rice -I follow the recipe for making it but I use the crockpot, put...
  14. lucky28
    I too have problems with lactose intolerance, in fact I think I am suffering a severe attack today. I have been studying hard for finals and I thought I would treat myself to a gluten-free pizza (I usually make my own meals but a gluten-free store opened just down the road) well I bought the pizza and I was so focused on my studying that I forgot to take...
  15. lucky28
    My cycle was always so regularly irregular, if that makes sense. Since i started it has been 3 days on 2 off, then 4 on or some combination of that formula. until i started gluten-free. now it is about 4-6 days straight, no 2-3 day break.inbetween, And my pms has actually seemed to get worse, bloating and tenderness starts alot earlier than before. I guess...
  16. lucky28

    ARCHIVED To Life

    lucky28 replied to watkinson's topic in Gluten-Free Restaurants

    If you do visit To Life, the owners told me they are organizing with area restaurants to educate them on gluten-free diet, so even though it's hit or miss now, I think within the next year there will be at least one or two (hopefully more) local restaurants that offer a gluten-free menu (or at least are educated as to cross contamination, etc). If you are...
  17. lucky28

    ARCHIVED To Life

    lucky28 replied to watkinson's topic in Gluten-Free Restaurants

    Yes--TO Life is great, I live right on the border of fenwick island and OC. Unfortunately I just started a VERY demanding 2 year/year round program in college, and even though I'm still working as much as possible, I know as of October I probably won't be able to work more than 1-2 days per week (if that!!)until 2007!! It's pretty scary so unfortunatly...
  18. lucky28
    oh, I'm not sure if slimfast fruit flavor is gluten-free but i know from before going gluten-free that it is (or was) lactose free. If you can add at least 1 or more to your diet in addition to your meals it may help. even though it is slimfast the calorie and nutrition levels are almost equivalent with protein/ensure type supplements.
  19. lucky28
    I saw that there has not been a response to your problem yet well- I don't have your problem but hopefully something I suggest will be helpful. 1- I have seen recipes for rice flour pancakes-you can buy rice flour in the "mexican" type food isle if you have a good grocery store, or at an asian food market. here is an address to a good recipe-Open Original...
  20. lucky28
    I read something about choc dynobytes no longer being gluten-free? anyone have any reliable info?? thanks-I started school again and need to find an affordable/portable & easy snack-I wanted to make choco-crispies. thanks
  21. lucky28
    I work in bethany-at Bethany Blues BBQ- Not a whole lot of gluten-free on the menu but you can get ribs w/o sauce, mashers, greens, corn (on cob only) kids chix fingers (grilled-no breading), etc etc. (bring your own bbq sauce and salad dressing if you want) there is also an outback in rehobeth, de, as well as many crab houses (yum! and gluten-free) in the...
  22. lucky28

    ARCHIVED Whoops!

    lucky28 replied to lucky28's topic in Coping with Celiac Disease

    It was a vodka from a local micro brew company-they make beer there too or I'm thinking it could have been from the "sour mix"? either way I'll stick to bacardi if I want a drink.
  23. lucky28

    ARCHIVED Cholesterol

    lucky28 posted a topic in Related Issues & Disorders

    I was wondering if anyone with dx of celiac has ever had high cholesterol? from my research it shows that cholesterol is alway low in celiacs-Just out of curiosity Thanks
  24. lucky28
    Oops. I meant to say I've been working in restaurants 20+ years- not 40!!! that would be unthinkable LOL!!!
  25. lucky28

    ARCHIVED Whoops!

    lucky28 posted a topic in Coping with Celiac Disease

    Well I accidentally glutened myself last night at work. ( I work in a restaurant). I knew when I got home and my stomach was perculating, I was confused b/c it was so busy I literally didn't have time to eat b/c it was so busy, I haven't gotten a "official" diagnosis either so I was second guessing the cause of my D. then today I did some research and figured...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.