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SarahJimMarcy

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13-year-old daughter diagnosed with celiac April, 2011. Mom, Dad and daughter all went gluten free and felt much better! I ignored doctors' prompts to eat gluten for two months so I could get an endoscopy. Genetic test turned up positive. Misdiagnosed for 14 years.

  1. Hi everyone! Three years ago, my daughter and I were diagnosed with celiac, went gluten free, and felt significantly better. Now, I've got stomach issues again, and migraines. The Mayo said it's anxiety and sleep problems. My chiropractor recommended the Whole 30 Elimination Diet. I'm on day 3. Is this the best way to figure out why I started...
  2. Celiac Mindwarp - How did the Whole30 go? I am on day 2. I hope this helps me figure out why I am having some of the same symptoms I had before going gluten free three years ago. Did it help you?
  3. I am really happy to have discovered this thread, though sad to see you suffered for so long. I did, too, and didn't get diagnosed until after my daughter got diagnosed. I had given up on myself, but for her, I gave it my all. I, too, had mono twice, and wondered how a married woman, 44, could get it! The only information I could find about mono was on...
  4. More answers, though partial. Shadowicewolf: You were right: it is a hiatal hernia. I had my gall bladder out 16 years ago, so it can't be that. But I would like to have an ultrasound on the left side to see if anything's inflamed.Throwing up bile seems like more than a hernia? The endoscopy was not fun - glad that's over! I am going to try Lactaid...
  5. I've got a partial answer, figured out by my chiropractor. I had a rib out of place. One treatment made a difference. If anyone in the Twin Cities needs a good chiropractor, who is gluten-free by the way, see Dr. Berg at Open Original Shared Link Now, it is the nausea to figure out. I think I need to give up dairy and sugar. But Dr. Berg also suggested...
  6. Hi everyone! I went gluten free two years ago following a diagnosis of celiac. The past six weeks, though, I have had pain and spasming in the upper abdominal area. I also have nausea. I have had the "flu" twice in September, once needing IV fluids. I have had an x-ray, bone scan and CT - all normal findings. Blood counts are also normal. Any...
  7. I can add another: Came home from work to find paper towels in the fridge and milk on the counter.
  8. Hello from the Twin Cities in Minnesota! Your journey sounds similar to many of the rest of us. To me, it sounds like celiac, and yes, I have noticed increased sensitivity to foods since going gluten from 1.5 years ago. It's like removing gluten helps your system settle down, then each time you have it (or grains), you body says "No!" more emphatically...
  9. Good to hear you are making progress! I hope going back on gluten for a few months isn't too hard on you. (Also, the colonoscopy.) I had the genetic test done (through MN GI Maplewood) which came back positive. Surprisingly, my insurance company covered the test. So if you still aren't finding answers, that might be something for you and Dr. O to consider...
  10. I have a hypothyroid.
  11. So glad to hear! Next time I have to go back, I'll ask for Dr. O'Reilly. Please keep me updated on how all the tests come in. Here's to getting better!
  12. I know people can come back to these threads many years later so I thought I would update it. After the ER visit, we had to go follow up with our primary care doctor. He was out that week, so I asked for the most experienced doctor they had available. So it was Dr. Hoffman at Southdale Peds (MN) who said, "I think this is stress. I could send you to more...
  13. It's great that you are going to get tested. I think listening to that nagging feeling is really a wise idea. We have had mixed results with MNGI. My daughter saw Dr. Kennedy at the MNGI pediatric clinic on University. She did the blood test, it was positive, so onto the endoscopy, which was positive. For me, I went around years and years to different...
  14. I went down the same road. Had my gall bladder out but never got better. Finally, after 14 years and my daughter getting diagnosed with celiac, we went gluten free as a family and lo and behold, I started to feel better. I don't know how often gall bladder and celiac go together, but it was definitely a chain reaction for me. They wanted me to go back...
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