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Ginkgo100

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    Female
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    cross stitch, reading, animals, cats, graphic design, puzzles, sudoku
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    Houston, TX

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  1. Ginkgo100
    DS was diagnosed with celiac disease at age 12 months and is now a healthy, gluten-free 5-year-old in kindergarten at our local public school. We do not have a formal 504 in place, just verbal understandings with his teachers, the school nurse, and the district's head dietitian. He brown-bags it every day for lunch, but is allowed to get gluten-free items...
  2. Ginkgo100

    ARCHIVED Cat Food

    Ginkgo100 replied to pipermarau's topic in Super Sensitive People

    Please forgive me, but I am a little confused. I'm sure you are not eating the cat food , so what is causing it to affect you? Is the dust from the dry food getting into your mouth or cross-contaminating your food? I always assumed Blue Wilderness was gluten-free (we feed it to our cats, too), but it turns out that it does contain barley grass as an...
  3. Ginkgo100
    It definitely could be celiac disease. Kids with this disease died on a pretty routine basis (I seem to remember reading that 1/3 of all celiac kids died in any given year) before the role of gluten, and the importance of the gluten-free diet, was discovered. Most of the deaths were slow and painful due to malnutrition (malabsorption from damaged intestines...
  4. Ginkgo100
    My son Z was dx with celiac at age 12 months, in May 2011. Though he didn't have symptoms, I had a blood test done for my other biological son R, who was 4 at the time (test was negative). I have a number of symptoms on the "list" (IBS, iron deficiency anemia, underweight, unexplained fertility problems, etc.), but my blood test was also negative. (Same...
  5. Ginkgo100
    My celiac child "Z" is 4, and we don't do Play-Doh at all, period. I am too paranoid that it will get under his nails. His preschool teachers know not to give it to him to play with. (They are really awesome about the whole gluten-free diet thing, actually.) At home, we do use oil-based modeling clay, and have also experimented witih "air-dry clay" (which...
  6. Ginkgo100
    My son "Z" (dx with celiac in May 2011, at age 12 months) will be starting kindergarten in the fall. I was talking to the school nurse yesterday about another of my children, and I asked her in a "by the way" sort of manner, what should I do to get a plan in place for Z next year? I was alarmed that she seemed totally unfamiliar with celiac disease. She...
  7. Ginkgo100
    Hi TatersMom, Make sure you do NOT put her on a gluten free diet before all the testing is complete. She must be eating gluten EVERY DAY during testing or you could get a false negative. I know it's so hard to give your kid food that you are pretty sure is making her sick... that happened with DS when he was in the hospital (yes, the hospital) getting...
  8. Ginkgo100
    This sounds like Excessive Daytime Sleepiness (EDS), but most people with EDS do not have narcolepsy. Almost any sleep disorder can cause it (e.g. obstructive sleep apnea, restless legs syndrome, insomnia), and it has other causes too, like chronic sleep deprivation. (Ask yourself, how much sleep do you get at night lately? If it's less than 7 hours, you...
  9. Ginkgo100
    Hi, I have been diagnosed with narcolepsy for about two years. It is a neurological disorder that is not caused by nutritional deficiencies. Narcolepsy symptoms result from the brain's inability to regulate sleep. Practically all narcoleptics suffer from "excessive daytime sleepiness" or EDS, but most people with EDS do not have narcolepsy. (EDS is not...
  10. Ginkgo100
    Actually, it's not as bad as I guess I made it sound. He's seeing his regular pedi every week right now, plus we're following up with his pedi-GI doc from the hospital this coming week. We met with a nutritionist before we left the hospital and my pedi gave me a referral for another nutritionist consult. We live in Houston, which has the world-renowned Texas...
  11. Ginkgo100
    When ds (13 mo) was in the hospital for weight loss/failure to thrive, the docs were testing for LOTS of things, because celiac is far from the ONLY thing that can cause these symptoms. Here are my thoughts: Did your pedi run the IgA TTG test? This is considered the "best" blood test for celiac, but it can give false negatives in certain people. In this...
  12. Ginkgo100
    At his 12-month well-child visit, my son (the youngest of 3 boys) turned out not to be a well child
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