Neshema1

Omg, I'm keeping my GI doc. Will tell u mote after I rest.

This is what I feared when I got old. It happened when was at the best time in my life. I think gluten is likely at the root. So my GI didbt see me. I hung out resting in the main lobby of Hosp cuz I don't wanna go home.. Ok, but my cardiologist just called & said go rest. I'll tell ya abt my GI doc later. I think she's getting flushed down the toilet...

Wrote the story but got booted.. Too tired now. Didn't see the doc. Unbelievable! Goes to show ya worrying is a waste of energy! Now I'm just tired of dealing with docs. I have to say two on my team are awesome human beings. The ppl who wirk at this hospital (my personal headquarters) are so kind. I can't walk down a hallway without 3 ppl from wherever,...

Need to ask for emails to inform me of replies

Contd an MD in complimentary medicine did the DNA tests. My neuro believes it. My Endo believes it (and SHOUKD have picked it up with all my bone & Endo issues) & even mayo asked me if I ever was told abt celiac & o just rolled my I eyes. "I dobt have celiac!!!" I said for the hundredth time! Well, seems I do. And oh, btw, I have nails for first...

Ok. Up all night. Have dreaded gi appt in few hrs. Like my dr but gotta tell her another dr did my DNA tests & pos for celiac. I was dxd shortly after a year old. gluten-free 4 years. Then found pancreatic digestive enzyme (trypsin) deficiency. Now know that can be result of celiac disease. I have every symptom imaginable and even neuro damage (and Im...

Ok, it's way expensive to start but after the initial cost, I cannot recommend dreamcatchers hair extensions enough! My hair was so dry from all my deficiencies, & I splurged (when I could affORD it, & got them). They stay inyour hair like your own normal hair & u can wash it less often & they always look great. U never have to color them...

Dxd w/ celiac at abt 13 mos, juvenile RA at age 9, later sjogrens syndrome & raynauds (related to RA), & then neuropathy, & then u name it.. Now dysautonomia (neurological). BUT, was of gluten-free diet most of my life after docs decided at around age 4 it was pancreatic enzyme deficiency (trypsin) which now know can happen secondary to celiac...

No joke abt vit D. Mine is untraceable without 5,000 u daily d3. Rx d2 didn't work at 100,000 u week. It got so bad I had parathyroid (not thyroid) disease. Hyperparathyroid & low D is called the "moans & groans" disease for good reason! It feels like hypothyroid. Mine was better finally last we checked, but it's been constant battle & gave me...

I don't think ADA covers ppl on long term disability leave (after using up FMLA), right, even for tenured profs. I think they can fire u for being sick indefinitely. As sky knows, I had dx of celiac since age 13 mos, then docs took me off diet thinking I didn't have it, always had malabsorption, RA, & now neuro & heart problems. I'm pretty young for...

On thread "hope this helps"

Pls read my post under darn forgot!

I have the same problem. Can literally sleep 3 days straight. My sleep doc says I need 12 hrs (and even then I have fatigue). I have periodic leg movements. I did not even know. I sleep at most one hour then wake up but go back to sleep & don't know. It csm be relayed to restless legs or neurological disorders. He thought I had delayed sleep phase disorder...

Is it normal to get worse after abt 10 days on the diet? Im suddenly worse than before. I wonder if I'm more sensitive? I accidentally took a bite (like two flakes) of the wrong cereal. Thought it was my gluten free stuff but it wasn't. But I was already worse buy wow even worse after that. Maybe I need to recheck all my meds. But still, I'm really taking...

I hear ya! I'm sticking to it but it's initially making me worse unless it is making me more sensitive. Had a bite (i kean two pieces!) of cereal thought was my Gluten free stuff (but it wasnt) last night & omg, today was a GI disaster!