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chrissyinnj

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Everything posted by chrissyinnj

  1. chrissyinnj
    How did you get a doctor to do a biopsy after a negative blood test?
  2. chrissyinnj
    It may depend on the panel they ordered. I know when I looked out our Lab's test menu, they had several different celiac panels. They also had a gluten sensitivity panel. Some included more tests than others.
  3. chrissyinnj
    How does one that has negative blood work even get a biopsy? Won't most GI doctors refuse based on the blood work?
  4. chrissyinnj
    From what I've managed to read, it seems it depends on the extent of the damage and the person. I've read that in mild damage the villi can repair in as little as three days, but sometimes like with older people it could take a year.
  5. chrissyinnj
    In the interview the Dr. said if you are GS you will feel better quickly, in days or weeks. But if you are celiac it will take weeks, months, or years. Do you find that to be true?
  6. chrissyinnj
    So if one is positive on the blood work, but ends up negative on the biopsy, I should consider them gluten intolerant? To be on the safe side, should I have their siblings tested as well? It is better to assume there is a genetic component until studies prove differently.
  7. chrissyinnj
    I know the difference between celiac and gluten intol. is that- 1- celiac has the villi wearing away- GS does not 2- celiac is autoimmune- GS is not. Where I'm confused is: Is GS genetic like celiac? or not? I am finding conflicting info on the internet, but I am not sure if it is because some websites are interchanging the two terms. Some sites say...
  8. chrissyinnj
    I'm sorry, I thought there would be different people viewing various forums, so I posted the question in two spots.
  9. chrissyinnj
    I tried to post something yesterday, but it didn't seem to go through. Sorry if there ends up being multiple posts. If you went back on gluten after being gluten-free for a period of time (for the sake of blood work or biopsy) did you end up being positive, or were you still negative? Also, how long did you stay off gluten?
  10. chrissyinnj
    Only one person? Does that mean everyone else was still negative, or that you didn't bother with adding the gluten back? Thank you for your reply. I'm surprised that you have no gut symptoms but had villi damage. I was under the impression no gut symptoms means that your leaning toward gluten intolerance. My child has no gut symptoms. So your experience...
  11. chrissyinnj
    Has anyone gone back on gluten after being gluten-free, and actually have the bloodwork or biopsy come back positive? Also, how long did you eat the gluten for? Just wondering if it will actually make a difference on the tests.
  12. chrissyinnj

    ARCHIVED Looking For A Nj Gi Doctor

    chrissyinnj posted a topic in Doctors

    Anyone have a good experience with one?
  13. chrissyinnj
    I don't think it's a coincidence that his scalp cleared up that quickly, after years of trying different shampoos. The dermatologist even gave him a prescription for a 4oz bottle of shampoo that cost $100. Can you imagine? In all, the doctors have prescribed 6 different meds to take. I'm not giving him all that, especially now that it looks like much of it...
  14. chrissyinnj
    Yes, I discovered through reading that it could affect any part of your body. However, I hesitated to take him to a gi doctor without gi symptoms. Currently he struggles with the following: ADD, not being able to concentrate, trouble sleeping, chronic stuffed nose, throat clearing, discharge from eyes. We have tried a variety of shampoos including prescription...
  15. chrissyinnj
    I took my son for gluten sensitivity blood work. His doctor called back on her cell, and it was broken up, but it sounded like she said Everything else looked normal, but his ttg was 55. She wants him to see a gi doctor. I can't get back in touch with her for a week, she is on her way out of town. I have to go pick up the lab results to take with me. ...
  16. chrissyinnj
    Could be tied to a different food. Perhaps you could start a food diary and see if there is a certain type of food you eat before your symptoms appear. or do an elimination diet.
  17. chrissyinnj
    I don't think he has DH. I've seen pictures of that and it's not the same. eatmeat4good- so your saying that being gluten free has caused your son to react more to gluten than he originally did before starting?
  18. chrissyinnj
    I read that as well. I was a study out of Israel where they noticed a link between they non-h pylori stomach ulcers and celiac. They said it normally presented during the second decade of life. They recommended people with these types of ulcers consider being screened for celiac. My son had a perforated stomach ulcer at age 16. non-h pylori, nsaid. ...
  19. chrissyinnj
    I had my son tested (he's a teen) for gluten intolerance not for gi symptoms (gas, diar, etc) but other symptoms (skin issues (dermatitis,eczema,severe acne), ADD, non-hpylori,non-nsaid stomach ulcer, asthma as a child, allergies, chronic congestion, nosebleeds, etc) So the enterolab results were a 9 which is negative, but at the top edge. Their "however...
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