Jump to content

veruca

Advanced Members
 View Profile  See their activity

  • Posts

    15

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by veruca

  1. veruca
    I'm so sorry to hear about your struggle. Constipation and stress are a frustrating combination. I went through some struggles with the constipation diarrhea cycle and I believe laxatives execerbated the situation. I am sure you are eating a clean diet, but perhaps you could focus on keeping it as near to natural as possible and avoid processed foods...
  2. veruca
    Thanks so much for all your responses. Many of my restaurant experiences have been extremely positive. I posted this after visiting a restaurant that charged me $4 extra for gluten-free bread and another $5 just to make my salad gluten free. I had just picked up some things from a gluten free speciality store before dinner and I think it all just added up...
  3. veruca
    I'm so sorry for your difficult experience first off all. Unfortunately, hair can only be used for DNA which is not conclusive. Did they use a butterfly needle? I have bad veins and it helps to insist on a phlebotomist and they try my hands as well. Nurses can get blood from babies so they shoukd be able to help you. Good Luck!
  4. veruca
    try some gopicnic gluten free packs. You can get them at a decent price from amazon. They are non-perishable snack packs at around 400 calories. I always take them with me when I travel. Peanut butter and rice cakes are also great.
  5. veruca
    You are the best roomie ever!! My boyfriend and I keep our apartment gluten free. He does not have celiacs, but he is really supportive. When I met with the dietician after my diagnosis one year ago she encouraged him to keep eating gluten outside of our place. She felt it may be possible to develop a gluten sensitivity. My boyfriend eats pizza once...
  6. veruca

    ARCHIVED Need Celiac Specialist In Nyc

    veruca replied to Ryann44's topic in Doctors

    Neville Bamji at New York Gastroenterology Associates Open Original Shared Link He is my doctor and I have a great experience with him. He is supportive and knowledgeable. I've heard stories about people being diagnosed and left on their own. Dr. Bamji sets you up for success and follows up. He is also easy to get reach by phone and email.
  7. veruca
    My parents and sister were tested and no one has it. I really thought my Mom had it. She has so many health problems that I almost wanted her to have it so she could start to feel better. No dice though. Blood tests were normal and so was her endo. I have a cousin with fibromyalgia who I've urged sooo many times to be tested. Some people are just too overwhelmed...
  8. veruca
    I have an iPhone and I frequently use the following apps 1) is that Gluten Free? and 2) Find me Gluten Free. The first one is a repository of product information. I use it constantly when I'm shopping to ascertain whether or not specific brands are safe. It is really helpful and has the info about specific flavors as well. I use Find me gluten free when...
  9. veruca
    I'm trying to eat out less, but when I do go out to eat I go to places that cater to gluten free people. Many restaurants now are charging extra for gluten free. These charges fall into 3 categories 1) charging for gluten free bread or pasta...some sort of special item 2) the cost of preparing the gluten free food separately and finally 3) the price of a...
  10. veruca
    Thanks so much for the helpful words, suggestions and encouragement. I have a really great GI and when he got the results he called right away. I'm going to meet with him next week, but his advice was sort of the same as above. He felt that my numbers were okay and that we will go over in detail where I may be picking up the low level exposure. When I...
  11. veruca
    I was diagnosed last year with celiac disease. These are my results from one year ago: Test Results: IgG DGP IgG 143.0 EU/ml IgA DGP IgA 65 IgA ELISA TTG IgA >128.0 U/ml EMA IgA positve total IgA 83 mg/dl I just got results from Monday: EMA IgA positive tTG IgA 9 which is a weak positive IgA serum 72 I feel like I've done so much...
  12. veruca

    ARCHIVED Looking For A Nj Gi Doctor

    veruca replied to chrissyinnj's topic in Doctors

    Are you too far to come into NYC?
  13. veruca
    I have been to a few different support group, round table and meetup events. I think it depends on the situation and goal of the program. If it's a gluten-free dinner then the goal is to eat some gluten-free safe food and feel normal. If it's a round table discussion you are looking for professional advice and the support group is there for support (not...
  14. veruca
    You should probably just wait it out for the blood test. There are many symptoms that seem like Celiac, but are not in fact Celiac. Once you have the test results you may discover that you do have elevated antibodies and celiac disease can be confirmed by a biopsy. If you do not have celiac disease, it is possible that you have a gluten allergy or...
  15. veruca
    I am so sorry to hear that you are going through this. I know you probably hear this all the time, but many people on here know what it's like to struggle with illness and questions. I would go to your GI specialist and discuss what possible deficiencies could be the root of your problem. Blood tests could bring you closer to an answer and something...
  16. veruca
    Personally tea helps, but it's best to just take it easy. After being glutened go back to being much more strict with yourself and try to make your own food as much as possible. You can be more sensitive after an episode so give yourself time to fully recover before trusting restaurants too much.
  17. veruca
    IF you are really careful about the rest of your diet and lifestyle I don't think this will affect you, unless you are EXTREMELY sensitive. There are definitely people that react to even a minute amount of gluten, but if you are careful then you shouldn't change your life so much. Of course if your boyfriend still has some bread in his mouth don't kiss...
  18. veruca
    Sin cider is the best thing I've tried so far. Bard's is sort of filling is a gassy...I can't drink more than 1 and a half way.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.