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SabrinaLuvsGluten

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by SabrinaLuvsGluten

  1. SabrinaLuvsGluten
    I think I am a bit confused about something. I have read some posts where some of you have said that you got positive blood test results, but wanted to get an endoscopy for a solid diagnosis. What else would make the celiac panel positive beside gluten intolerance/celiac? Would it be possible to have positive blood work, and not have any issues with gluten...
  2. SabrinaLuvsGluten
    Bless your heart..I said a little prayer for you and your son! I wanted to tell you that if you want to take him off casein and gluten, you could start him on a special formula called Neocate. He can even get it via feeding tube if it came down to that. Both my boys are on it, and I know plenty of people who have children that are even tube fed that are on...
  3. SabrinaLuvsGluten
    Hi, I have been through some similar things...I also had problems that sent me to the neurologist, but it wasnt the same symptoms as you experienced..mine were more severe tingling, like my whole body was vibrating all over, and numbness, things like that...I also had to have emergency gallbladder surgery, and the diarrhea can caused from having the surgery...
  4. SabrinaLuvsGluten
    I think if it were me, I would just do what someone else had said and cut the part with the sticker on it off with a knife and be done with it! Then I would rinse it after that... Sabrina
  5. SabrinaLuvsGluten
    I worry about GM foods too! Are they allowed to GM organic foods? Maybe if they arent allowed too, we should just stick to organic flours...wish I knew more about it, but to answer your question, YES I worry about those types of things sometimes..Im a worry wart though! Sabrina
  6. SabrinaLuvsGluten
    Hey guys..I noticed a thread on here that said something about the St Ives apricot scrub having gluten in it...WELL, I usually use that, but last time I bought exfoliator I saw the Equate (walmart) brand so bought that instead because it was a little cheaper. From what I can tell, the ingredients look safe. I dont have the bottle in front of me right now...
  7. SabrinaLuvsGluten
    How can I get the testing done to determine if I carry the gene for celiac disease? I think Id like to do that if its not TOO expensive. Thanks Sabrina
  8. SabrinaLuvsGluten
    Okay, stupid question #1- When you get tested for celiac via blood testing, will it also show up positive if you just have the gluten intolerance, and it hasnt escalated to celiac? #2- Well, there WAS a question 2, but apparantly I am having a brain fart right now and cant think of what it was. Maybe I will think of it later! Sabrina
  9. SabrinaLuvsGluten
    I am also extremely tired ALL the time. Its really hard because I have two small children to take care of, and they are only 13 months apart! Also, the brain fog thing has been a BIG issue with me over the last few years. I couldnt even remember my youngest son's name the other day when I was showing a friend of mine pictures of my boys! Talk about embarrassing...
  10. SabrinaLuvsGluten
    Yes, not knowing is definetly not fun. I am wondering why your doctor told you to go ahead and go gluten free before the testing. From what I understand, you shouldnt go gluten free until after your testing is finished because it can alter the test results...I would bring this up to him/her. Maybe someone else will chime in on this, but Im pretty sure that...
  11. SabrinaLuvsGluten
    Another thought, dont you have to use milk to make all those things? Could you possibly have a problem with milk? Just throwing that out there... Sabrina
  12. SabrinaLuvsGluten
    Its just so aggravating because I dont know what could be causing it..and even more aggravating that the stupid doctors office didnt bother to call me and tell me about it, so I still may be consuming, or still may be around whatever is causing the allergic response. I had to CALL them and get them to mail me my results because I had not heard anything. UGH...
  13. SabrinaLuvsGluten
    Hi! Just wanted to let you know that I was also having alot of neurological symptoms..I still havent been diagnosed with Celiac, but I have the symptoms, and plan to do more testing. I was seeing a neurologist before I got pregnant with my son, and he also almost diagnosed me with MS. Then, due to alot of different blood tests he ran, he said he wasnt convinced...
  14. SabrinaLuvsGluten
    OK, I see. Well, I guess I better get whatever is causing it under control. I am actually on 2 daily prescription antihistimines, so I dont understand why my IgE is so high...I am also going to be seeing an immunologist next month, so maybe he can help...Only a few days back on gluten and already I am more irritable, and extremely gassy!! Also already getting...
  15. SabrinaLuvsGluten
    Oh by the way...could it be possible that it was the gluten causing the allergic response, but not enough of it in my system to cause a postive celiac blood test?
  16. SabrinaLuvsGluten
    Thanks, Mariann. I am just a nervous wreck about all the new "health problems" I have been having over the last 2 years. I just want to feel healthy again and I dont know what to do. It is so over whelming because I have a 21 month old and a 9 month old to take care of, and its so hard with all the problems Ive been having. It seems like I keep getting all...
  17. SabrinaLuvsGluten
    OK, I got the first test results back...I wasnt eating the recommended amount of gluten before testing because I didnt know anything about it, so I am going to be going for testing again later. However, is THIS set of testing, I was neg for celiac, BUT my Ige was way out of range. The reference was 87.0 and my Ige level was 320.0. What does this mean????...
  18. SabrinaLuvsGluten
    I havent seen the erewhons cream of rice anywhere. Does anyone know if its any less gritty than the rice and shine by arrowhead mills. It tastes good, but I hate that feeling of little pieces of uncooked rice all through it! Sabrina
  19. SabrinaLuvsGluten
    I should clarify that when I added the cream of wheat to the butter and almonds it was not prepared cream of wheat...I just poured in the dry cereal and fried it...also it wasnt the instant kind, just the reg kind..
  20. SabrinaLuvsGluten
    Also, on average, how much gluten containing food do I have to eat a day for my test results to be accurate? Sabrina
  21. SabrinaLuvsGluten
    Hi all! I have decided, after ALOT of thought, that I am going to add gluten back into my diet, even though I have seen quite a bit of improvement over the 2 weeks I have been gluten free. I have decided to TRY and get a definite diagnosis, for the sake of my children. I have read that problems with candida can cause the exact same symptoms of celiac, so...
  22. SabrinaLuvsGluten
    I have been eating the rice and shine by arrowhead mills. Its a bit gritty, but tastes pretty good. I tried cooking the halva using the rice and shine and it didnt turn out very well. I will have to think of a way to make it so that it wont be so gritty! Maybe cook it a little before hand or something..Im not sure but when I figure it out I will let you all...
  23. SabrinaLuvsGluten
    Is there any risk involved with sharing a microwave with family members who arent on a gluten-free diet? Sabrina
  24. SabrinaLuvsGluten
    Hey..I was at a website I go to regularly called cooksthesauras.com and I was looking up info on alternative flours. It states that there is some gluten in buckwheat flour! I thought it was supposed to be totally safe. Does anyone have an opinion about this? Thanks Sabrina
  25. SabrinaLuvsGluten
    No, I never even noticed the cream of rice..Is it by the same company? I will have to look when Im at the store tomorrow. I wonder if its any different than the rice and shine that I already have though...anyone know?
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