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Sam81

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Sam81

  1. Sam81
    Wish I knew. May get one so watch this space...
  2. Sam81
    Are there "types" of gluten? Wheat gluten? barley gluten? Is it possible barley gluten makes me re-act stronger than wheat gluten?
  3. Sam81
    They prescribed Dapsone for the Bechets - apparently it is also treatment for that. I've been on it for 12 years. I'm in the UK and apparently the Dr has to OK my request for my results and as he's being really annoying I doubt I'll get them. I think I've been mis diagnosed... But blood results are negative! Also bread doesn't set me off very much other...
  4. Sam81
    As a further point i wanted to add, in the last 4 days my stomach pain and nausea as reached new heights and the muscles in my back and legs have become sooooo sore they are untouchable. Dr doesn't think it's related - could it be?? I've managed to get a Colonoscopy at then end of August and a referral to a Dermatologist but that I think - is my lot.
  5. Sam81
    It was process of elimination. I had one episode of genital ulcerations. Lot's of mouth ulcers, tired/fatigue, my white blood cell count was low. I did have a rash that kept appearing on my legs but I have always been told it is NOT bechets related (never found what it is). I was put straight on Dapsone, and diagnosed with Bechets and IBS for the abdominal...
  6. Sam81
    I have potentially another 2-3 weeks of waiting for inital bloods to come back regarding celiac. Really tempted to get that celiac bio card test you can buy over the counter, any one recomend it?? I've also become very ill over the last 3 days. My skin is un bearable to touch, my abdomen has swollen and is very painful and I have a severe headache/migraine...
  7. Sam81
    Ok, thank you. Mr Dr is convinced I do not have celiac - despite ticking all boxes bar 1. I'm in the UK and have heard of a test you can by over the counter - "Biocard Celiac Test - Gluten Sensitivity test kit". Has anyone bought and tried this? Does it work and does it hold any weight with Dr's?? It really isn't that I want to have Celiac but it's...
  8. Sam81
    Yes - I'll be asking for an endoscopy when I go in...
  9. Sam81
    Im in the same boat as you sika, in the uk too and my dr said today if the blood tests are negative he'll forget all about it as they're so reliable - 97% apparently! I'm convinced and my family would need proof to support me...
  10. Sam81
    I'm in EXACTLY the same boat - although my bloods haven't come back yet. My Dr thinks it's all in my head... It's comforting to know I'm not alone though...
  11. Sam81
    I was just wondering if any one knows if a colonoscopy can confirm/disprove celiac DH (dermatitis herpetiformis)??
  12. Sam81
    Apparently the celiac test results are not in and take 2-3 weeks. Regular bloods are all normal - no signs of anaemia, inflammation (chrones) etc. Colonoscopy brought forward to end of August. Can a colonoscopy confirm Celiac??
  13. Sam81
    Thanks for this link, I get the feeling this is how it'll be for me as that was similar to how it was for the bechets diagnosis, lots of negative results and in the end almost a process of elimination... It's a long tiring road... If I get no joy I will just have to try different things. Dairy/gluten/fibre see if anything works. Colonoscopy is scheduled...
  14. Sam81
    Thanks, the rash is definitely not bechets, i suppose its possible its the bechets but thats not normally food related - im really struggling with tolerating foods that are either high in fibre or gluten...
  15. Sam81
    Hi there, I am new and have been reading the forums. Here is my story/problem... I was diagnosed at 16 with Bechets - very rare apparently for a white/british girl. I was put on Dapsone 50mg - 100mg daily + steroids if needed. I ave always suffered with what I've been told is IBS and bowel issues generally. Recently things have got worse. I am vegetarian...
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