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jmrogers31

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Everything posted by jmrogers31

  1. jmrogers31

    ARCHIVED Chills

    jmrogers31 posted a topic in Coping with Celiac Disease

    I have kind of a strange question. A couple times that last week or two I have been sitting in my chair and would get a wave of chills or something over and over. It kind of starts in my stomach and goes down my legs and I call it a wave because it's feels like it's almost rhythmic. I just sit there and get a cold chill feeling and it goes down my legs...
  2. jmrogers31
    Thanks for that link! I am going to post the summary below. I obviously would be #3 on the list as confirmed by an allergist. I had noticed before I went gluten free that bread was my main culprit. I could drink a beer or have a rice krispie treat and not notice anything but pizza, pasta, tuna sandwich, etc would be a problem. Obviously going gluten...
  3. jmrogers31
    I had a couple thoughts about an article published in Runner's World. They posted an article titled, "Are you really Gluten sensitive?" Basically the article says that while Celiac Disease exists in 1% of the population most people who say they are gluten sensitive aren't. The study took 37 people who said they were gluten sensitive and gave them a diet...
  4. jmrogers31
    I posted about a week ago that I had an exercise induced anaphalaxis reaction while jogging and had to be rushed to the ER. I had allergy testing done on Monday and while they found I was allergic to a lot of molds, trees, weeds, and grasses which I knew already and knew they gave me asthma and not an anaphalaxis reaction. I also found out I am highly allergic...
  5. jmrogers31
    Good advice everyone, thanks. I will start carrying both with me and I will also make sure they test for fish with my allergy testing. You would think fish and veggies would be okay, but who knows anymore. I am going to have everyone test the practice pen with me to make sure my family is comfortable with it. Thanks again.
  6. jmrogers31
    I now one two epi pens and carry one with me at all times. I am going to see an alergist asap but I believe I have to be off of the steroids and benedryl before I can. I grew up with asthma and allergies to pollen, mold, and rag weed. As an adult, those things seemed to fade in my 20's and then about age 30 I started to feel sick all the time again. Finally...
  7. jmrogers31
    I had a question for the board. Has anyone ever had an anaphyaxis (spelling?) reaction to gluten? I am not sure if gluten triggered it but Sunday night I had dinner (salmon, sweet potato casserole, green beans) and an hour later went for a jog. I was running and my chin and lip started to feel numb and swollen. So I cut my run short and headed home. ...
  8. jmrogers31
    My six year old is going to be tested with a blood sample this week for Celiac. I was wondering what your thoughts were because her symptoms don't seem celiac related but gluten free seemed to help them. She had a rash all over her stomach, legs, bottom, back, and forearms. It isn't the celiac rash and the doctor described it as discoid eczema. She wets...
  9. jmrogers31
    Thanks everyone. nvsmom, it is interesting you said bright kids because she is a very bright kid (I know everyone thinks that about their kid). She actually gets in trouble during reading lessons because she just reads the words when the other kids are supposed to be sounding them out and we were told by her teacher that they don't have anyone to pair her...
  10. jmrogers31
    2 questions for everyone. My 6 year old daughter is on a gluten free trial right now that we started 3 weeks ago. My first question is that she was having behavioral issues in school with talking, not paying attention, very anxious, and arguing. Each day they can have an outstanding day, great day, good day, think about it day, or parent contact. She...
  11. jmrogers31
    Hello Celiac.com community. The last few days I have had pain in my back on the right side right below my rib cage and have been light headed a lot. I know this is where the kidney is located and have been researching some stuff on kidney infections, kidney stones, etc. The thing is, I don't have any of the typical symptoms of blood in urine, pain urinating...
  12. jmrogers31

    ARCHIVED 1 Year

    jmrogers31 posted a topic in Coping with Celiac Disease

    July 8th was my 1 year anniversary of going gluten free. I remember the day because it was one of the worst days of my life. I was diagnosed on July 7th, so I went out to eat thinking I would start tomorrow so let's go out with a bang. I had a malt with a big cheeseburger and onion rings knowing I would never have them again. So, Friday rolls around and...
  13. jmrogers31
    With me I believe I always had slight auto-immune issues because I had asthma and used to have to get shots every week because I was allergic to trees, ragweed, mold, and pollen. I was also so skinny that I used to drink those 2,000 calorie weight gain shakes in high school and was 5'10 and 130 pounds despite lifting weights and eating everything in sight...
  14. jmrogers31
    Interesting to see everything from Native American to Northern Africa to Ukraine. I guess by this time most of us have had a variety of different nationalities mixed into our genes.
  15. jmrogers31
    Thanks Karen. I have been on this site for a year but missed this one. I thought it wasn an interesting thought, but I guess with all the forums and all the people on this site it doesn't surprise me this has been covered already. It's like an episode of South Park where every idea that they came up with has already been done on the Simpsons because after...
  16. jmrogers31
    In the research I have done about Celiac Disease it seems that it affects people of Northern European decent more frequently than others but not exclusively. My Dad's side of the family is Swedish and my Mom's side is Irish and they are both northern European countries. I have had genetic testing and it came back with HLA-DQ 2,3 (Subtype 2,8) which seems...
  17. jmrogers31
    My worst symptom is anxiety. It built up and built up until I had what I assume is a nervous breakdown even though I don't know for sure. I had this sense of doom that I was going to die. I focused on it day and night and was scared to fall asleep because I thought I wouldn't wake up. Every time I looked at my young kids I would tear up thinking they...
  18. jmrogers31
    It's summer time and that means it's time for BBQ's and Beer! Does anyone have a suggestion for a good gluten free beer? I have had Red Bridge and it's okay, but would like to try some others out as well.
  19. jmrogers31
    Yeah, I tend to agree but unfortunetely already purchased 3 weeks worth before I researched the ingredients. I called him the next day and he said it is a concentrated amount and very small. He said he has had other Celiac and gluten intolerent patients use them with no issues. I think I may pass though. Peeptoad, what other ingredients give you pause...
  20. jmrogers31
    I have a question here. I have been seeing a great doctor who not only buys into Celiac, he actively promotes limiting grains and sugars to everyone he sees. I have been having really strong heartbeats or PVCs as there called and he gave me a supplement to help with these and says they have helped him with the same issue and cleared it up for him. Here...
  21. jmrogers31
    I don't consider myself a Celiac but gluten intolerant for this reason. I was having so many issues with headaches, anemia, stomach aches, gas, bloating, constipation, asthma, environmental allergies, sinus issues including surgeries for pollups, and anxiety. My doctor tried antibiotics, iron supplements, multivitamins, decongestants, etc with no improvements...
  22. jmrogers31
    This did not happen before going gluten free and have not had a physical in a while. I am taking a fish oil supplement with vitamin D. I also just stopped taking an Okra Pepsin supplement about a week ago that was supposed to clean out my intestine. They should be all natural supplements. I know I should keep a food journal, maybe I will finally start...
  23. jmrogers31
    Before I went gluten free anxiety was my worst symptom. I had this sense of doom and was just sure something horrible was about to happen to me. I felt like I was dying even though I was a 30 year old male at a healthy weight who ran half marathons. My anxiety got really bad until I finally discovered gluten caused a lot of my issues with asthma, anxiety...
  24. jmrogers31
    An update. It seems like corn, caffeine, and sugar trigger them for me. I have been avoilding all three for awhile and had no issues. Then, we had a babysitter on Saturday so my wife and I went out for dinner. After dinner we stopped for dessert and I had a vanilla shake which I made sure was gluten free. About 2 hours later I had several big booms in...
  25. jmrogers31
    I agree with bart about making people uncomfortable. We all have wanted to roll our eyes at the person with 5% body fat saying that they better not have dessert because they don't want to run an extra mile that day. You know deep down you shouldn't be eating it either but you feel better when everyone else joins you. It also doesn't help that people seem...
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