tcmom

It sounds to me like you need your vitamin levels checked. Ask your regular doctor to check your Vitamin D and B-12 levels ASAP.

I feel like all the general doctors I have gone to pretty much know little to nothing about this disease. I had to self diagnose and demand a blood test. When it came back positive the general doctor just said to start a gluten-free diet. My blood test was extremely high and I have inflammatory arthritis so I didn't want to mess around. I called the Mayo...

@luvstoeat - I like the poison quote, I will use that one! My immediate family has been pretty supportive but I haven't had much contact with others since my recent diagnosis. I have been trying to think of things to say like "Celiac Disease is an auto immune disorder that is triggered with the smallest amount of gluten to attack my body." It also...

I am sorry you are feeling down in the dumps. I am recently diagnosed so we are on opposites ends but I am looking forward to the gluten free diet. Maybe you could start learning to cook some awesome food for your friends. What can be less boring then grilled steaks with some spices and a side of baked potatoes? I made baby back ribs last night with Ken...

I totally understand your emotions. I just got my biopsy results back yesterday with flat villi. Although I probably have had this for 20 years, I asked my doctor about it in 2008. She practically laughed at me and said I did know what I was talking about and to quit reading the internet. Now, at 43 I have had severe permanent damage due to arthritis and...

I was diagnosed a little over a week ago and this weekend was the first time I've traveled and went out to eat being gluten-free. Since we drove I was able to bring a cooler full of gluten-free food but when we got there my SIL was bent on going out to eat! DH is so good, he tried to explain about Celiac and being gluten-free but that didn't go over very...

I might not get this exactly right because I didn't fully understand the research projects but here's what I gathered: The first one was to use a test strip, almost like a pregnancy test, to see if it could be used in doctors offices for instant celiac testing results. She took a pin prick of blood and put it onto the test strip. I came up as negative...

Hello, I thought I would share my recent experiences in case it could help anyone with access to the Mayo Clinic in MN. I am a 42 femaile and recently had a blood test the came back with "very likely celiac." I have had symptoms for years and even asked my Dr. in 2008 about it, she basically shunned me and told me I didn't know what I was talking about...