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JoshB

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Everything posted by JoshB

  1. JoshB
    If that info is up to date, then the testing companies providing those incomplete results are just plain evil. Like, should be restricted from offering that test and ought to be the target of a class-action evil.
  2. JoshB
    So, there's a lively discussion going on another topic, and one of the questions there revolves around what "DQ" testing provides. My previous assumption was that DQ testing worked pretty well, and that it gave you a specific fix on your DQ type. We have another assertion, though, that DQ tests sometimes only tell you whether DQ2.5 or DQ8 was found. If true...
  3. JoshB
    Maybe I'm confused on something here. My doc didn't test my HLA-DQ type; I already knew it by other means, so I don't have a lot of personal experience. Everyone I've seen post on these forums, however, has posted tests that did resolve DQ types other than 2.5 and 8. Is there some lab commonly in use which doesn't look further? That seems almost criminally...
  4. JoshB
    Nora, you may be right that they would pick up 7.5 as 2.5; I don't know enough to say for sure, but they specifically indicate that they were not testing for 2.2, and that all the "left-overs" were found to be 2.2. So again, this is exactly the result that previous studies would have us expect. This result should not be surprising or inflammatory, but it...
  5. JoshB
    I don't dispute that a test for DQ2.5 and DQ8 is ineffective. But the suggestion I'm getting from this discussion is that genetic testing itself is ineffective as a screening tool. That, I would say, is not supported by the linked paper. The paper proposes a straw-man so that it can have surprising and "controversial" results. The problem with this is...
  6. JoshB
    I think I should point out for anyone stumbling onto this from Google, that this paper doesn't seem to support the conclusions being drawn here. They tested only for DQ2.5 and DQ8. For some reason they did not test for 7.5 or 2.2. The numbers found actually seem to be about what you'd expect, and frankly even if they weren't this is a very poor study and...
  7. JoshB
    Medical starch is supposed to be corn unless marked otherwise now, and even wheat starch should be gluten free when processed to medical standards. Upset stomach and diarrhea are pretty much the #1 side effects of any anti-biotic.
  8. JoshB
    Used to take me about a day. Now it seems to be ~3 hours.
  9. JoshB
    Yeah, I've done it. It's really interesting. What you get from 23andme is a table of hundreds of thousands of raw SNP values, sometimes an SNP will help you figure how what version of a gene you have. An SNP(single nucleotide polymorphism) is a single "letter" change in a dna strand. Basically they take 10,000 people, fully sequence them and look for places...
  10. JoshB
    That's really interesting, Irish. I'd never heard of the pinky thing before. I wonder how good a predictor that is? And yeah, I'm keeping the pictures, Jestgar. I don't think they have always looked like that, but it's so hard to say. Apparently if I say "I know it like the back of my hand" then that actually doesn't mean very much. I'm a little concerned...
  11. JoshB
    That is what 23andme will give you from their interface. The interesting thing, though, is that you can get your raw SNP values and with some work of your own, figure out a lot more. There's a tool called "Promethease" which takes your raw SNP dump and matches it against a database of known risk factors.
  12. JoshB
    I would suggest checking out 23andme to do a full SNP map. You'll have to pay $99 up front and then sign up for their stupid "update service" at $5/month for a year.
  13. JoshB
    OK. I have joint issues, which may or may not be fully celiac related. If it all is from celiac, then is seems like there's not much to be done except continue eating gluten free. Possibly take more supplements and/or go militant-crazy on gluten-strictness. Option B is that there's something else wrong, and if I don't pursue it, then I'm just waiting...
  14. JoshB
    You can order the "home" test from Canada. But there is usually a local place that will test without a doctor's order. I would suggest that the home test would be nice if it was positive, but since it only performs one of the tests they will run in a celiac panel (IgA-TtG I think?) it might be more effective to get the full panel.
  15. JoshB
    [Edit] This post is getting off topic; breaking this off into another thread.
  16. JoshB
    I don't think I'm fully healed yet, but reactions do seem to be getting worse the longer I've been gluten free. Very annoying. I wish they got better as you were more repaired and able to take the damage.
  17. JoshB
    You had a positive DGP, right? So you had a positive test which has a 95% specificity rating (and probably only that low because they haven't done 12/24 month followup studies yet). You're comparing that to a test(biopsy) with a 15% false negative rate. I would think that this is pretty suggestive of celiac disease in the very early stages. TTG seems...
  18. JoshB
    Who did your tests? Those results are the nicest/clearest formatting I've ever seen. And yeah, not a celiac panel.
  19. JoshB
    My knuckles are red sometimes but not always, and it doesn't seem to correlate with pain. They are enlarged, but it's hard to tell if maybe they just look big because I'm so skinny. Some of the joints don't straighten all the way, and some twist to the side a bit, so I'm relatively sure there is something going on beyond nerves. The doc took x-rays though...
  20. JoshB
    Yes, and the damage can look similar with an endoscopy. Been backpacking?
  21. JoshB
    It can take time. If after several months you don't think you're making progress, then make an appointment with a gastroenterologist. It's possible that you may need steroids to start healing.
  22. JoshB
    I go there all the time. Never had a problem that I've noticed.
  23. JoshB
    The worst thing is making a small spelling mistake and believing auto-correct when it suggests an entirely different word.
  24. JoshB
    Anti-gliadin is closer to being an "Am I eating gluten?" test than a celiac disease test. I would have expected to see IGA and/or IGG -ttg tests. And you might see something called EMA. There should also be a "Total IGA" serum or something like that. The test you got is pretty unusual and not really very good so far as I can see. Although the ttg-igg that...
  25. JoshB
    Well, we don't know what sort of "Igg" and "Iga" values those were up top. Given your docs response, they were probably anti-gliadin, which is not specific and usually not run these days. Maybe start an elimination diet? Find one simple meal that you do well on, eat for a couple weeks until you're feeling pretty good, then slowly add things back in until...
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