UKGail

Hi everyone. I've only just picked up on this thread as I haven't been active for a while. I'll be shortly heading to the store to pick up some nettle tea to test out... Inflammation is definitely a problem for me. Before I went gluten free I had no celiac antibodies, but did have a very high ESR (100), and a few other blood abnormalities including a...

I found the worst of the forgetfulness and inability to focus improved within a couple of months. I can now shower in the morning without having to really think hard about whether I have just rinsed shampoo or conditioner out of my hair. However, after nearly a year, I am still forgetful about shopping lists etc, and it is still a struggle to focus properly...

It might just take more time than you think. When I saw a rheumatologist I think he was minded to diagnose fibromyalgia, as I leapt in the air when he tested the fibro sensitive points, all of them. I think he saw that I was underwhelmed by this idea. Ditto IBS with a gastroenterologist. Apparently I don't have celiac....They were both right that I dislike...

Love2travel - I admire your attitude so much. It takes great strength of mind to push severe pain to one side and get on with living life to the full. I am really sorry to hear that you still haven't experienced any improvement in your pain. For me, gluten seemed to cause systemic inflammation which then squeezed any weak or damaged areas of my body (I...

Penny - I lived with chronic fatigue and low grade pain, mainly in my back, for 25 years, following the sudden onset of what I now know to be celiac-like symptoms when I was a student. The doctor called it post viral fatigue, but with hindsight I doubt it was that. Over the years the pain worsened and I gradually developed chronic headache/migraines, severe...

I usually haven't eaten anything for 24 to 48 hours after a glutening, and have gastric pain and irritability as well as lower abdominal pain and soreness. I've learned the hard way to reintroduce food very carefully for a few days. I can't do any sort of regular food, or it just goes straight through. I stick initially to homemade vegetable soup using...

Bartfull - I don't have problems with corn that I am aware of, other than sweetcorn kernels being the last thing still to go right through me. I've been thinking about the preservatives that Mamaw mentioned and have been looking into sulphites. This seems to tally quite well with my symptoms which I get on eating a wide range of mainly processed foods,...

Thanks for the thoughts. I am not sure it was a bacterial problem as a glutening for me involves a migraine, and the symptoms are quite distinctive. This time was no different. A preservative being a contributory factor is something to consider. I am pretty sure that soy is a minor trigger for me, so it is not a stretch to think that chemical preservatives...

I cooked supper for a friend and myself the other day. The following day I had all the usual symptoms of a glutening. The only thing I did different was serving a ready-prepared bag of green salad with supper, and ready-chopped fruit salad for dessert. This is the first time I had eaten ready-prepared fresh food since going gluten free. Having recovered...

I can't imagine how crappy that this for you. I get sore sinuses, drippy nose, stomach ache and loose stools for a day or so just from sitting at a table with bread close by for the wheat eaters, or if I spend more than a few short moments petting my wheat pellet eating chinchilla followed by thorough hand washing. To be surrounded by wheat fields, especially...

A couple of weeks ago I had a session with a dietitian who works closely with my gastroenterologist, who is a celiac specialist. She said something which I have not read anywhere else, and I read as much as I can get my hands on. Basically she said that fibre from fruit and vegetables is all very well, but that the digestive tract specifically needs cereal...

Hi Mommida, Ravenwoodglass and Cara. Thank you for your supportive replies. Unfortunately because I live in the UK none of the others in my family have been gene tested (I am lucky enough to have access to private medicine, which is the only reason I was able to get it done). I think that in theory GPs can order the gene test, but in practice they...

Hi there. I went gluten fee back in September at the suggestion of a rheumatologist who was inclined to think I didn't have a connective tissue disease as thought by my GP(suggested polymyalgia rheumatica), and who I convinced that if it wasn't that, then it was a gluten issue, despite negative antibody tests. Well, the gluten free diet fixed the symptoms...

I finished a 2 week gluten challenge just over a week ago. After suffering from a worsening of headaches, body aches, stomach aches and severe fatigue just from exposure to gluten being cooked or toasted around me, while I was gluten free and recovering, I was really nervous about about doing a challenge. The first week was ok, with just abdominal pain...

Having had a negative celiac blood test and endoscopy a couple of years ago, my GP sent me to a rheumatologist specialising in lupus thinking that I had another autoimmune disease. After lots more blood tests,including repeat celiac panel, it came back to looking at a gluten sensitivity again for lack of other plausible alternatives. Trialling a gluten...