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UKGail

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Everything posted by UKGail

  1. UKGail
    Gemini - that's really helpful. It makes a lot of sense, as I have been trying really hard to avoid gluten. I am sorry to hear that the damage to the pancreas can become permanent. Thank you for sharing.
  2. UKGail
    Rhoda - sorry to see you have been struggling with cc or fat issues. You were kind enough to encourage me when I was miserable about fat digestion issues last week. As you suggested, digestive enzymes seem to work a treat with gas reducing by maybe 80 or 90% and I've been able to eat some salmon and a little non-dairy chocolate without suffering any further...
  3. UKGail
    He is Dr Edwards at the London Lupus Centre in the UK. I did have to find a medical paper written by a celiac specialist (Dr Peter Green from the Columbia Celiac Centre) who quoted my exact presentation as a rare atypical presentation of Celiac (apparent polymyalgia rheumatica plus ESR (SED rate) of 100)as evidence though. He was kind and not affronted by...
  4. UKGail
    You still could be having problems with digestion. I get fat malabsorption anytime I am glutened. It also could be your body is still sensitive and needing to heal. Celiac can mess with your digestive enzymes produced by the pancreas. I took creon(a RX pancreatic enzyme) for awhile and ate a very simple diet. After about three months I didn't need it anymore...
  5. UKGail
    Hi I am quite new to the forum and have been very appreciative of all the supportive information given by current and past posters to us newbies, so thank you all. I have been gluten free for just over a month after persuading a rheumatologist that my "polymyalgia rheumatica" plus an ESR (SED rate) of 100 was due to familial celiac disease, and that I...
  6. UKGail
    I tested recently negative to the celiac panel blood tests and a couple of years ago to biopsy. However my family history (half of my Mother's family are celiacs) and symptoms, which are responding to the gluten free diet was enough to convince my rheumatologist of the diagnosis. He is a lupus specialist who is used to diagnosing lupus and similar autoimmune...
  7. UKGail
    i dont know what to eat anymore i keep cutting out things i dont eat breakfast cause i cannot eat fruit eggs wheat obv dairy any form of sugar no nuts nothing oily nothing fatty! I do not sleep at all i am depressed like crazy i cry all the time. When i start feeling better i try differnt things like certain vegetables and i get gassy. I do not like to go...
  8. UKGail
    Love2travel - I am sorry you are suffering such pain. It really makes things hard. I see from your signature that you developed conditions which are not as fixable as mine. Most of my spinal pain after the accident was alleviated by physical therapy, but I didn't really get a grip on it until I found a PT who adapted pilates exercises, and this has been...
  9. UKGail
    Just to confuse everyone, I had just posted a comment similar to this in another thread. My reaction is perhaps the opposite. I had a longstanding chronic headache around the base of my skull prior to going gluten free which vanished within 24 hours of the new diet, and has not returned. Still getting some sinus area pain and very mild tension type headaches...
  10. UKGail
    I had suffered from chronic pain in my neck and around the base of my skull since a car accident some 9 years ago. This pain vanished 24 hours after going gluten free and has not returned. A recent blood test had also shown post-menopausal levels of estrogen (the level was extremely low). My cycle restarted shortly after going gluten free. I also haven...
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