Jump to content

UKGail

Advanced Members
 View Profile  See their activity

  • Posts

    180

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by UKGail

  1. UKGail
    This is really good advice from Sylark, all of it. You need to find a way to protect your health, otherwise you may simply not be well enough to get through such a rigorous college course, or you may find yourself limping through it with lower grades than you need. If the only way is a modest student loan to be able to buy safe food, then that is what...
  2. UKGail
    Hi- I'm so sorry you are having a hard time with your famiy. It is tough enough to go through this change to gluten free eating anyway, without throwing in lack of support from your family, particularly if you have to share a kitchen with hardened gluten eaters. I'm not sure I can give you any particular advice about handling your Mum, other than to...
  3. UKGail
    Thanks for the info Bubba's Mom - no wonder I am confused, when even the doctors don't understand it!
  4. UKGail
    Please forgive my ignorance, but why isn't DQ2.2 the same as DQ2? Isn't DQ2.2 just a subset of DQ2? Sorry if this is a dumb question, but I understand very little about the HLA typing, other than the fact that there are 2 key groups researchers say are POTENTIAL celiacs, with celiac being uncommon (but they don't know uncommon) outside of these groups...
  5. UKGail
    IrishHeart - Wow, its one hell of a story. I don't know whether to envy you for eventually finding a diagnostic prince, or to commiserate the fact that you suffered for so long. I'm pretty sure I've had it since my teens or early twenties, but maybe on a "sub-clinical" level until 2-3 years ago. My health was just starting to cascade downwards in a fast...
  6. UKGail
    IrishHeart, like you I am seronegative. I was put on a gluten free diet by a rheumatologist without prior referral to a Gastro, and it is now probably too late for a successful biopsy without a lengthy gluten challenge. Would you mind if I was nosey and asked if you managed to get a positive biopsy for your diagnosis, or did your Gastro diagnose you based...
  7. UKGail
  8. UKGail
    Hi Dani thanks for pointing this out. These pellets look great for all small animals. It seems that importing this into Europe is a bit of a pain though. The UK importer quoted me a lead time of 3-6 months to delivery because it is manufactured to order and they need to gather sufficient customer orders before they can approach the manufacturer. Given this...
  9. UKGail
    Hi Dani, I wouldn't worry too much about the amenorrhea coming back while you are on the gluten-free diet. I'm a fair bit older than you, I think, (47) and early menopause is more where I am heading if I am not careful, but I've had my period every month for 6 months, bang on time, since going gluten free, even though I've had ups and downs along the way...
  10. UKGail
    HGMama - sorry you are having such a bad time of it. You can have a positive biopsy with negative antibodies, it is just not the norm. I hope it is positive for you, to give you a firm diagnosis of the reason for your symptoms. If however it is negative, and if your doctors do not find any alternative explanation for your symptoms (other than "IBS"), then...
  11. UKGail
    I've cleaned my kitchen as best I can but there are still gluten crumbs stuck between the range and worktop, and I can never trust the handles or towels as I have gluten eaters in the house (albeit they are restricted to a modest amount of cold, packaged gluten products). I give the worktop a quick freshener before I use it, and then don't place things directly...
  12. UKGail
    Jestgar and Curlyfries - thank you very much for your suggestions. The cooler looks like a good idea, and not something I've seen in the UK. I'll give the indy support group a try too, thank you. I am still having to think about whether I can go or not (or at least travelling any further than NY) as I am still struggling to eat anything out of a packet...
  13. UKGail
    Thanks so much for responding ndw. Cooper's Hawk looks great, with yummy food. I seem to be ok if I am in a room that is large and well ventilated, so this might be ok, if you trust them. The deli looks more problematical as its menu is bread-based. We have a small cafe in our neighbourhood which does lovely fresh home-made food, and its extensive selection...
  14. UKGail
    Hi everyone. I've been basically shutting between home and work for the 6 months since going gluten free, and have only eaten a couple of times at trusted friends places. I have fairly strong reactions to airborne gluten and gluteny smells (mainly neurological), so am not keen on eating out unless it is in a gluten free place. At this point in time I also...
  15. UKGail
    I was precribed amiltryptaline by a pain specialist some years ago to help with chronic spinal pain after a car accident. I found it didn't help at all, in fact it just made me depressed! I gave it a couple of months, and then stopped it cold-turkey, which apparently you are not supposed to do. The doc wanted me to wean off it gradually with tapered doses...
  16. UKGail
    So sorry you are feeling rough, and not getting the support you need from your Mum. I am in the opposite boat in that I am the Mum and my kids are a bit fed up with me refusing to have any hot gluteny food being cooked in the kitchen. My husband/their dad, is supportive, but the loss of gluteny food doesn't bother him in the same way. Whilst you need...
  17. UKGail
    If you are celiac, then I don't think taking probiotics or digestive enzymes should mask the issue. My experience of the British medical system, is that they don't bother to test for vitamin levels, so I wouldn't neccessarily expect any help in that area. However it wouldn't hurt to stop your vitamins until after all your testing has been complete in case...
  18. UKGail
    I used to get quite a few colds each year, caught from my children who bring them home from school (where I also work) or from my husband who picks them up from crowded commuter trains. It seems a bit like tempting fate to write this....but I haven't had a single cold since going gluten free 6 months ago, even though my children have been frequently sick...
  19. UKGail
    I remember belatedly reading your last posts about this topic, and not liking it then. To see you coming back a year later with the problems getting worse rather than better is even more concerning. Other posters have given you some really good advice about ways to protect your food, and techniques to deflect the uwanted attention, and I have nothing...
  20. UKGail
    Pondy You should definitely go back to your primary doctor about this. There is an autoimmune condition called temporal arteritis which is basically inflammation in the blood vessels supplying the head. It can give you headaches, blur your vision and can affect your hearing, plus other symptoms. It is treated with steroids. Whilst your symptoms are...
  21. UKGail
    "As for diet, I find I feel best when I get enough protein and I'm also taking 500mg magnesium (helped with headaches and muscle aches), 2000 mg D3 (helped with fatigue) and 100mg B12 (helped aches)." Completely agree with this. I've had to completely rebalance my diet towards protein, particularly oily fish, and go grain-lite. I supplement with B vits...
  22. UKGail
    Hi Strawberry I've been puzzling myself about exactly the sort of problems you describe in your post. I have been gluten and dairy free for 6 months. no cheating, mainly whole foods, just a few packaged gluten free products, grain-lite, no eating out. I am suspicious of soya, thinking it may add to my headaches and joint/muscle aches, but can't be sure...
  23. UKGail
    Sounds like your doc doesn't really think your issues are related to gluten. However, although both you and your doc need to be alive to possible alternative explanations, everything you mention above is very similar to my experience of gluten intolerance. Not many docs are familiar with the extra-intestinal symptoms of gluten intolerance, and they rely...
  24. UKGail
    "When my symptoms of chronic fatigue showed up about 15 years ago I had enlarged lymph nodes in my neck, they even took a very painful biopsy which was negative. THey were enlarged and tender for years then slowly diminished. After I quit gluten and casein 2 months ago they hurt again for a couple of weeks as my body worked to clear the toxins from my...
  25. UKGail

    ARCHIVED Hot Flushes?

    UKGail replied to rgarton's topic in Super Sensitive People

    Yes I get this when glutened. Gluten was pushing me into a premature menopause, now reversed. I had really bad hot flushes, and felt pretty hot all the time until I went gluten free. The flushes went away really quickly, along with my periods restarting. Now I am back to my normal "cold" self. If I get mildly glutened I feel my body's internal thermostat...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.