UKGail
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Latest Celiac Disease News & Research:
Everything posted by UKGail
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ARCHIVED Stuck. Again.
UKGail replied to Gfresh404's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I really don't think I'd be able to follow something like, as of late I have been mixing in more fruit and veggies and less grains and it actually doesn't seem to be helping that much. I also have poor digestion of fats and I believe almond flour is a staple in the SCD -
Hi Tom Yes, I always read labels, mostly reading them and putting them back on the shelves because I don't dare buy the products, as I find eating one item is ok, but eating half a dozen is not, and if I have a packet of a "gluten-free" treat in the house and find the first one ok, I find the rest hard to resist! Most of our supermarket foods in the...
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ARCHIVED Stuck. Again.
UKGail replied to Gfresh404's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
When I was being tested my CRP was normal, but my ESR was very high. I felt really ill. After I went gluten free it started coming down. It took 2-3 months to go back to a range which, while not "normal" was normal enough for the Doc to stop worrying. Gfresh404 - have you considered trying the SCD or GAPS diet? I wonder if either of these approaches... -
Yes, given your sister is gluten intolerant, I think there is a good possibility that your pain is exacerbated by gluten-induced inflammation. It was 2 consecutive frozen shoulders that finally led to my gluten intolerance diagnosis (I wasn't responding to physiotherapy, and was, in fact, getting worse every week, and the physio said that something else had...
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I'm watching the carbs, but need some or I keep losing weight. Sweet potatoes are my main carb, and I have zero reactions to them. I might have rice once or twice a week, and that seems to be ok too. I have been trying potato, but am not sure about them just yet. I keep making the mistake of expanding my diet too quickly because my appetite comes roaring...
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Small patches of ezcema from time to time (usually when stressed). Nothing since gluten free. Dry and itchy skin my whole life, with itchy bumpy bits. Still a problem. Frequent painful skin splits in the corner of my mouth, on my hands and feet. Seems better than it used to be. I use lots of heavy duty moisturisers. Itchy spots all over my scalp...
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I've never seen any products with codex wheat, and wouldn't touch it if I did find any. I don't think UK celiacs are "stuffing themselves" with this rubbish. I can't speak for the rest of Europe though.
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Weluvgators is quite right. I overlooked this aspect of your posts. I haven't had allergy testing done yet, but am finding that zyrtec (in liquid form, which is lactose free) is very helpful in reducing the severity of symptoms, whether it is just addressing the minor daily aches and pains and sinus issues, or the extreme nausea and vomiting of a glutening...
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Sorry, there are no quick fixes. When I first started out, I quickly found that plain, homemade soups (with meat broth or stock and veggies) were the most soothing thing to eat. For a while I couldn't handle anything fatty, and just stuck to soups, slow cooked plain casseroles, and grilled meat and boiled veggies. Go very easy on gluten free baked goods...
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Sorry to hear that Dani. Maybe those wheaty pellets really gave you major dose? I've read a few more posts recently where people say it takes a few months for their periods to come back properly. Maybe you just need a bit more time. I hope you feel better soon.
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ARCHIVED Celiac Or Overly Concerned Mommy?
UKGail replied to bluestar-127's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It does sound like gluten intolerance. If you already have it in the family then your level of suspicion should be much higher. At least 50% of my Mother's family are gluten intolerant, which led me to eventually try the gluten free diet, even though I am negative to the celiac antibodies. Good luck with your doctor, and with your gluten free trial, when... -
ARCHIVED Celiac Or Overly Concerned Mommy?
UKGail replied to bluestar-127's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My cousin was an abnormally quiet and inactive baby. She was found at the time to have a severe lactose intolerance. In her late thirties, the docs finally decided she was celiac. Her Mother had been diagnosed as celiac some 10 years earlier, after suffering undiagnosed for many years. Your son does look not unlike my eldest daughter did around that... -
ARCHIVED They Keep Taking Parts Out!
UKGail replied to Harlygirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Please also be aware that sometimes the blood tests for celiac antibodies are negative, but your symptoms could still be caused by gluten intolerance. With your symptoms, and with a genetic predisposition, and as they seem to have ruled out lots of other possible causes of your problems, you could insist on an endoscopy even if your blood test for antibodies... -
ARCHIVED Pernicious Anemia Caused By Gluten/celiac ?
UKGail replied to Sanjoseguy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Sanjoseguy - my great grandmother had pernicious anemia. She passed over 40 years ago, before there was much awareness of celiac disease. Of her 4 daughters, 1 seems healthy as far as we know. One was very thin and had stomach issues her hole life. One was very thin and had many health issues including infertility. The other (my grandmother) was overweight... -
Ah! I could have written your post. I too woke up this morning feeling sore and achy and with a muggy head, having also slept through my alarm, which is not normal. My suspicion is with minor gluten contamination of some parma ham I had for lunch yesterday. As soon I ate it (with some safe gluten-free bread and safe gluten-free margarine) my head started...
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Bartfull - just wanting to send my best wishes, and hope that you can get through this soon. I'm thrilled that your friends are helping you with the doctor's fees.
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In our extended family we had what we thought was a predisposition to lactose intolerance and various other allergies. We also have thyroid problems in the family too. It took 20-30 years for all those lactose-intolerant people to be diagnosed as celiac (all of them without exception!). Please encourage your daughters to be tested too. If your diagnosis...
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Dani - how long have you been gluten free? I've been gluten free for 6 months now, and for the first couple of months I reacted very obviously (hives and itching) to foods which I am now able to eat ok. If you are still new to the diet, some of your symptoms may just be part of your recovery, which makes it difficult to decide if you have a real problem...
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Um - I thought my whole life that I had a delicate stomach that caught every GI virus that floated by, and that in my later years this was exacerbated by migraines. Turns out it was the gluten. In the 6 months I have been gluten free (not as long as you, and I am still recovering and still learning...), I have had 2 such episodes. Both times were due to...
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I have a small one. My acid reflux issues are linked solely to to gluten ingestion. I don't have any other upper abdominal pain, but I do have trouble swallowing, which hasn't improved with the gluten free diet.
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I stopped them immediately and suffered the symptoms for about a fortnight before it started to really improve. If it recurs due to a glutening, it is not as bad as it was before, and I take Zantac for a couple of days rather than omeprazole as I find this works better for me. I don't think omeprazole is great for celiacs as (please someone correct...
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Glad to hear you dumped the amitriptyline along with the dodgy Gastro. I wouldn't worry too much just yet about testing for Sjogrens. Your body is going to go through many changes as you recover from the damage caused by gluten. They dry mouth may be one of them. Or you may be unlucky and be stuck with it. Some people do have Sjogrens and celiac too...
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Yup, been there, done that, and got the T-shirt. Trust your reactions to changes in your diet. BTW - are you still taking amiltriptyline? That stuff is horrible, and doctors hand it out like candy. It made me worse rather than better. I wouldn't touch it again with a bargepole.
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Hi Dani sorry I didn't see this for a few days. I have been battling a busy period with minor cc symptoms, so haven't been looking at posts much. Thank you very much for the info. This food looks quite promising, perhaps not as good as the Zupreen, but much better than what we have at the moment. I will go to our pet food store with both suggestions...
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GFeeMO - I don't remember the ingredients list of the Science Diet cat food, but our cat who used to get bloody stools did not do well on it. His reactions were not as bad as when we tried regular cat food, but didn't do as well as he does on the fully grain free foods either. If I remember rightly (and it was a while ago), the reaction to the Science...
