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TTNOGluten

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Everything posted by TTNOGluten

  1. TTNOGluten
    I worded that previous post wrong, I meant to say it feels like someone putting their fist through my upper belly into my midback, not my butt, it extends right along the rib cage on the right. I have had a look at my back as the source which was unremarkable with exception of slight thoracic deg. disc at age 42. They even tried to do some steroid back...
  2. TTNOGluten
    I really do not eat any spicy or acidic foods, I have had PH probe testing acid and they say everything is fine, this doesnt really burn , it is like someone is putting their fist in my but and I have extreme mid back pain into my right flank, gallbladder is out, last EGD 6 months ago they say is OK, pain is incredible, constant, relentless pressure twisting...
  3. TTNOGluten
    I have not posted anything in quite awhile, I guess I just need to vent again. I am have been looking for that miracle of health for 1 1/2 years and according to Gi doc, he really doesnt know why I feel no better. I have been strictly gluten free for this time frame, and according to my last few sets of labs my TTG Iga has been back to normal and my biopsies...
  4. TTNOGluten
    I have not been taking either. Guess I have been reluctant to add another variable to the mix, maybe it is something I should consider, honestly most days I feel so ill I have a hard time even thinking. I guess I am frustrated with why this has been such a long process, especially if my celiac disease according to the GI doc has healed.
  5. TTNOGluten
    I have not posted for some time out of frustration with my ongoing issues. I have been gluten free now for over a year with virtually no improvement in any of my symptoms with the exception of bloating and belching. My pain from day one has been through into my mid back and around into my rib cage, even in the past year prompting my gallbladder removal...
  6. TTNOGluten
    Sometimes when I read these responses I get a little choked up as corny as it sounds. I cant believe the outporing of help and suggestions that come from many of you who have walked a similar path. It is a lonely place to live many days, sometimes I think I am being punished somehow for my youthful stupidity. thankfully I am blessed with a wife that is...
  7. TTNOGluten
    My home is as gluten free as I could possibly imagine it being, I have different toothpaste, soap, utensils, different grill. I cross reference all my own meds as does my pharamacist. No pets, had to put dog down last year, never smoked, drink very little other than water or almond milk, once a month I will have a gluten free beer but can only handle about...
  8. TTNOGluten
    I have not posted with the exception of yesterday in quite some time, mostly out of my own frustration and battling some of my ongoing demons. I found quite honestly with my lack of improvement that I was getting depressed reading all of the posts about the debilitating nature of this disease. In the past year my life has been stolen, going from an active...
  9. TTNOGluten
    I have not posted in quite some time out of frustration, mostly because I have been depressed about my situation and lack of improvement. I have been gluten free for nearly a year, and have had more tests than humanly possible in one year, including 4 EGD's, my biopsies and labs have normalized more than 6 months ago, yet I have been left with persistent...
  10. TTNOGluten
    Boy do we ever have a similar story. I have been on a 8 month quest to define my illness after previously being perfectly well until august 9th, 2011, then got ill and have not right since. I think I have had virtually every conceivable test and have three docs daignose me with celiac disease including four biopsies and labs, one loacal, two a Mayo clinic...
  11. TTNOGluten
    AVR, Your symptoms sound very suspicious for hyperparathyroidism. It is frequently missed by many docs due to fluctuations in your calcium levels and not putting the whole picture together. Do yourself a favor a go on parathyroid.com and read Dr. Norman's site info, he is the world's foremost expert on this. I think it would be worth your time. Best...
  12. TTNOGluten
    I have removed the dairy(casien) from my diet as well. NO real change
  13. TTNOGluten
    Well the past few weeks have been interesting for some new diagnostic studies, was hoping that all the veteran celiac folks could shed some insight. I have been seeing a gastro for 2 months now who I really like, he takes time and is very thorough. I had another EGD 2 weeks ago and an entire battery of celiac labs completed again, which shows normal biopsies...
  14. TTNOGluten
    I have had so many tests it seems that it is making me confused at times. Most of them continue to come back negative, yet the nausea, back and rib cage pain, and dizziness in the morning continue. Starting to feel helpless with finding an answer as I just want to feel better. Prior to August 9th I felt great and then bam overnight all of m symptoms came...
  15. TTNOGluten

    ARCHIVED Thoughts

    TTNOGluten posted a topic in Coping with Celiac Disease

    Well after a follow up to see the gastro, got some interesting news, I have been gluten free now for over five months, my epigastric discomfort and back/rib pain continue, but after a EGD on tuesday my biopsy is now reported as normal and my labs are also normal. So I guess I am happy, just still trying to figure out why my symptoms seem the same. Curious...
  16. TTNOGluten
    I have not looked into soy as an intolerance, I guess because I figured it would ache when I ingest it, but really my pain is constant? Maybe that is what other intolerances do is to create constant pain?? So confused with all of this, I can ceratinly do gluten free, but it seems like soy is in everything else that is labeled gluten free? I have not tried...
  17. TTNOGluten
    I have had this guilty feeling with this disease that I should be able to manage it without needing additional help, I am realizing I am wrong. For 5 months now I have had constant 24/7 pain in my upper belly, with never one minute of relief not even when I sleep. I have constant worsening thoracic and rib cage pain that has not improved even 1% since being...
  18. TTNOGluten
    I have been gluten free for about 5 months now, and you describe nearly some of the exact symptoms I have, in addition to the extreme fatigue and malaise after eating(and with me it is eating anything, even an apple), I have a constant deep abdominal ache and constant cramp like sensation in my ribs, it just never ever goes away. I am sure the pain is just...
  19. TTNOGluten
    I do try to stay clear of most processed foods, occasionally they sneak in, if I have to travel someplace etc.. I think I have the hardest time with consistency of this, I will go for 4-5 days, and then certain things creep back in as far as processed foods etc. I do eat Udi's gluten free bread, take in alot of fruit, vegatables and meats. I stick with...
  20. TTNOGluten
    The female problems are out, seeing as I am a 41 y/o guy, but damn some days I am so bloated I feel like I could be pregnant. Lol! I have tried to eliminate milk protein, I did that for awhile, but no real change, even though I had some allergy testing revealing a milk protein allergy, which is so bizarre to me, because prior to the abrupt onset of this...
  21. TTNOGluten
    I had made a previous post but did not seem to get any responses, so I will throw this out there again. I have been gluten free for 4 1/2 months now after my diagnosis with 3 EGD's yes 3 of them, and labs revealing an elevated TTG Iga, and Igg, as well as demiadated gliadin. Now since returning to Mayo clinic in Mid november I had my TTg Iga rechecked...
  22. TTNOGluten
    Well it has now been 4 1/2 months of gluten free-ness, and still little improvement. I am concerned with these peculair symptoms that I continue to have. Started with new GI doc, and I like him, seems to listen, but still have so many odd ball symptoms. Hoping you guys can help. I notice about 2-3 minutes after eating, and it can be as simple as a banana...
  23. TTNOGluten
    I am sure not going to cast stones, because much of how you have felt about this celiac issue is the same for me. It is frustrating as hell, I am angry as well, and question it everyday. I am not sure there is an answer for that, I am still waiting for my relief from the diet sacrifices I have made and yet nothing, I still feel lousy. I guess the best advice...
  24. TTNOGluten
    I was diagnosed with celiac some time ago, approx. 4 1/2- 5 months ago and have really been adhering to my diet strictly, I have had some confusing information that has been passed on from the GI mayo doc? As I am still having symptoms he told he believes that I must be getting gluten in my diet, yet when I have had my labs drawn twice my TTg IgA levels...
  25. TTNOGluten
    Pondy glad to hear everything is headed in the right direction, hopefully the tx for the H. Pylori gives you some relief, I am now 2 1/2 weeks out from gallbladder surgery, wish I could say the same, the ribcage pain continues as well as into my back, with no improvement, but what can you do. going for 2nd opinion next week with new gastro, hope he has...
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