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jumpingjuniper

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Everything posted by jumpingjuniper

  1. jumpingjuniper
    I saw my GI today and he was not helpful. He didn't even really listen. He's a nice guy, really, which is a plus, but he's not going to be figuring out any mysteries for me. I did ask for the lactulose test and he basically said yes to appease me (it will be negative but you can have it if you want to see). Anyway, I'm glad I'll get that. I feel like...
  2. jumpingjuniper
    I do keep a diary. I'm curious to hear about the experiences of others as I know it's something that happens to other people.
  3. jumpingjuniper
    I've seen some people say that eating dairy gives them symptoms like depression. If that happens to you, how quickly does it kick in? And does it happen every time you eat dairy and with every kind of dairy? I'm trying to figure out if dairy is affecting me or if it's just coincidence, or a coming together of triggers! Thanks!
  4. jumpingjuniper
    Yes, I know, I read her blog Thanks. It's not a quack illness but it's not widely tested for either and there's a decent risk of the tests being done wrong, so if I want them I should probably seek out a doctor who knows more about it than mine.
  5. jumpingjuniper
    Thank you for your replies. I've seen my doctor twice since I last posted and I don't think she's taking me seriously at all. She's chalking it up to psychological stress and has referred me to a psychiatrist. I spoke with her about histamine intolerance for a long time and she didn't want to do the tests. Having read about the tests myself, I didn...
  6. jumpingjuniper
    Sorry to hear about your multiple broken bones! I would recommend trying another GI, or else getting very proactive with yours by bringing in your own research. But it sounds a bit like he doesn't want to expand his knowledge on the subject. Is there a local celiac meet up? Maybe they have ideas for a GI. Wishing you the best of luck!
  7. jumpingjuniper
    Hi Dee, thank you for your kind message and suggestions. No real updates here but hopefully I'll get it figured out eventually
  8. jumpingjuniper
    This won't solve all of your problems, but I do find that taking my vitamins before bed helps with avoiding the nauseous post-vitamin feeling - perhaps it could help with some of the other issues as well. I hear you, though, I need iron and I can't figure out a way to take it without killing my gut. Good luck, and great news that vitamins do actually help...
  9. jumpingjuniper
    Hello all, I'll give a short version here and then details below! The short version is that I eat totally gluten free and have for a long time, and I still feel sick. I'm seeing my doc on Thursday and I was hoping that some of you could help me think of things to ask her, tests to suggest/request, etc. Okay, now the details: I was diagnosed in...
  10. jumpingjuniper
    Hi all, I read through an old post on this topic but it got a little off-topic by the end so I thought I'd start a new thread (I'm newish around here, so please let me know if it's better to just revive the old thread!). In any case, I wanted to share what I've learned about pelvic pain and Celiac Disease, as I think it is under-discussed and really...
  11. jumpingjuniper

    Yes I do. You can contact me for details.

  12. jumpingjuniper
    Congratulations, that's wonderful news.
  13. jumpingjuniper
    For me, the issue with the recommendation to eat "whole foods" as a way to avoid labelling issues, is that even a whole foods diet usually requires some products that may or may not contain gluten, depending on manufacturing processes. Short of growing your own rice, quinoa, legumes, etc., you're probably going to be buying some processed foods at the...
  14. jumpingjuniper
    Does anybody have experience doing ELISA tests on their foods at home? I strongly suspect that I'm getting glutened by something, and I can't figure it out. I've emailed manufacturers, etc., for details about their manufacturing, but am getting increasingly curious about testing things at home too. If you've done this, what was your experience? And...
  15. jumpingjuniper
    Hi, Thanks for your reply! The Schar Fette Croccanti crackers are amazing. My non-gluten-free husband loves them too. They're just a snack, but they're great. Their little cracker snack packs are good too. The croissants au chocolat are okay but not awesome, but it's nice if you're missing that kind of thing. You've got to warm them up. The...
  16. jumpingjuniper
    I'm sorry that you are suffering. Have you gone through your diet with a fine-toothed comb? When you say a gluten exposure causes symptoms - how often is that happening? There is a the possibility that those are frequent enough to make you ill in the longer term as well. And what are your parameters for eating gluten free - does it need to say gluten...
  17. jumpingjuniper
    Do you mean the Schar bread gave him problems, or that it just doesn't taste good? I live in Europe and eat a fair bit of Schar products, I'd certainly be curious to know if it caused problems for him. Thanks!
  18. jumpingjuniper
    Hi, thank you for your replies. I typed a longer post but apparently it didn't make it through moderation (no idea why!). I am trying to go through my diet with a fine toothed comb and eat as simply as I can so that I can identify possible triggers.
  19. jumpingjuniper
    I've been gluten-free for quite some time, after being undiagnosed for many years. While seemingly all of my symptoms went away, I still never felt all the way healthy. More importantly, I was dealing with persistent depression, brain fog, anxiety, etc. I had assumed that these were just issues I had, that were not necessarily Celiac-related, but recent events...
  20. jumpingjuniper
    I absolutely have this response. It's not an early response for me, at least not that I've noticed, but it's definitely one that arrives with chronic exposure. I was undiagnosed for many years and was always extremely sensitive to those things, especially textures and itchy or tight-fitting clothing. After ten years gluten-free, I'm dealing with a major re...
  21. jumpingjuniper
    These are good ideas, thanks. I forgot about that spoon analogy, it is apt. I agree that a walk, but not too much of one, helps, that is good to remember.
  22. jumpingjuniper
    Strawberry, I'm sorry you're dealing with this too. Are you feeling any better lately or still trying to find the culprit? Good call on washing everything, that is a good idea. Now that I think about how ubiquitous crumbs are here, I think I'm going to refrain from even ordering a coffee out for a while. I know coke is gluten-free here, so I could always...
  23. jumpingjuniper
    Hi, I posted another thread about how I've been sick lately, after ten years of being completely gluten-free, if you want some background. Anyway, I'm curious to hear what kinds of strategies people use for getting on with daily life when you're feeling lousy. I find I cannot wrap my mind around much right now, my focus is terrible, and I'm tired...
  24. jumpingjuniper
    Hi, Thanks for the replies. Strawberry - I moved to Switzerland. What was your experience like in Ireland? Bubba's Mom - our place was unfurnished, and we rarely have anything containing gluten in the house and my husband is careful when we do. I'll think about other sources of contamination, though, and maybe we're not being careful enough. ...
  25. jumpingjuniper
    Hi, This is my first post on this board! I was diagnosed with Celiac Disease almost ten years, and have been strictly gluten-free ever since. This year I moved overseas, and have been struggling with fatigue, depression, etc., and also just didn't look or feel healthy. More recently some of my other long-lost symptoms have re-appeared. Anyway,...
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