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Aly1

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Everything posted by Aly1

  1. Aly1
    I know they do not add gluten-containing ingredients to their spices but I wanted to confirm here on the forum that I don't need to be concerned with cross-contamination. Anyone here use them? Or avoid them? Thanks!
  2. Aly1
    I think they just refer you back to the doc who originally sent you to them...who would do any further referrals. But I am really not positive, that was just my experience but maybe it would have been different if I'd been given a new dx...
  3. Aly1
    Oh I know, doctors hate it when you try to do anything remotely assertive but who cares. It's more important that they get all the info you need them to get. But I would weed out anything that isn't totally...pivotal. I think after the first few points most docs tend to glaze over and don't hear a word you're saying!
  4. Aly1
    Oh and here I thought you were going to MN, that's the one I went to. I cant believe you booked flights and everything and now find you are expected somewhere else! At least you found out now, it would really be a nightmare if you showed up in the wrong state! And no worries, I'm sure they do the same thing regardless of where you go. You and I just posted...
  5. Aly1
    I was not gluten free back then so I don't know how the food options would be celiac-wise. If I recall correctly there was quite a bit of fast food on that lower concourse and unless things have changed you should definitely plan to eat in your kitchenette! That was thoughtful of your hubby to realize you might need a wheelchair in the airport. I remember...
  6. Aly1
    Oh I should not be reading these posts on an empty stomach! I am so hungry and can't decide if I'm craving crunchy salty chips or brownies more! !
  7. Aly1
    Oh another note Bubba'sMom - the tunnels under Mayo are pretty long. I don't know if it's the case with you but if walking is a problem for you energy-wise perhaps you can send hubby to get that scooter and bring it back to the room for you. Something to consider if you need to conserve your energy, it sounds like you do!
  8. Aly1
    I have no idea how I missed the original post but when I read it tonight I was worried too. Bubba'sMom gives such great advice...it's funny, for some reason I assume everyone on here who gives great advice must be all cured and feeling well, so I was really sad to read about all that's been going on. It wasn't very long ago that I was so weak I had to choose...
  9. Aly1
    Did you go with a hotel recommendation from them? I ask bc my mom and I stayed in one that was super close - and connected to an underground tunnel system that takes you up into Mayo. It's...kinda cool . So you just go back to your room between tests to rest if you so choose, or there's a small shopping concourse on a lower level where you can kill some time...
  10. Aly1
    Lol, well hey, whatever it takes to get better, right?! He did actually have a case where he went to a woman's home and discovered it was located over a previous chemical dump site. He's a very interesting guy. Do keep us posted, I will be thinking of you when Feb arrives, and remembering my own Mayo trip. Are you going to the one in MN or ?
  11. Aly1
    One thing we do with our little one is alternate. It's a rule we implemented where if she wants to eat <insert what food she Wants> she has to alternate one bite of one then the other. It doesn't work if she genuinely hates the food in question, but if we know it's something she's had and liked before then we stand firm. It's actually worked really...
  12. Aly1

    ARCHIVED Help!

    Aly1 replied to Bubba's Mom's topic in Coping with Celiac Disease

    Ha, this is a good point... But. If the dogs track it in and say, jump on the sofa, and you out your hand there then touch your face...it is theoretically quite possible.
  13. Aly1
    Wow I can't believe your doc said that about going to the ER! Um, they only keep you overnight if you need it! What an a$$, pardon my french, I have absolutely had it with docs. I am so sorry for everything you are going through! My heart goes out to you. It's so hard to keep fighting when it seems no one gets it and you haven't got any energy left...
  14. Aly1

    ARCHIVED Help!

    Aly1 replied to Bubba's Mom's topic in Coping with Celiac Disease

    My hubby gets frustrated too - he just wants a "normal" life. Hmm, don't we all! Sorry you got glutened in the strangest of ways!!
  15. Aly1
    I'm sorry you haven't gotten anywhere trying to find the cause of your symptoms. I can't comment on the tests you've had thus far; perhaps you could contact your local celiac support group (google!) and get a recommendation for a good celiac doc, for a second opinion? It couldn't hurt...
  16. Aly1
    Are you supplementing with zinc by chance? Too much zinc can make your hair fall out, it was happening to me till I found that out and scaled back my dosage.
  17. Aly1
    I think it would be easier if you didn't bother trying to explain to people. At work I would just say 'No thanks' or 'I'm not really a cake/pizza/whatever person, it doesn't do it for me', (yes, that is a lie, i really do want it! But whatever.) and leave it at that. It seems that explaining doesn't get anywhere so I don't really try anymore. The past...
  18. Aly1
    B12 has apparently helped people here with neuro symptoms like you're describing. It is very likely you do have vitamin deficiencies and that that is the cause. Make sure you are taking high quality gluten-free supplements and try including a B12 in there. Good luck!
  19. Aly1
    PS. I would call your doc office and get your test results sent to you (you may have to sign something to get them). When you have them you can research the values and find out for yourself if you are on the lower end of the spectrum for any of them - sometimes just slight deficiencies can cause symptoms. Of course, you do need to be cautious that you don...
  20. Aly1
    Hang in there, you've only just begun your battle! It can take months to iron everything out, and for some people, longer. I have had lifelong problems with depression and have used tons of anti-depressants. Not one of them helped me as much as going gluten free and the following supplements (I did both at the same time so I can't say for certain which has...
  21. Aly1
    I agree with the previous posters but did want to add that if you think you might want to get a biopsy done you must keep eating gluten until that test is completed...
  22. Aly1
    Good things for us to consider. I am waiting to see the test results and find out exactly which ones were used. There are no easy answers though are there! :/
  23. Aly1
    I took your advice and called the local support group for the name of a celiac-oriented pediatrician. They gave me the name of a pediatric GI that they recommend highly. I can't help but think that a GI will be really scope-oriented and I'm not ready to put her through that procedure...do you think I'm right that this doc will push that? Or am I just being...
  24. Aly1
    Thanks that's interesting, I will research it further!
  25. Aly1
    You likely would have a negative result 2 months down the road so you're right that you need to make the decision now. It's a personal call. If you no longer had the option of having a biopsy (because too much time had passed and it would no longer yield correct results) would that bother you? Some of us really want a dx; others don't really need it. I...
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