Jump to content

Aly1

Advanced Members
  • Posts

    228
  • Joined

  • Last visited

  • Days Won

    3

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Aly1

  1. Thanks! Do you normally react to small amounts of gluten? I ask bc their rep got back to me and said that while there aren't specifically any gluten-containing ingredients in their Allergy c caps, they "can not guarantee that they are not processed in a gluten-free facility". I was going to avoid those based in that description...
  2. I need supplements that are free of gluten (obviously!), corn, dairy and sugars. I specifically need a multi, vitamin C and echinacea. Has anyone heard of supplements that would fit the bill? I'm so frustrated looking everywhere
  3. I am too tired and brain fogged to read through the scientific description of various DH types that's pinned to this board! My 3 yo gets really angry-looking red areas of inflammation that have tiny red dots - usually just a few compared to the size of the inflamed itchy area. They never break open, only if she's happened to scratch one open. They do not...
  4. One of my sensitivities is gums like guar gum and xanthan gum. I did not know this and for a month straight was regularly eating a couple of new gluten-free products that contained them; a week before my period I swear my breasts swelled up over a cup size and were incredibly tender (I had to sleep in my bra!) and was bloated and crampy and uncomfortable...
  5. Hmmm, maybe!
  6. I actually find the microwave theory interesting. IF it were true, and someone would have to test to find that out - theoretically, you know how with some things that you heat make the insides of the microwave a bit wet with condensation; if moisture can rise up out of the food, then perhaps small particles of food might also; then when the next person uses...
  7. Just because there is no current research / "proof" that something happens, that doesn't mean it doesn't. The poster was just saying, "hey, I stopped doing this and I felt better, something to consider." To me, that doesn't require proof as she was relaying a personal experience and not trying to pass it off as known science. Remember, as recently as...
  8. Okay so it took me a while to find his reference to other grains because his book is about wheat so it was a buried in there. Here's what he says as to why he doesn't address other grains: "Of all the grains in the human diet, why only pick on wheat? Because wheat, by a considerable margin, is the dominant source of gluten protein in the human diet...
  9. Have you added any supplements that might have ingredients that contain stuff you have problems with? If not, I think I would probably do a strict elimination diet at this point...
  10. Ugh here we go again requiring research backup for something, something that was clearly *supposed* to be anecdotal. The poster didn't say "gluten in microwaves can make you sick - she said "I discovered I got sick from a microwave". Very good info to pass on and something that others can decide if they want to try or not try. A LOT of what is said on celiac...
  11. Hmmm, I am curious about this sulfite load concept as I recently discovered problems with onions, garlic and now potatoes; we had a roast with potatoes and my stomach bloated out right away. Didn't get the connection but the next day I had the left over roast potatoes and within a half hour my ears were ringing so loudly. This ear ringing thing has been coming...
  12. Very interesting...I haven't returned the book to the library, and now I am curious as to what he says about spelt and kamut...I think he might have said something but I would probably have glossed over it. If he says anything interesting I'll post it .
  13. The author (which I see is William Davis MD) says "triticum species of today are hundreds, perhaps thousands, of genes apart from the original einkorn wheat that bred naturally." The wheat he used for his "test" was the einkorn wheat grain. He got it from a woman who's the founder of the Heritage Wheat Conservancy (www.growseed.org). I should go look that...
  14. I agree wholeheartedly with GFinDC. I've been gluten-free for five months but am only just getting hints of feeling better, after discovering other food issues. Corn is a big one for me, and although I'd removed it from my diet, I didn't follow through with ensuring that my supplements were corn-free. Just this week I stopped all my supplements as a test...
  15. Oh, I suspect a lot more than 1% would be helped (based on what I read in Wheat Belly). But these grains are so entrenched in our culture that I don't think much is going to change. I bet in the end everyone would just take Glutenease rather than give it up!
  16. I know this post hasn't been active for a week but I have to say, I have been quite swayed by reading "Wheat Belly" (can't recall the author - a physician - but it is a current NY Times best seller so it shouldn't be hard to find). He discusses the changes in wheat through selective breeding etc and how in the last 50 years wheat has changed *dramatically...
  17. You're doing better than me, I eat it 1-2 times a day 6-7 days a week!! And we thought brown rice was healthier. Whatever. If I cut one more thing out of my diet, I swear I will disappear.
  18. I've been where she is and I know what it's like to be getting worse and worse and fear what might happen next. My heart goes out to her.
  19. By the way, can I ask a weird question? Is there any chance that there are things in your environment that are contributing to your illness? I ask this because for me it's not just that I was eating gluten (and other allergens for me) all these years, but I have been living in an apartment with a serious mold problem. Dr. Bolte is convinced that that is playing...
  20. Apparently my doc - Dr. Thomas Bolte - can treat by phone or email but you do have to travel to NYC for the initial consultation (required by malpractice laws I believe). It sounds like Mayo dropped the ball in a number of ways with getting you in quick to see them, which just sucks when it's a one shot deal. I'm sure when they got to the end and they...
  21. I've been waiting for you to post and wondering how things went. I'm so sorry they were not able to give you any answers. I know how that must make you feel, you were at your wit's end before going. Sigh. I've said this to a couple of others - I have a good doc in NYC who specializes in medical mysteries, if this next doc doesn't work out. He's not a...
  22. Hi, I've recently discovered I have a real problem with corn too, so I need to ask, how is it in potatoes? And have you found painkillers that don't have any? Thanks!
  23. Baagh! That's my favorite lipstick, now I have to toss it (I only wear lipstick every once in a while and haven't since I went gluten-free.) Glad you posted. Do post again if you come across a good substitute, please.
  24. Aly1

    ARCHIVED Neuropothy

    Baaagh! Now someone tells me. I have been taking tons of vitamin c for YEARS. Insomnia has been a major issue for me for years. Sigh. Just goes to show that all the online reading you do does Not make you a physician .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.