kb27

Thanks for your comments. We don't have a 504 plan - the school said they could take of everything without one. He does have a health plan on file. I like the idea of asking them to have the non-cooking part of the cass taught elsewhere. Then we wouldn't have to worry about what the other classes are doing in there. I agree whole-heartedly that kids...

My son was diagnosed with celiac 3 years ago. We (immediate family) were all tested and came up negative. The specialist he went to said all immediate family members should be retested every 2-3 years. Since we made the whole house gluten-free, none of the non-celiacs in the family each much gluten. Thus, in order to get re-tested, we need to eat some...

My celiac son is due to take the modern equivalent of home ec next year. Part of it involves cooking. I got a note from his doctor stating that he should be excused from cooking class for medical reasons, but we are at the point now of trying to structure alternatives. My concerns are that being in a classroom in which a bunch of 12-yr-olds have been...

It really depends on the school as to whether or not you need an official diagnosis. Our elementary school was willing to work with my son even without a letter from the doctor. We had no problems with any teachers, from art to after-school care. They were very accommodating. We did not attempt to have him eat at the cafeteria. Now he's in middle...

We don't know anyone else in person who has a kid with celiac, but we do have friends who have been very supportive. They make sure that there is food our son can eat when we go over to visit. And my son's friends know that he can't just eat whatever they are having. He's older though (11 now, but 8? when diagnosed). We have found an active ROCK group...

We have one kid with and one without celiac. We keep a gluten-free home, but kid #2 (non-celiac) can eat gluten whenever he is out (school lunches, etc.). When we got everyone screened for celiac, after kid #1 was diagnosed, we also had kid #2 (and me) have the genetic test done. Although I have one of the celiac genes, kid #2 did not have any of...

Schar cheese bites taste like Goldfish & Cheezits, too.

Thanks for the reply. I think he probably had both the glutening and some illness at the same time. The fever and full-body rash seemed a bit at odds with the standard GI issues. He's not on any medications, but I suspect the same kind of thing could be at play - the immune response to the gluten exacerbated other conditions. And he is better now...

Thanks for the replies. He was only at camp for 24 hours (it was just a weekend thing), so I can't just blame the kids. Of course, he spends all day with them at school during the week, so it could still be a bug. Now he's totally itchy all over. This is weird.

My son got glutened this weekend at a camp. It's the first time since he was diagnosed with celiac and went gluten-free that I know he had gluten. Within about 12 hours he was nauseous, unhappy, and running a fever. So we came home early. By that evening he was able to eat again and the fever broke overnight so I sent him to school yesterday. And now...

Cara - we just had a similar issue with our son, who was glutened and got quite sick afterwards (about 12 hours later he got really nauseous and actually got a fever). His symptoms were a little different (so I put my query in a separate post to not hijack yours...), but he had not had any GI symptoms prior to going gluten-free. From what I hear here...

My son was at a camp this weekend (with me). The camp actually had pretty good procedures for keeping kids with dietary restrictions safe, but one night procedures weren't followed and my son was given some gluteny gravy. He got about 3 or 4 bites down before we figured out what was up. Oops. It's the only time in the last 2 years that I know for...

Our experience is just one of many, but we did see growth right away. My son was 8.5 when he was diagnosed, and he, too, was small. He grew a lot in the first 6 months gluten-free (like 10 pounds and 4 inches). We were shocked. We hadn't really noticed how small he was and then he was outgrowing all of his clothes. Two years later now, and he's been...

My son was 8.5 when diagnosed. He was small (maybe 50 pounds), but not overly so. And he was anemic, but borderline so. It was the iron deficiency that caught our doctor's eye - on a blood test run for something else. And his iron levels didn't improve with supplements. That was what prompted the celiac test. He never had GI problems. After going...

I can't help you with New England camps, but we sent my son to one of the Concordia Language Village camps in Minnesota last summer. They did a great job with his food, even though the camps are set up around family-style eating. They let him know which dishes he could and could not eat, and the chef prepared gluten-free alternatives for him for the ones...