Jump to content

Avalon451

Advanced Members
 View Profile  See their activity

  • Posts

    60

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Avalon451

  1. Avalon451
    This has to be one of the classic 7 stages of celiac grief (or awareness, or whatever)! First you don't quite believe it, then you start researching it, you deny it, you rage, you grieve, you accept... then you diagnose everybody and their dog with the same thing as you. Anybody else do this when they were first diagnosed? You start to see celiac symptoms...
  2. Avalon451
    ...well, for my kids, anyway. I see the GI doc next Friday, and I'm hoping to talk him into an endoscopy, since my bloodwork was kind of inconclusive but my symptoms are fairly obvious. I'm staying glutened for now in hopes of a positive diagnosis. Such mixed feelings. On the one hand I'm excited to see my girls and I start to feel better. On the other...
  3. Avalon451
    I'm wondering if you have thyroid issues. Those could account for your feeling rotten. The other alternative would be to go on a strict elimination diet for 3 months, give your body time to heal, and find out what exactly you react to, as you start to add things back in. Open Original Shared Link I've also heard really good things about the paleo diet...
  4. Avalon451
    That is great news! My 3 daughters and I were just diagnosed, and we start our gluten-free diet soon. I was mystified by hair loss in my younger two. My middle daughter, especially, had handfuls come out every time I combed, a few years ago, but that symptom came and went. The 9-year-old has almost waist-length hair, but whenever I comb it after a bath...
  5. Avalon451
    I'm new to celiac but I'm not new to anal fissures, which is what it sounds like you have. I had to see a butt doctor a few years ago for this, joy joy. A feeling of "cutting" during BMs, and the blood you're seeing, can be caused by internal OR external hemorrhoids, and also anal fissures, which are cracks or tears in the area. They're mostly associated...
  6. Avalon451
    Thanks, everybody! Good suggestions. I'm reading reviews on Amazon, too.
  7. Avalon451
    My three daughters (9, 14 and 16) and I were recently diagnosed as celiac. My husband is not, but is heroically going gluten-free with us, starting this weekend, after the 16-y.o.'s endoscopy. My question: What are some of your favorite cook books to get me started? I love to cook and am pretty confident in the kitchen; I do a lot of my cooking from scratch...
  8. Avalon451
    I'm really happy to see all these personal examples. My 3 daughters and I are getting ready to go gluten-free this weekend, after my oldest's endoscopy. We have all had positive bloodwork for celiac. My middle daughter, 13, has had anxiety disorder for 2 years. It was to the point where she couldn't stay in school without a family member nearby. She has...
  9. Avalon451
    Thanks for the replies! The "range" is part of the problem, I think, of what was confusing me. On mine it says Your Value Standard Range Units Tissue Transgluaminase Antibody <3 U/mL Reference range: Negative <5 Equivocal: 5-8 Postive:...
  10. Avalon451
    Hi, my family and I are all new to this. DH and I have 3 daughters, 16, 13 and 9. The 16 y.o. was seeing a dermatologist for acne when, as an aside, she showed the doctor "this rash that's driving me nuts" on elbows, knees and back. You guessed it-- dermatitis herpetiformus diagnosed by biopsy. She is now seeing a GI doc at Seattle Children's hosp. It was...
  11. Avalon451
    I've had this one in my sights for a couple of years, but too scared to try it. It sounds like the official way to go, to really figure out what your problem is. Hard, though. Open Original Shared Link
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.