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abaker521

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Latest Celiac Disease News & Research:

Everything posted by abaker521

  1. abaker521
    Thank you both very much! I feel much better now. I did specifically ask the pharmacist and he said "it has gluten in it" but I agree it didn't make much sense. Maybe he was confused? I appreciate the responses!
  2. abaker521
    I'm looking for some thoughts and advice regarding gluten in injections. I have to take a new medication and my pharmacist said it does contain gluten. I have celiac disease so obviously it seems counter intuitive to give myself a shot which contains an ingredient my body hates. Unfortunately there are no substitutes for this medicine but I only have to be...
  3. abaker521
    I was diagnosed with Celiac back in September and just last week tested positive for primary hemochromatosis (I'm a C282Y homozygous, meaning I received the mutated gene from both parents). I never really got better despite going gluten free and I think it's because I have very elevated iron levels. I'm meeting with my doctor next week to figure out a course...
  4. abaker521
    I was diagnosed with celiac disease last September and immediately eliminated gluten from all aspects of my life. I wouldn't even let my husband bring it in the house! I started to feel better.. but then I noticed weird symptoms began surfacing again about three months into the diet. Of course I thought it was CC or other food sensitivities so I became even...
  5. abaker521
    That's good to know Celtic! I'm sure it would be better to wait a year before I get re-tested, but it can't hurt to do it now I suppose. I've been gluten-free for about 6 months. Do you remember what your ANA titer and pattern was? Mine was 1:1280 with a homonegenous pattern. My doctor never even discussed this with me. I accidentally came across it when...
  6. abaker521
    Thanks for that information Gemini. I wish I knew more about my body and genes before I had the procedure.. but what can you do.. I met with my doctor today and he was very supportive. He doesn't think the implants are causing me the issues, but he said that if my other doctors recommend I get them removed he'll do it free of charge and it's an easy...
  7. abaker521
    Funny.. I've recently been having jaw pain too. It comes and goes but it's definitely annoying. Honestly though, I think a part of it has to do with anxiety. I tend to clench my teeth when I'm anxious and I don't notice it. Keep me posted though if you find an answer.. perhaps it has to do with a vitamin deficiency too?
  8. abaker521
    I was on birth control for 4 years and about the same time I was diagnosed with celiac I stopped taking it (because by husband and I want to TTC eventually and my insurance no longer covered by birth control). My periods have been 35-40 days ever since and are super heavy and painful. Despite going strict gluten-free.. I still have some odd symptoms that...
  9. abaker521
    Thanks for looking up all the information Skylark! I've been doing some research too and there are a lot of reported cases similar to mine.. but I know that celiac disease can cause some pretty wacky symptoms too. It's just strange that I'm not getting much better, and actually seem to be developing other odd symptoms. It could be I have another underlying...
  10. abaker521
    Thanks for your input you two. I've been killing myself over it. I can accept that I have the genes for autoimmunue diseases.. but I can't cope with the notion that I've made myself sicker or caused my health issues by getting unnecessary surgery. The high ANA is what really bothers me.. but I had that test done when I was first diagnosed with celiac back...
  11. abaker521
    Hi Everyone, Not sure where this post belongs but I wanted to reach out for some advise/opinions. Two years ago I decided to have a breast augmentation. This decision took years to make and after I found a very reputable doctor I decided I should just go for it. I was 25. Fast forward two years, and I have full blown celiac disease, HIGH ANA levels...
  12. abaker521
    The NARS cosmetic line is gluten free. This is what they listed on their site: "NARS does not use any gluten or gluten derived ingredients in its products. Therefore we consider our products to be
  13. abaker521
    I am so so sorry Jess. I know words won't do much good now but just know that when things happen that are out of your control there's always a reason. Nature is smart. I know everything will work out for you soon and you'll have the baby you've been trying for. As you know I'm sort of in the same boat.. I want to have a baby very soon but I feel like my...
  14. abaker521
    Thanks so much for all your VERY helpful information!! You told me 100% more than my own doctor.. who immediately scheduled me with a dietitian because he said I "wasn't following the diet." UGH! I have definitely cut out dairy and probably need to lay off all the fruits and veggies.. most likely over-doing the fiber lol. I feel best in the morning then it...
  15. abaker521
    Yes I'm still having some symptoms unfortunately.. bloating..brain fog..mood issues.. but they certainly aren't as severe. My BM's are a bit better I suppose? ...perhaps it's just all hormones too. I went out birth control a few months back and I know my body is still recovering from that too. I went off dairy so hopefully that will help!
  16. abaker521
    OK! I finally got my test results sent to me and I'm utterly confused (such a newbie, sorry!).. When I was first diagnosed back in September these were my results: Gliadin AB (IGA) 51.0 Unit/mL (high) Transglut IGG 3.4 unit/mL (normal) Transglut IGA >80 unit/mL (high) Gliadin IGG 10.5 unit/mL (high) These...
  17. abaker521
    This is very true IrishHeart! I can tolerate my vitamin D3 supplement just fine.. but when you start mixing in tons of other things I just can't tolerate it. I know I'm still in serious healing mode so I'm trying to be extra careful, but at the same time I want to make sure my body is getting all the nutrients it needs (especially since we really want to...
  18. abaker521
    This is great info! I've gotten sick off of Rainbow Light and New Chapter Prenatal vitamins. Does anyone recommend a good prenatal vitamin for a super sensitive? I'm still looking for one I can tolerate..
  19. abaker521
    I am discovering I'm a "super sensitive" celiac too and got sick off several vitamins that were organic and labeled "naturally gluten free." I too just discovered I was low on vitamin D (my level was at 19 when normal is around 30-40). My doctor recommended 400IU daily.. which seems very minimal compared to other dosages I'm reading here. I went to Walgreens...
  20. abaker521
    I'm in the same boat! I have two cats who both eat Science Diet (one of my cats literally grabs the good with her paw and puts it in her mouth like a human).. so it's no wonder I'm getting CC'ed!! They like dry food but we give them wet food as a treat. Where can you purchase Merrick? Do any of the large pet stores carry anything wheat and gluten free? Has...
  21. abaker521
    I appreciate the encouragement. I just got a call from the nurse this morning and she said I'm low on vitamin D so she suggested I get vitamin D3 (400IU) supplements. This was funny to me considering I live in Florida and I was just laying out in the sun last weekend! They also referred me to a dietitian. I swear, if they just tell me to "stay away from gluten...
  22. abaker521
    Thanks for the replies ..yes I have requested to have my tests sent to me then I'll definitely post them. I felt great last week but over the weekend at the health food store, I had a sample of a new 'gluten/dairy free' protein bar only to find out it had wheatgrass in it. That was Saturday then my test was on Tuesday.. so perhaps that's it? I still feel...
  23. abaker521
    Hi Everyone - I've been feeling crummy all week so it was no surprise that after my bloodwork was done on on Tuesday the nurse told me I still had elevated celiac antibody levels. All she said was back in September before I was gluten-free, I was at 80 and now (5 months gluten-free) I'm at 61. I have been soo strict.. not only with food, but with CC...
  24. abaker521
    That's great new jswog!! I too find it remarkable that my period returned after just two weeks of going gluten free. It's still a bit wacky though (about 37 days apart).. but hopefully I'll get more regular soon. I think I just need to put on a few more pounds perhaps. I have become slightly fanatical as well about gluten. Two weeks ago I officially...
  25. abaker521
    That's great upwith! Keep me posted! I think we're going to start trying around May, depending on if I can get my body healthy again. Fingers crossed.
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