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lc1333

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Everything posted by lc1333

  1. lc1333
    i also have the hives issue when i get hot for any reason, it's called Cholinergic Urticaria, or an allergy to the heat that makes you break out in hives. i often break out in the morning as soon as i wake up, i'm not really sure why other than that it's an internal temperature shift. when i get hot from exercise, folding hot laundry, doing the dishes,...
  2. lc1333
    me at taco bell: gimme just a sec, i'm trying to figure out what i can eat... girl behind the counter: oh, no problem, take your time my sister in law: she just found out she has celiac disease, so she can't eat wheat girl: oh, well she can have a soft taco with a tortilla, they're made out of flour, not wheat me: yeah, but the flour...
  3. lc1333
    thanks for the advice y'all. i think i will just start calling to get him in earlier, maybe they'll just switch my daughter's appointment for him. that'll at least get him in first, in the middle of March. i just felt so horrible looking at him balled up on the couch and having to tell him, the doctor will call back monday, we just have to wait and...
  4. lc1333
    so, here we go again with the docs. i had neg. bloodwork, but a positive biopsy, so i had to start the process of testing my 4 kids. they, too all had negative bloodwork, so their pediatrician referred them to a pediatric GI, starting with my daughter. her appointment is in the middle of March. meanwhile, my youngest (10 yrs old) is having stomach cramps...
  5. lc1333
    i'm so bummed. i had a positive biopsy, but negative bloodwork, my stupid doc told me i don't have celiac, but maybe i have a gluten sensitivity, she made it out to be no big deal, she even said, it's better because you don't have to be so stringent. i know she's just dumb and that i do have celiac, but part of me wanted to believe her. so, i've been gluten...
  6. lc1333
    thanks for the input y'all, here we go....
  7. lc1333
    so, seeing how my GI doc is completely incompetent, AND i have to get my kids tested now, does anybody know of any good docs in the Seattle area???
  8. lc1333
    wow, i'm sorry to hear about all of the stupid doctors out there... as time goes by and i am feeling so much better, i have been reading more about celiac and the various symptoms and so many of them click, it just makes so much sense now... and it's really weird to eat and not feel the food moving through my system like a firey torpedo just a repeat...
  9. lc1333
    so, i guess the only other thing to do is get the genetic testing, but also, i could just wait until my kids get their bloodwork done, if any other them are positive then i really don't need to look any further. but how do you get genetic testing done? is it done through the doc's office? i think it's interesting that my doc didn't suggest it, on the...
  10. lc1333
    it really was!! it was hilarious, but i was really afraid my brain was going to explode trying to grasp what she was saying!! and not saying!!!
  11. lc1333
    it was an amazing sight, lemme tell ya!!!
  12. lc1333
    I hadn't thought of that, I will call on Monday and ask about it, but they do all have abdominal pains, so that might be enough, I'm glad you mentioned it, thanks!!
  13. lc1333
    Yeah, I left the doctor's office thinking, really, am I just stupid because I can't understand a thing she was saying. She just kept contradicting herself everytime she spoke. What I'm not sure of is why she was so resistant to just saying, yes, you have celiac disease. Maybe she didn't want to look wishy washy or indecisive or something, I don't know...
  14. lc1333
    Ok, the tests i've had and the results... full celiac panel - negative upper endoscopy - positive for villi damage abdominal CT scan - fatty liver, otherwise normal breath hydrogen test - positive for bacterial overgrowth went on a gluten free diet - feeling SOOOO much better, no more diarrhea, no more cramping and burning pain, more clear headed ...
  15. lc1333
    Well, I don't even know you, being a "newbie" myself, and I'm glad your here. Level-headedness is exactly what I need right now. I don't really feel too terribly freaked out about the diet since I've looked around the gluten-free mall and there are tons of stuff on there. One thing I do worry about is that I have been so afraid to eat that I often restrict...
  16. lc1333
    I feel your pain, I went gluten-free about 5 days ago now, and the other night I had a dream I was running down the hallway eating a Butterfinger, trying to not get caught!!!
  17. lc1333
    Thanks for all of the great advice! I have talked to so many people in the last couple of days because I really reached a point of complete intolerance of all of this (ha!! I made a joke!!! get it - intolerance?!?!) Anyway, I have called other doctor's offices and talked to the nurses there, who talked to the docs, I've talked to y'all, I've talked...
  18. lc1333
    Thanks for the suggestion. I found the SCD on the SIBO (small intestinal bacterial overgrowth) site. I actually did start the diet yesterday. It's kinda bizarre to think about - I haven't had any grains, dairy, or sugar in the last 48 hours. And surprisingly enough, other than a headache (which I have quite often anyway) I feel ok. My stomach has been...
  19. lc1333
    Thanks for the advice... I'm gonna try this. The one thing I am afraid of, which I guess I shouldn't be, is that almost 4 years ago I quit drinking soda to lose weigh (totally robbed on that one, didn't lose a pound), then when I did try to drink it, it made me violently ill, then any sugared drinks began to make me ill for days, now the only thing...
  20. lc1333
    Ok, so here it is...I have many of the symptoms of celiac, went to gastro doc, she did blood tests, the full celiac panel and upper endoscopy. the bloodwork came back normal, but the endoscopy showed vili damage, so then we did a breath hydrogen test and that came back indicative of small intestinal bacterial overgrowth. so she put me on antibiotic to kill...
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