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Blue-eyed bandit

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Blue-eyed bandit

  1. Blue-eyed bandit
    Thanks so much. Yes I’ve decided to eat gluten free again and my stomach pain has improved so much as well as my bowel movements. I’m making sure to eat a mostly Whole Foods plant based diet and supplementing vitamin d3, along with a multivitamin. Thanks for the reply.
  2. Blue-eyed bandit
    Biopsies can miss it. That’s why the first 2 gi doctors asked me to stay off gluten. The second one said something like it’s impossible to test the entirety of the small intestine. I don’t know what else to do besides just waiting it out. I’ll back in the states in July & once I’m back in the states I’ll follow up with a different GI - due to the move...
  3. Blue-eyed bandit
    Ok I’m understanding now! Good grief it was misleading! So the only thing that is indicative of celiac disease would be the first test, deaminated gliadin abs IgA, that increased from 19 to 30 while on gluten? And of course my genetic markers. Are these labs enough to d/x celiac?! All my biopsies were negative. The last one was in July. I’ve been eating glu...
  4. Blue-eyed bandit
    Here are the labs. Hope that helps & thanks so much for helping me!
  5. Blue-eyed bandit
  6. Blue-eyed bandit
    I’m not sure. I’ll try to format my file to attach the labs.
  7. Blue-eyed bandit
    I have added reference ranges of labs to help clarify. 8/2020- on gluten Deaminated gliadin abs IgA: 30(H) limits: 0-19 Deaminated gliadin abs IgG: 4 limits: 0-19 TTG IgA: 2 limits: 0-3 TTG IgG: 2 limits: 0-5 endomysial antibody IgA: 321 negative: 87-352 2/2020: Off gluten ...
  8. Blue-eyed bandit
    It won’t let me upload a picture of the labs. So here is the reference range for endomysial antibody iga immunoglobulin a qn serum. Negative 87-352.
  9. Blue-eyed bandit
    I’ll have to try to screenshot my labs or look them up again to give you the results. Sorry about the confusion. I’ll get this updated to make it more clear soon. Eating wheat was over 6 months because all this happened during covid and I was a covid RN at the time so they kept putting off my biopsy and my labs which is why there is a 6 month dif...
  10. Blue-eyed bandit
    Hello: I was d/x with Celiac disease awhile ago. I had a negative biopsy, but the MD d/x me anyways based on symptoms, and labs. Fast forward and the MD retired and I moved onto a new GI MD in the same practice. She stated that she didn't believe I had celiac due to negative biopsy. We redid labs and an upper endoscopy. Again endoscopy negative. She...
  11. Blue-eyed bandit
    Let us know how it goes. Tomorrow is your Big day so here's to feeling well!
  12. Blue-eyed bandit
    I have NSVT ( non sustained ventricular tactcardia) and atrial tachycardia both different than afib. I have had very good results with magnesium taurate.
  13. Blue-eyed bandit
    I am wondering if your like me with constipation before celiac diagnosis rather than text book diarrhea? After I got off all gluten AND milk I became regular. Maybe if you think your digesting too slowly try to eat a lot more vegetables and fruits to speed up the process. Extra water can't hurt either. .
  14. Blue-eyed bandit
    Absolutely nothing... Which is why I want to see an electrophysiologist for a second opinion. If it's nothing to be done fine, but I'd like to see if I'm a candidate for ablation.
  15. Blue-eyed bandit
    Good luck with your ablation! My moms husband had a cathedar ablation done for afib and has had zero episodes since!! I'm going to go see an electrophysiologist soon to see what can be done if anything about mine. I only have a low sudden cardiac death risk but I imagine it will only get worse the older I get and the risk higher.
  16. Blue-eyed bandit
    What happened with you? My symptoms were very similiar to yours and I was diagnosed with NSVT and atrial tachycardia- devastated as I'm 27 with 2 children under 4
  17. Blue-eyed bandit
    Here! Oops
  18. Blue-eyed bandit
    Well it's been awhile since I posted but the doctor told me everything was fine on my holter event recorder and just PACs in couplets and bigeminy. Well I refused to take off my moniter because they hadn't caught the runs of palpitations I've been getting. And guess what I recorded two runs- bad news it's nonsustained ventricular tachyicardia ( NSVT ) and...
  19. Blue-eyed bandit
    I'm grain free too- but wondering what you do for breads and starches? I don't do anything but sweet potatoes and vegetables and sometimes white potatoes but rarely. Do you eat beans too?? Just really curious about your diet as I'm only less than 6 months into mine. I eat tons of fruit but im hungry and it's so convenient. .
  20. Blue-eyed bandit
    I have to eat paleo diet like... Mostly no dairy, but every now in then I'll have a string cheese, no grains for me since I'm allergic to all grains. I don't even eat coconut breads or anything like that. I've found it to be quite easy but the beginning was difficult. I eat an almond banana smoothie for breakfast or sauteed cabbage/kale/spinach/arugula with...
  21. Blue-eyed bandit
    I went to an allergist and was food tested and found out I had many allergies. Why don't u try going to an allergist and that way insurance would cover it?? If I did it without the allergist and sent in my blood to be tested like my chiropractor suggested it would have put me back 1k.
  22. Blue-eyed bandit
    I have the same white callous too on both feet but the doctor isn't worried about that. My legs get slightly lacy when cold but it doesn't happen often... But it happened at the dermatologist so it must have happened for a reason. The tiny little rash I have is super tiny and comes up with heat especially after shower. Raynoulds is nonexistent in summer.
  23. Blue-eyed bandit
    Thank you all so much for your positive attitudes and replies. It means more to me than I could really put into words. I'm just so stressed lately with so many things coming on me in the last 6 months and have remained positive until yesterday when I was told I needed to be tested. No I don't have the butterfly rash- my symptoms are mottled skin when cold...
  24. Blue-eyed bandit
    So should I be expecting my bloodwork to come back positive since we have high inflammation levels anyways with celiac? And if she diagnosis lupus I guess that means I should get a second opinion?? I don't have a rash on my face just mottled skin on legs when cold sometimes and also a rash I've had for three years that crops up when I get hot out of the shower...
  25. Blue-eyed bandit
    I'm wondering if everyone with raynoulds if you also experience mottled like skin when cold- like a lacy overlay on ur skin?? My dermatologist saw this today on my skin and now I'm being tested for lupus and antiphosophlipids etc. I'm scared to be diagnosed with yet another problem.
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