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Ziva

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  1. I just thought my eyes got tired toward the end of the day because I wear contacts. Maybe still the case. I don't notice my throat or mouth being dry. I'm not going to think about it. I think I have the food down pretty good. We don't eat alot of processed foods and usually have a meat, veggie and salad for dinner and I take leftovers for lunch. I do think...
  2. I always thought I was a little weird We haven't done any genetic marker testing on anyone else. I'm not really sure it would be worth it. I only did it because the GI doc said no to Celiac and he wanted it to rule it out further. I guess in his mind it gave him one more reason to say no. Thanks for adding the links, but they were greek to me! My husband...
  3. I have read the info on antibody tests several times and understand it a little more each time I read it. Thanks My generic marker test said what I posted earlier plus HLA-DQ (DQA1*05/DQB1*02) negative HLA-DQ8 (DQA1*03/DQB1*0302) negative HLA-DQA1* 01 HLA-DQA1* 03 HLA-DQB1* 0301 HLA-DQB1* 0603 Does it say something different than negative...
  4. How long of a learning curve do we get ??? I went back and read some previous responses and it said something about TPO antibody test. Guess I picked up on the T3 & T4 from somewhere else and requested them. So, with my recent thyroid test results, do I need to go back and request more blood work?
  5. Quess I don't know how to do the mutli quote, yet! Thanks for the reply. Are you saying that the recent thyroid tests I had done are not enough to rule out Hashimot's? At least for right now. My test through Quest said: "The patient does not have the HLA-DQ varients associated with Celiac Desease" As I work on getting my other daughter tested, I...
  6. She was biopsied and he again said "classic Celiac" as she was recovering from endo, but would have to see what biopsy showed. She went gluten free and we went for a 3 week follow up after endoscopy and the GI doc did a flip flop to No Celiac because biopsy was "normal". He went with IBS and said she could eat carbohydrate light. She feels better although...
  7. I am relatively new to Celiac and am trying to figure out what this all means for me also. I didn't know there was anything wrong with me until Dec. when a GI doc mentioned anemia during a routine colonoscopy at 50. As I have read more about Celiac, I can say I can identify with some symptoms and defiantly have some absorption issues resulting in anemia...
  8. I'm not sure if I can change the heading to something like...Been around for a short time, and still need input from those who have been around awhile! I had follow up appt with hematologist that believes I have Celiac. Even though GI says no. I had blood drawn the week before so he had results. The thyroid tests were: Doctor said these are fine. T...
  9. On Friday, I went with my 21 y/o daughter to her 3 week after endoscopy follow up appt. The doctor totally changed his diagnosis from "classic Celiac" after our initial appt and endoscoy findings to No to Celiac because "the Golden Standard" of biopsy was not met. He now says the ttg IgG result that was 9.3 was not really high. (<6 neg, 6-9 - weak positive...
  10. My daughter had her endoscopy & biopsy done and the GI said definatly Celiac. He said he would send off the biopsies and let us know if they show something different. What he said seems to go along with what I have read on this forum. I think she may have a doc who knows what he is doing! We also talked about the genetic marker test, hopefully I put...
  11. Thanks for the replies. The only test for thyroid was the TSH. I will request more thyroid blood work @ my appt. the 1st of May. I am a bit frustrated with my doctors. I have showed anemia for several years on my blood work but it didn't raise any flags with my pcp other than telling me to take some iron. I thought he knew what he was doing and I...
  12. I still have a few questions and would apprciate any input. Look at previous post for other tests results. 1. If the only test I showed any increased number to was Antiglaiden ab, IgA at 13 (11-17 equivocal) is that enough to say Celiac? Neg on biopsy and neg on genetic marker. Anemic and Vit D insufficiency. See above. 2. My daughter was tested and...
  13. I spent the day wondering what was wrong with me. I've had heart palputations before but today had them off and on almost all day which was not "normal" and very unsettling. I got on here to see what others had to say. I'm new at eating gluten free and am taking iron and Vit D. The iron is causing some issues so I was taking Citrucel, says it's gluten free...
  14. Very interesting! I could say I relate to more of the symptoms of menopause than to Celiac, but based on the conversation, I can't wait to see if going gluten free will reduce the heart palputations, night sweets, and hot flashes. Just new to gluten free and possible diagnosis of Celiac.
  15. If "some" of the genes associated with Celiac are negative, what are the chances you are Celiac? I don't necessarily need a formal diagnosis of Celiac, but I need to know if this is the answer to my Anemia and Vit. D deficiency. Otherwise, I need to look at other areas. Can gluten sensitivity / intolerance cause deficiencies? My doc only ran the tTG IgA,...
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