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Jsny1010

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jsny1010

  1. Jsny1010
    Welcome to the club, I think almost everyone here has been diagnosed with IBS at some point.. my blood work was positive / neg biopsy - both doctors swear it can not be celiac...but I'd trust your gut, keep a food diary and start out slow - eat normal foods but take out one thing at a time (Gluten, Casein, Lactose, Rice, etc.) It might take a while to rule...
  2. Jsny1010
    *Help with Lab Work* mistype I got some of my bloodwork back that they did in the hospital right after the biopsy (that came back negative) My doctor is going to run some more bloodwork, iron, hep, etc. Since he swears I dont have celiac because his biopsy was negative, is it possible that the enzymes could be above normal? here are my labs ALT...
  3. Jsny1010
    I agree with Skylark, my results were the same as yours - i stayed off gluten for over a week and felt GREAT, added gluten back into my diet and back to feeling sluggish and crummy. I didnt like the thought of changing my diet without a firm diagnosis at first but it is worth it to feel better, and hopefuly in 6 months i can have dairy again.. But to...
  4. Jsny1010
    Hi Dani, i dont know if it helps but one of my huge symptoms is anxiety over things, and they are things that definitely should not cause my anxiety i've been given different medication to help, nothing seems to help unless im on a tranquilizer but thats just not a life for me lol.. I noticed after being off gluten even for just a week my anxiety level was...
  5. Jsny1010
    tTG IgG/IgA, Endomysial ABS IgA, Gladlin IgG/IgA.. all blood tests or entero does the fecal, if they come back positive most doctors want a biopsy to confirm.. some dont, but either way its the same diet knowing early is pretty great does your 6 year old have symptoms of celiac?
  6. Jsny1010
    In my limited experience the tTG IgG is Sensitive and Specific - all the blood tests are used because no one test will show positive in every patient. Depending on the severity of the damage biopsy results are a great way to confirm the diagnosis, but its not 100% that they will be able to see damage in cases where the celiac disease is in a juvenile form...
  7. Jsny1010
    I have almost the same issue, my symptoms dont usually happen right away - almost 18 hours later my stomach will cramp/turn and ill feel horrrrible for a day or so (after eating a large amount of gluten like pasta). I was gluten free for over a week and I felt amazing, no headaches, no stomach issues, normal digestion, no heartburn, the list goes on and on...
  8. Jsny1010
    Nah no worries, my daughter has eczema and asthma also its terrrible, so far no reactions to gluten *knock on wood*
  9. Jsny1010
    You are right, I did a poor job making the point of autoimmune vs non-autoimmune - NCGI or celiac disease, or even just Wheat allergy, best medicine is to just stay off of it.
  10. Jsny1010
    Im not super knowledgeable on the subject of NCGI vs celiac disease but I can say one thing, NCGI doesn't cause damage to your body, it is more of a reaction to not being able to digest the wheat or gluten and causes some discomfort, ibs symptoms etc. BUT Celiac causes your body to be flooded by antibodies and that is an auto-immune response - that causes...
  11. Jsny1010
    Your talking about.. Open Original Shared Link
  12. Jsny1010
    Ah yeah, no I understand that - I figured with these types of issues it would be good to monitor at some point to see if the blood work would come back normal after a while on this diet, honestly i've never dealt with any issues like this before - im use to going to the doc and just doing what they tell me to. i'll get that report and post that up here
  13. Jsny1010
    Well I've been on the diet for a week now, i feel much better all around - not 100% but its progress. I said I would go find another because this doctor wont acknowledge anything I tell him, he wants me to eat dairy this week, which will upset my stomach and than gluten next week which will do the same and come back to him with the results, after that who...
  14. Jsny1010
    Yeah no kidding, when he told me that I thought you have to be kidding me.. im having an auto-immune response to gluten but its not celiac.. ah yeah im going to goto another doc this one has already caused me enough grief I haven't had the Gene test, do I request that from my doctor or do I need to goto a separate company?
  15. Jsny1010
    Yeah, I did as much research and read alot of the clinical studies about the EMA i tested positive on those, my tTG iga/g was within the normal range but he didnt run a complete iga on me so without being a hypocondriac ive just let the doctors kind of give me guidance and the GI i have doesnt talk to me he just tells me the reports and leaves thinking about...
  16. Jsny1010
    My biopsy was negative for celiac, the doctor told me that my blood tests could be from an intolerance to gluten.. so he wants me to go 1 week without gluten (already doing that) and than add it back and do 1 week without any dairy and than see him again. Is it possible to test positive on EMA IgA, and Gliadin IgG High, and have that just be a false positive...
  17. Jsny1010
    Thanks for the reply.. True I didnt know how many things can be caused by celiac, headache's were a big one for me. I'll find some probiotics and see if that helps
  18. Jsny1010
    Hi Everyone, not sure if this is the right spot for this but I recently started the Celiac diet, its been 3 days now.. and for the last few days ive spent alot of time in the restroom is that normal? I'll have a normal bowel movement and than 2, 3, or 4 times with diarrhea is that normal? I had my Biopsy 5 days ago, and im still waiting for my results but...
  19. Jsny1010
    Im not sure if it helps but Celiac does have a link between type 1 diabetes and celiac, even if they dont diagnose it cant hurt to be on the diet, its a terrible feeling when kids are sick i wish you the best!
  20. Jsny1010
    It seems like alot of doctors dont want to think about celiac, my Dr and GI, focus on ANY reason I could not have it.. my GI kept telling me I probably just have lactose intolerance even though I've handled milk products fine up until about 5 years ago when Im guessing a traumatic experience triggered my issues, hope they listen to you or you find a more...
  21. Jsny1010
    Thank you everyone, Takala, yeah my GP told me "If the result comes back negative you dont have celiac" but I think some of the people on here have done more research and study on the bloodwork and celiac disease than he has.. i'll find out what they tell me on Monday, the doctor WONT tell me over the phone its been a nightmare this week, their "sedation...
  22. Jsny1010
    Thanks, I didnt realize that was the important part of the test, ive been mostly gluten free since December but im thinking i might as well go 100% off gluten and get rid of the issues I have with food!
  23. Jsny1010
    Oh and the ranges.. <11 <11 <4 <6 And titer 1:5
  24. Jsny1010
    Here are my blood test results.. Gliadin IgA Antibodies 7 Gliadin IgG Antibodies 28 Transglutaminase IgA 3.5 Transglutaminase IgG 4.4 Not sure about the endomysial its confusing but says Endomysial IgA. Positive REFERENCE RANGE: Negative. Endomysial AB (IgA titer) 1:10 titer. Reference Range: < 1:5 Not sure what that means. My regular...
  25. Jsny1010
    Will do, i'll see my GP tomorrow - i'll ask for a copy and see what it says and post it here, im glad there are web groups like this one weather it turns out im positive or not
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