ctenny

True, but I missed being at Woodstock.

At least my generation has Bonnaroo and Coachella.

Well, being born in the early 90s, I missed most of the good music that America has to offer (60s, 70s).

Ohhh! I should've added that It's the gluten that left it out, not me!

I wanna have the band play in the same room while I consummate my marriage... whenever that happens lol

And with the Mayan calendar ending in December, I don't think we'll have to worry about those 88 years.

Do the poll, talk about the band.

If you haven't heard of them, do not vote until you have heard atleast these songs:

*Wake Up

*Keep the Car Running

*Rebellions (Lies)

Welcome to the club! I've been diagnosed for 2 and a half months now.

Celiac is called the Celtic disease...

Haven't been there since going gluten-free, but since it's a smoothie place - what kind of problem could there be? Gluten doesn't normally come in a smoothie, does it? You should be safe. But I'd stay away from their cookies/snacks.

Stumbled upon this on youtube a few weeks back actually. I must agree, it's an awesome song. The lyrics are perfect and the singing/guitar playing is great as well! Great job and hopefully this'll bring more awareness to our disease.

And P.S. reveal yourself!

Thanks Bubba's Mom! I appreciate your answer. I suspect it may have been cc'd. It's a shame... as careful as you can be, you can never be totally sure you're always eating gluten-free and that's a bummer because I just want to heal!

I've been Gluten free for 3 and a half weeks. In my opinion, I've been pretty careful to only eat gluten-free products.

Just this past week, I've had vertigo a couple of times after sitting down/sitting up. I am also a college student and just during this past week have I noticed a couple times where I feel very uncoordinated and it feels as if my body is wobbly and with each step I have to additionally reassure myself to keep myself "up straight" so as not to fall over (left or right).

I had vertigo and ataxia a couple times before going gluten-free, but they were sporadic and few (maybe twice a month for vertigo but nearly daily for weird unbalanced walking).

Why do I still feel like I can't walk a staight line? I actually can walk a straight line but I have to focus on not teetering to the right or left.

What about the vertigo? Could it just be from vitamin deficiencies since going gluten-free? I think I'm eating a pretty balanced diet still.

I need to put a picture of me young self up right now. I'm 20 so my hair is in it's prime. Full auburn, I suppose.

It's interesting that Celiac is considered the cetlic disease. When did the Celiac gene develop and is there any advantage to it?

I need to put a picture of me young self up right now. I'm 20 so my hair is in it's prime. Full auburn, I suppose.

It's interesting that Celiac is considered the cetlic disease. When did the Celiac gene develop and is there any advantage to it?

bump

Umm as far as I am aware, I haven't had a reaction to MSG. I haven't kept a diet-record.

But main question is: gluten causing this, and will a gluten-free diet heal the issue?

bump

I was left unDXed for so long, but have been gluten-free for a year.

It is MUCH better, but not gone yet. I have faith.

Oh! I was scared for a second. I thought your issues were permanent .

I'm glad to hear they're improving. I can't imagine how good I'll feel a year from now. This is my second year in college and I can honestly say only one semester of it was enjoyable. This time last year everything started going down hill for me (symptom-wise), but since I've taken gluten out I guess I've hit the rock bottom and there can only be improvement from here. Good luck with your continued healing!

Mine burns and feels tingly. since 2008

Why didn't the gluten-free diet help?

"I know you can't have Ice cream, so I got you a malt"...

WTF

I swear, if anybody offers me a malt... I will... grrrr..

But we can have basic flavors of ice cream as long as they don't have ingredients containing gluten right? Like pure vanilla ice cream is still okay... right?

Maramelia,

I'm sorry your young son has Celiac. I'm 20 and was just diagnosed (does that mean I have just developed the disease or have I been gluten intolerant all my life and had no clue?). I hope he's doing well with the diet. And awesome! I'm 6ft and my mom, after learning that I had Celiac, and reflecting upon the great height of my great grandfather, said that maybe if I hadn't eaten gluten all along I could be ~7ft. Who knows... the sky is the limit - literally. It seems the gluten-free diet is working great for your son and that's the point. Thank God this disease is very manageable - it can be difficult but at least there's not amandatory medication. I'm in the same boat too... I really never noticed my GI symptoms. I never really considered them until I saw the list of Celiac symptoms. For me it was neurological so I was scared of having something worse (my genepool is littered with autoimmune diseases).

anna34,

I definitely plan on sticking with it. I miss certain foods, but that's life. It's not the end of the world that I can no longer eat x. The doctor says I have it and I trust his judgment. Hopefully, come this summer, after several months have passed, I will have noticed a considerable difference. The differences right now are so blurry that it's hard to acknowledge any change.

So, I've been on a gluten-free diet for just over 2 weeks now.

The most frustrating symptom I've had all along (for at least a year now) was having my tongue go numb. It's been difficult to talk, and to me it seems like I'm slurring my words. It also seems that at other times my mouth has an excess of saliva (so basically it's the opposite of Sjogren's).

Is Celiac the cause of the numb tongue/excess saliva that I'm sensing and that's been making holding out conversations hard?

How much longer do you think it should be before these annoying tongue/mouth related symptoms clear up? 2 weeks in and it's hard to tell if there's a great difference.

Does the numb tongue fall under "neuropathy"? If it is neuropathy and that means I have damaged nerves, then that will mean that the numb tongue will take a while to heal?

My doctor visits concerning the symptoms that led to a diagnosis of Celiac have been going on for a year. Just 2 weeks ago was I finally given the answer: Celiac.

I went to various doctors, in this order: General Doc, Neurologist, Rhumotologist, Gastroenterologist... it just goes to show that the symptoms of Celiac vary widely. I barely had the gastro Celiac symptoms, or atleast the gastric symptoms weren't the ones that bothered me and caused me to see a doctor in the first place.

What made me see the doctor was:

-numb tongue

-muscle spasms all over the body

-limbs falling asleep randomly

-others

Most of that has gone away. The main issue I still have (and has always been the most frustrating) is the numb tongue. It makes speaking hard.

Does anyone else have issues with their tongue going numb?

I had similar biopsy results...it's Marsh 1 on the Marsh scale, with the four Marsh stages as follows:

Marsh stage 0- normal mucosa

Marsh stage 1: increased number of intra-epithelial lymphocytes, usually exceeding 20 per 100 enterocytes

Marsh stage 2: proliferation of the crypts of Lieberkuhn

Marsh stage 3: partial or complete villous atrophy

Marsh stage 4: hypoplasia of the small bowel architecture (from Wikipedia Open Original Shared Link)

If someone is Marsh 1, why wait until they are Stage 3 or Stage 4 and it takes 4-5 years to recover? Perhaps medical science will come up with another explanation in the future, but I got a celiac diagnosis with Marsh 1, negative blood work and tremendous response to the diet (plus positive genes). With the health problmes I had at Marsh 1 (resolved now) I would have hated to wait to get to stage 3 or 4. However, my son's GI says that some GI's don't consider Marsh 1 to be celiac. Boo Hiss.

Ctenny, I'm glad that you accept that you are celiac and I wish you good health.

Thanks, for the response. I remember reading somewhere about the Marsh levels. Thanks to everyone who's posted so far. It's been great hearing your advice. My roommate made pizza last night... boy, that was tempting. But I didn't touch it!

I've not had any of my organs taken out. I'm sorry, I can't help you there. Hopefully, they'll let you keep what you have left.

As for the markers, that is a genetic term used to refer to alleles. You tested positive for having either of the 2 common Celiac genes (DQ2 or DQ8). This does not mean you have Celiac, by itself. Having these genes is required to be diagnosed with Celiac and it also predisposes you to either acquiring it or already having it. Being positive for the Celiac markers does give you a good chance of having it, and so with a positive markers test and other positive bloodwork/endoscopy, you could be a Celiac.

My symptoms weren't GI. At least, the GI ones weren't the ones that made me initially see a doctor. My issues were neurological, so I was surprised when I heard gluten/Celiac could be the cause.

I'm still a week into the diet...

I just ate there 2 nights ago for Dinner. I too had their "protein style" hamburger, and their fries (as they are gluten free). The menu said the fries were cooked in a common fryer, but the waiter and manager said they weren't.

I agree, the mayo did make the sandwich quite messy, but it was still a pretty delicious sandwich.