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MTsky

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by MTsky

  1. MTsky
    We have a completely gluten free deli in our small town and it is doing amazingly well! They started out kind of slow, but now they are always packed. They do not allow outside food into the restaurant to maintain the gluten free environment. They are not other allergen free, however. I am just so thrilled that it is here! Open Original Shared Link
  2. MTsky
    I used this cake recipe with good results http://www.livingwithout.com/recipes/gluten_free_vanilla_cake-1417-1.html I also made cupcakes with this recipe that everyone loved at his birthday party. http://www.52kitchenadventures.com/2012/05/02/gluten-free-cupcakes-with-nutella-cloud-frosting/ I used Gluten Free Mama Almond flour blend for both.
  3. MTsky
    I live in Bozeman and our town is amazing when it come to gluten free dining. I have not spent time in Big Sky since going gluten free, however. Yellowstone is terrible! No one has a clue what you are talking about in reference to gluten free food there. We spent the weekend in West Yellowstone this past winter and I starved for two days and finally risked...
  4. MTsky
    For my son's 5th birthday party last week, I did a big fruit salad, corn chips with a cowboy caviar type of dip and caprese salad skewers. Not typical kid food, but the kids all loved it! I was actually kind of catering to the adults, but the kids really enjoyed the food!
  5. MTsky
    I am so glad to find this! I had fallen in love with Mixed Chicks products and couldn't figure out why my head kept itching. Finally read the label on the leave in conditioner and it had wheat listed. I haven't found anything I love since then. I will have to try these out!
  6. MTsky
    No our GI did not tell us to go gluten free. She told us that he was fine and needed no special diet. I decided to try him gluten free on my own. If it makes a difference, his tTG was only a "weak positive". He did NOT get the full celiac panel done. Just the tTg and IGA. I tried to fight our ped on that one and he felt it was unnecessary to run the...
  7. MTsky
    My son is almost 5 and has childhood apraxia of speech. His speech therapist is convinced there is a connection. She says that she sees two other kids just like him who are celiac, small in size and have similar speech problems. I am really hoping to see an improvement in my son now that we are gluten free.
  8. MTsky
    He is currently just taking 1/3 capful daily. I haven't tried weaning him off of it or stopping it yet. I am leery of stopping it because when he has missed more than a dose or two in the past, he starts vomiting, and then he finally poops and all is well. I am thinking of maybe weaning down a bit and seeing how he does.
  9. MTsky
    Wow, sounds a lot like what we are going through. My son had a positive blood test and normal biopsy. His primary symptoms were very poor appetite, very small size and chronic constipation. I decided to take gluten out of his diet anyway and I have seen dramatic difference in his appetite and he has put on 2 lbs and one inch in just 4 weeks. I am almost...
  10. MTsky
    So those of you who have kids with celiac who had constipation, how long after going gluten free did it take for them to be normal? And did you just stop using miralax? At what point? My son was blood test positive, but biopsy negative. We took him off of gluten immediately after the biopsy, 4 weeks ago. In those 4 weeks he has gained 2 lbs and one inch...
  11. MTsky
    I just wanted to update this. My son had a biopsy done that came back as normal. It was done two weeks ago and we immediately took him off of gluten. I am very interested to see what happens now. In the past two weeks he has gained a little over a pound. In the 10 months prior to that, he had not even gained that much. I know that one pound is not telling...
  12. MTsky
    It is comforting to know that I am not alone in this. Thanks again for your input. I had not even considered thyroid. That is definitely worth inquiring about as well. My father is a physician and trying to get a hold of a ped GI to get their advice as well. Luckily, he seems to be doing just fine right now, even though for the time being we do not...
  13. MTsky
    Thanks so much! I will ask our doctor about testing them for DGP. That looks pretty promising as far as results are concerned. But, wow, up to a 20% error rate with a biopsy! That is part of my worry in doing it. We live in a fairly small area and there are no ped GI docs here and I am worried about someone doing the biopsy without having a lot of experience...
  14. MTsky
    Thank you all for your insight. My gut is telling me that we need to do a biopsy on him. When I got the first phone call saying that he was positive I was initially shocked and quite upset by it. It just made me so sad. After that reaction wore off, everything just made sense. I guess I am still in a state of denial about it all. For his future I need...
  15. MTsky
    I am new here and will try to keep this brief. Quick history: I, myself, have been gluten free since last summer. I had negative blood work, but due to my textbook celiac symptoms, my GI recommended me to try going gluten free. Within 2 weeks, I had put on almost 10 lbs and was feeling better than I had in ages. When I tried to add gluten back into my...
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