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Minette

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Everything posted by Minette

  1. Minette
    Our family eats a lot of brown rice (and even more since my daughter's diagnosis). Do I need to be seeking out certified gluten-free rice, or is just a bag of regular rice OK? (I know it's not safe from the bulk bins.) What about quinoa, or corn tortillas?
  2. Minette
    Grieving is definitely normal. I cried a lot when my 6 year old daughter was diagnosed. I just felt so awful for her, thinking of how her favorite thing in the world was to go to Noodles & Co. for mac & cheese. I still feel sad when I think about it. Our "blessing in disguise" was that it look so long to go from the initial bloodwork, which was highly...
  3. Minette
    My daughter was 6 when she was scoped. She had general anesthesia. (I'm surprised your doc will do it with IV sedation -- ours won't.) Most of her discomfort afterwards was from being intubated, not from the scope itself, but I guess they still have to intubate to do the scope (right?), even if she's not under GA. Anyway, she woke up grumpy, groggy, and...
  4. Minette
    Thanks for the suggestions! I started the thread and then forgot to check back for a while. I might try making my own (though I'll consider what you said too, bbuster -- thanks for sharing that). She started 1st grade yesterday and we learned that her classroom is peanut free. While of course I am supportive of other kids' food issues, it's tougher to...
  5. Minette
    My 6 yr old daughter has now been gluten-free for just over a month. This is the kid who lived mostly on Annie's mac & cheese, pizza, grilled cheese, and cheese quesadillas in her pre-celiac life. I'm happy to report that she will now eat an entire (personal-sized) gluten free pizza and polish off a big serving of Annie's rice mac & cheese! No...
  6. Minette
    Our grocery store doesn't sell the gluten-free Rice Krispies -- I bought some natural-foods brand "crispy brown rice puffs" at Whole Foods and was going to try making treats with them, but I don't have high hopes. I might wind up making Fruity Pebble treats too!
  7. Minette
    Before her celiac diagnosis, my 6yr old daughter would not eat any snack bars other than Zone bars (mostly chocolate/peanut butter, though she would eat fudge graham in an emergency). We used to buy them by the case at Costco. The bars don't actually contain any gluten ingredients, but they are made on equipment that processes wheat. So we're on the hunt...
  8. Minette
    I would order Tinkyada online before switching brands, if it came to that. It's the only one everyone in our family has been happy with.
  9. Minette
    I definitely get that. Everyone has been SO nice and supportive, yet even in being supportive, they just don't get it at first. Our very best friends ran out and started buying gluten-free chips and pasta and such to feed my DD when we're at their house, and I'm so grateful, but I had to explain to them all about not sticking their hands in the bag, not using...
  10. Minette
    DH and I and our other daughter have all been screened and were all negative. So we have 3 non-celiacs (at least so far) and one celiac in the house. I'm open to having a gluten-free house if it comes to that, but it would be a hard sell for DH and my other daughter. So far, my celiac DD doesn't have strong reactions (probably because she's only been gluten...
  11. Minette
    This morning at breakfast my husband saw that I was giving the kids their vitamins by dumping a bunch of vitamins into my hand, having each kid pick one, then dumping the rest back in the bottle. We've always done it this way, but he pointed out that I had just been eating English muffins. So now we need new bottles of all 4 kinds. Duh! Just curious...
  12. Minette
    With these bags of flours and baking mixes accumulating in my cupboard, I'm in need of a better storage solution. I bought one big Rubbermaid thing (4 liters, I believe) which seems like a good solid container, but because it's tall and narrow, it's pretty hard to measure the flour -- the one-cup measure barely fits inside and then you have to reach way...
  13. Minette
    I do use paper cups (which is handy because the paper sticks to the burned part and it pulls right off ). But yes, my muffin tins are dark. I think I generally put them on the middle rack, but I'll try reducing the temp and/or setting them on a baking sheet. I also didn't know that gluten-free flours don't brown as well. The muffins do brown, and they...
  14. Minette
    I'm not a big baker, but both my kids like muffins, so I bake them fairly regularly. So far the only gluten-free recipe I've tried is the banana bread on the package of BRM all-purpose baking flour. I just put it in muffin cups and bake until the tops brown (about 18 minutes). They taste fine, but the muffins always burn on the bottom. Is this a known...
  15. Minette
    Coincidentally, my husband just sent me her pathology report, which said "moderate to severe villus atrophy (modified Marsh type 3B)" in one spot and "severe to complete villus atrophy (modified Marsh type 3B-3C)" in another. So I guess it could be kind of a long road.
  16. Minette
    She was officially diagnosed about two weeks ago after her scope. She had a "probable" celiac dx based on blood tests back in March, but it took us a while to get through the rest of the process. Thanks for the replies!
  17. Minette
    I know I'm probably being impatient, but I'm just curious. Sarah went gluten-free 10 days ago and I haven't noticed a single change in either her behavior or her health (from what we can see). I assume it's too soon for her to gain weight, but I was hoping she would at least have more energy, be a little less whiny, and have a better appetite. I know some...
  18. Minette
    I agree about the fruit and jello -- if I'd been there and could have seen or asked how they prepared it, I would have said ok. It's just that I wasn't there and I didn't know, AND I had told them not to give her any food. But I'm hoping to be able to talk to the parents of the other gluten-free kids -- if they are comfortable with the way the camp is...
  19. Minette
    That's a good point. She stopped drinking milk about 2 years ago (her choice) because she said it made her stomach hurt. But she continued to eat ice cream and mac & cheese (and is still eating them after going gluten-free) and never seemed to have a problem with them. On the other hand, she ate mac & cheese literally ever day, so if she did have...
  20. Minette
    She doesn't eat blueberries, but she does eat a ton of gummi-fruit things (fruit by the foot, etc.). That was probably it. I wasn't really worried, just curious whether it was possibly related to giving up gluten or just random.
  21. Minette
    I haven't been monitoring Sarah's poop since she went gluten-free (6 days ago), but I happened to be in the bathroom while she was going yesterday, and it was green! I know poop can turn lots of colors for lots of reasons, but did any of your kids have this? She is also still really constipated, just like always. Not too surprising, since, except for replacing...
  22. Minette
    So, I told the camp director not to give her anything other than what we send. The very next day, someone gave her an applesauce. It was a single-serving in a sealed container and I'm sure it was fine, but still. The director was very apologetic and said it wouldn't happen again, which so far it hasn't. I did make one exception -- they were supposed...
  23. Minette
    That's kind of where I was leaning, too. I just feel bad for her because they do popsicles a lot, and it's one of her favorite "fun camp things." I was hoping I could still let her have that. I could bring a box of popsicles to keep in the freezer, I guess.
  24. Minette
    My 6-year-old Sarah went gluten-free on Saturday (celiac diagnosis finally confirmed!), so we're now on day 3. I had previously mentioned to the camp director that she would be gluten-free at some point, and the director was very understanding, said she had other gluten-free kids in camp (I don't know if they have celiac), not a problem, etc. She has said...
  25. Minette
    So, I used the pancake mix, but it was a little weird because it has leavener in it. They tasted OK, but were strangely puffy for crepes, and a little mushy on the inside. (The mix also includes sugar, which I don't normally add.) Next time I will plan in advance and buy some millet flour!
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