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Raywuwei

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  • debbiewa

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About Me

Blood test positive on 4/25/12. Biopsy confirmed on 5/11/12

The only thing I thought I could be diagnosed with was being a Beer Snob, until March when I had sudden onset stomach symptoms. The ZoomCare doctor I initially saw thought it might be an ulcer and referred me to a GI specialist. He doubted there was anything wrong, brushing off my instances of vomiting as food poisoning. He shrugged me off, so I figured everything was fine. The next week he left me a voice mail message, which I listened to while sitting at my desk at work. "Everything looks fine, no ulcer, though I tested you for a wheat allergy and it came back positive for celiac disease. DO NOT begin a gluten free diet, and I'll see you for your endoscopy, plus I'll add a biopsy to confirm." *Click*

I was dumbfounded, literally holding a half-eaten cookie in my hand as I listened to the message. I'd never heard of this before and the only wheat allergy symptoms I was aware of were an "itchy mouth" after drinking Blue Moon beer or other low-grade, poorly processed wheat. This symptom was something that doctors never took seriously. It's good to know that I'm not imagining things, though not being able to drink craft beer and just watching my diet in general will be quite a paradigm shift.

I can't wait to learn more about his community and hope to make some helpful connections! There is power, and knowledge, in numbers.

  1. For the first time since going gluten free about three years ago, I am living with a roommate who often eats bread (sandwiches, toast, pizza, etc). It has been really difficult but I didn't want to say no to the living situation when I know other celiacs live with gluten eating roommies. Through trial and error we have now started using seperate sponges...
  2. Just wanted to let everyone know that I called Simple Truth today (products of Kroger) and they said that all of their herbal supplements are gluten free
  3. Oooh, I was just informed of Amazon's magical toilet paper delivery! I will definitely look at what kinds of foods I can buy as well. Thanks!!
  4. I wasn't sure exactly which topic to post this under, but since our diet is really our only form of "treatment" I figured here would be fine. I am 26yrs old and have been struggling to eat a healthy and healing gluten-free diet for about three years. I still fail. Reading some other posts I saw people doing something similar to me: eating bad (but gluten...
  5. Geez, this forum never fails to scare me straight. I'm in my twenties and get lazy when I drink. I kiss boys who have been drinking beer or eat fries that may or may not have been contaminated in the oil vat. Drinking in general and ignoring the fact that I react worse to alcohol than normal people even though the distillation process kills gluten......
  6. Is that frustrating for you? I feel like if I am asymptomatic then it will be harder to know if I am eating properly, and harder to explain to people why I have to be so freakishly strict about avoiding gluten...
  7. I'm sure most people were sleeping, I was just freaking out... Thanks for your support!
  8. Pretty disappointed to not have any feedback on this. Though I have an update: I have not had any symptoms yet. This is almost more disconcerting than what I was afraid of going through. I have spent the last 2.5 years avoiding even the most microscopic amounts of gluten like it is the plague. And last night I ate it. I had a chunk of pice crust in my mouth...
  9. I have been gluten free post dx for 29 months. In this time I have had some weird instances of vomiting, mostly after making poor food choices while drinking, but I can never quite say what the culprit was. It would always be a cross contamination issue because I NEVER straight up eat gluten. But tonight I was eating pumpkin talenti ice cream with my...
  10. The weird thing is that I am not C. I drink my cup of black tea in the morning and everything moves alone fine. Could it be a lactose issue? I feel like I may be a bit heavy on the dairy these days. I don't have money to buy anything else since I already spent $5 on fancy tea I probably can't drink and I am unemployed :/
  11. Yes, they are Bob's Redmill certified gluten-free oats. I eliminated oats from my diet the first 6 months after my dx, then reintroduced them and had no problems.
  12. I have been feeling bloated for about two weeks. I have the slightly protruding tummy that feels tight after I eat even a little meal. My sisters and my Mom (who have tested negative for celiac) drink Smooth Move tea when they feel this way, so I bought some. I know the tea is gluten-free but now I am reading that stimulant laxatives an cause cramping and...
  13. I met the brew masters wife. She has been drinking the beer since he started making it about 10 years ago. She is a celiac, and she has had multiple biopsies to confirm that her intestines are healthy. I have never had a problem drinking it. Sorry you didn't feel well, I know most celiacs are afraid of the stuff.
  14. Thanks! If anyone is curious, I found Open Original Shared Link on their site.
  15. I have been dealing with anxiety and it is still hard to tell if it is a symptom of my celiac or not. It comes and goes, and to be honest, I eat out a lot. Usually tacos with corn tortillas and that is it, but sometimes I will have a gluten-free option offered from a kitchen that cannot say there won't be any cross contamination. Maybe I should be extra obnoxiously...
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