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PersianCeliac

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Everything posted by PersianCeliac

  1. PersianCeliac
    Hello, I was wondering for celiac parents with gene positive kids (DQ2 or DQ8) but celiac negative so far, how often do you get your kids tested for the antibodies ? and at what age did you start? I have a family history of celiac in my mom and maternal aunt, and planning on getting my younger one 2.5year old who carries the DQ2 (in trans...
  2. PersianCeliac
    Hello, Both my aunt and mom were diagnosed with celiac. My aunt had severe symptoms and biopsy showed Marsh 3C. mom no symptoms and biopsy showed Marsh 3B. Mom’s endoscopy and biopsy after almost 2 years gluten free was normal. my aunt had her follow-up endoscopy and biopsy 1 year after being gluten free. her biopsy was completely N...
  3. PersianCeliac
    Thank you for responding. did you have your miscarriages after or before celiac diagnosis ? my mother had 2 live births and 3 miscarriages before her celiac diagnosis !
  4. PersianCeliac
    Hello Ladies, I am a mother of 2 boys, the youngest is 1 year and 4 months old and has the DQ2. My mother and aunt both have been officially diagnosed with celiac a couple of years ago and are doing well on the GFD. i Have been tested Twice now and negative so far, and planning to get tested every other year. i am planning to have my...
  5. PersianCeliac
    Thank you for your response. Were your other non-celiac children screened via blood test ?
  6. PersianCeliac
    Thank you so much for taking the time to respond. You are absolutely right, i need to start looking at the glass half full as opposed to half empty. Thank you for this wonderful advise. It makes me feel better knowing about the experiences of others and looking at things from a different perspective. I appreciate it.
  7. PersianCeliac
    My mother and aunt were both diagnosed with celiac 5 years ago and both healed (follow-up biopsy done). They follow a strict gluten free diet in spite of its difficulty where we live. I got tested for antibodies (twice) and gene test and both were negative. However i carry DQ2.2, and my youngest son got DQ2.2 from me and DQ7.5 from his father, so he...
  8. PersianCeliac
    Both my mom and aunt were diagnosed with celiac around 5 years ago and are following the gluten free diet strictly in spite of living in a country with very little gluten free options and almost no awareness. i was assisting my mom with her diet and insisted she pays attention to cross contamination among other things. In fact, after learning of my aunt...
  9. PersianCeliac
    I was wondering how many of your family members got tested for celiac ? and how many ended up with positive or negative results ? how many tested for HLA DQ genes from those family members ? so far my aunt and my mother have celiac. their brother my uncle was tested and is negative, myself tested negative and my father as well negative. The...
  10. PersianCeliac
    I am joining the celiac community here to run a survey for an upcoming presentation on facts and figures concerning celiac disease in an effort to raise awareness of celiac where i live. i would appreciate if you can help by simply providing the following information as i need a minimum number to be able to include the figures in the presentation. ...
  11. PersianCeliac
    Hello everyone, i was wondering how many of you ladies have breast implants, and if you have had celiac before or after you got the implants. My aunt is also a celiac and had textured implants 10 years ago, and was diagnosed with celiac a few years ago, but she had celiac probably for 20 years and was never properly diagnosed. She has been having...
  12. PersianCeliac
    She never had any symptoms and was tested because her sister was diagnosed.
  13. PersianCeliac
    Thanks for your input. Have you had a repeat biopsy after being gluten-free ?
  14. PersianCeliac
    hi everyone, i was looking for input from those who have had a follow up biopsy after goin gluten free to check for healing. My mom had marsh 3B biopsy at diagnosis, with increase lamina propria inflammatory infiltrate (duodenitis). After 2 years on gluten-free diet, she had a repeat biopsy which showed normal villi and no sign of celiac. however...
  15. PersianCeliac
    My mom had her second biopsy after over 2 years gluten free. The biopsy says the villi is long on the periphery and there is no intraepithelial infiltrate. I guess this means her villi is normal now ? However, it says there is mild inflammation in lamina propria/duodenum. Is it normal to still have this sign of celiac on spite of norm villi now and over...
  16. PersianCeliac
    Hello Everyone, As i mentioned before, my mom and aunt were diagnosed with celiac 2 months apart ! My aunt had her second endoscopy after 1 year gluten free and it shower NORMAL VILLI ! from marsh 3c. My mom had ttg number over 800 ! And after 9 months gluten free it dropped to 8 ! Now it has been over 2 years since she went gluten free and wedneaday she...
  17. PersianCeliac
    Thank you for your response. You are absolutely right hs crp is a marker for risk of heart disease as well in addition to being influenced by inflammation. So my moms elevation could be heart or inflammation related. If you dont mind, what were your numbers on the test ?
  18. PersianCeliac
    Hello, My mom has been gluten free for 2 years and 3 months now, her follow up antibody test returned to normal after 9 months of diagnosis and she has a follow up endoscopy scheduled in two months to check if her intestine has healed. My mom had silent celiac so its difficult to tell if she has healed through her symptoms. She recently has a routine...
  19. PersianCeliac
    Hi Everyone, My mom (49 years old) was diagnosed with celiac 1 year and 4 months ago, she didnt have symptoms but since my aunt was diagnosed she had the test too and turned out she had celiac and endoscopy showed marsh 3b. She has been on a gluten free diet since then. Her repeat blood work 9 months after GFD showed normal results but only ttg was borderline...
  20. PersianCeliac
    hi everyone, i was wondering if anyone else had their c reactive peotein (CRP) measured at diagnosis and after going gluten free. I never had mine measured before diagnosis but after almost a year gluten free my crp is 1.7 on a normal reference of 0-3 and my celiac antibodies are all normal now after being waaaay off the chart. I wonder if the crp number...
  21. PersianCeliac
    thank you for the reply. my aunt had diarrhea all the time and after going gluten free for only weeks thw diarrhea went away and sje started gaining weight which she was never able to do. her follow up blood work is all normal
  22. PersianCeliac
    my aunt had her follow up endoscopy recently after one year gluten free and a biopsy sample was taken she was diagnosed witj celiac after having symptoms for 16 years and her initial endoscopy showed scalloping in all three parts of duodenum and her biopsy showed severe atrophy marsh 3C. now after 1 year gluten free strictly her endoscopy shows first part...
  23. PersianCeliac
    You dont have double copies of DQ2 you have DQ2 and DQ8 which also means you could be very sensitive since you have both celiac genes.
  24. PersianCeliac
    Yes both were diagnosed around 9 months ago. My aunt who is 47 years old is very very thin and never gains weight and had a problem with chronic diarrhea for 16 years ! And lots of gas build up and GI symptoms until this doc sent her for celiac panel. Her numbers were off the chart ! And her biopsy showed total atrophy. I read about the disease and found...
  25. PersianCeliac
    Which DQ2 genes do you have double DQ2.5 or DQ2.5 and DQ2.2 ?
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