Lfrost

36 yrs here, and I had to look up how to change my weight to kg.! 48.6 kg.

My son also has multiple food allergies. We decided to try to reintroduce peanut butter (his peanut allergy is small). We were thrilled that he did not present a rash this time, however, at night he had a night terror the first night we gave him peanut butter. He acted just like you described: crying, flailing, hitting, and inconsolable. The next night he woke up crying and had an accident. So, yes we have experienced something similar. I googled night terrors and food allergies and there seems to be a correlation between the two.

We had to wait for a while for our referral to go through. My ped's office told me the process should take a week, so if I didn't hear anything, call. So I did and somehow my referral had been "lost". After yet another week of waiting, I had to call again to find my referral had been "lost" for a 2nd time. I guess I should have taken it as a sign not to go to this GI's office. But they called me the next day with an appointment finally. I hope your offices are more organized than mine.

Oh my gosh! How frustrating!

Can you get someone to oder a KUB (KidneyUrtersBladder) x-ray? This will also show the intestinal tract and see what and/or how much "stuff" is in their.

That is one of the things that I am hoping to get through our GI referral. I hope the process does not take too long. Our doctor 'handles it from their end', so I don't have a number for a GI. We are supposed to wait for a call from the GI doctor. How long do you think we should wait before I start hounding the doctor?

Thank you for answering all of my questions! I didn't think pencil thin stools were a result of the Miralax, but I have never given him that much before. I do know that he still has a hard time even passing the 'pencil stools'. I have had to make a game of it with him of getting him to try to 'toot' on the pot (which causes him to pass the stool, too) and we make a big deal of belly laughing when he can make a noise. It is quite strange the things we find ourselves doing to make our kids feel better, you know?! LOL

No worries.

Sometimes I over google. I googled night terrors + allergies and there seems to be a connection, but I don't know if anyone else has experienced that before. I don't want to cause more night terrors and it was pretty coincidental. I was feeling pretty good with no rash showing up and it didn't seem to trigger his usual 'stuffiness' either. I guess I might try another peanut butter snack today and keep my fingers crossed for no reaction! Thanks.

We are doing the trial through the doctor's advice. We see an allergist on Monday. Also, his peanut allergy is pretty low. He scored .31 kU/L which is just under low. It falls under 'Clinical Relevance Undetermined' (0.10-0.34).

Then they have taken out the wheat earlier this year and I just found out! So red (Original) and blue bagged (Cool Ranch) Doritos are now ok.

Is this only on new bigger bags? I buy the 50 ct. chip bags at Costco and on the ingredients it still says the Nacho flavored Doritos (red bag) contains wheat. I haven't checked the bigger bags recently.

I have a quick question about poop if anyone is still following this thread.

So now that is has been 4 days since we fed Colton all of the Miralax, his poops are soft, but more solid (no longer liquid the last couple of days). My question is, his poop is still pencil thin. Is this because of the Miralax, or is this suggestive of continued blockage?

His doctor did feel his stomach and said it was soft and he could feel a 'normal amount of stool' in there (which was interesting because Colton's poop was all liquid up until that point), but if you have followed my posts then you know how highly I think of our doctor (sarcasm intended).

So my son has many other allergies besides wheat, peanuts being one of them. Prior to going gluten-free he never showed rashes or anything, he was just stuffy and always constipated. We still struggle with the constipation. Now that he is eating again, we have decided to trial peanuts again. While keeping a food diary, something caused him to break out in a rash. I assumed it was his peanut butter sandwich, but he also ate grapes and other things that day. His peanut allergy is pretty low, so his doctor had said maybe we should trial peanut butter again and see if that was it.

Yesterday we gave him a peanut butter sandwich on gluten free bread. No rash! However, last night he had a night terror and he hasn't had one in quite some time. Does anyone know if this could have been triggered by the peanut butter? Should we trial it again today and see if it happens again? The night terror did not last long, about 10 minutes, but I hate that nothing comforts him when he has them. He thrashes around crying and swings and kicks at anyone trying to help him.

Ok, so my doctor is still an idiot, but at least we got a referral! Thank goodness I insisted on my husband getting off work early and coming with us to my son's appointment.

So we got in there and talked about my son's improvement since cutting his allergies out, but our concern is with the constipation still recurring. My doctor thinks the improvement on the diet and the constipation is all behavioral?! I showed him pictures of my son's outbreaks in rashes after eating certain foods, and the doctor said 'that would be suggestive of allergies', but in the next breath went back to it all being behavioral and Colton will grow out of it, blah, blah, blah...

Everything I showed or argued was put on a deaf ear. Then my husband speaks up and says he thinks it is something more, something GI related. The doctor asks if we would like a referral for a pediatric GI at OHSU. Um, hello! I am standing right here and have been asking for a referral for months!!! In the next breath the doctor did have to add that he doubts a GI will find anything wrong, but if it will put our minds to rest then fine.

Anyhow, at least we have a referral now. Unfortunately, our doctor's office takes care of the referral process, so I can't switch doctors at least until we have the GI office call and get us in! As soon as we hear from them, bye bye doctor!

Thanks for the laughs Kareng!

I am really hoping you find some answers soon! Will you be pushing for allergy testing at this appointment?

Move to Vancouver, WA. You don't pay state income tax (Oregon), and you can shop in Portland and not pay sales tax (Washington).

LOL, Best of both worlds! When I was in high school my friend's mom (they lived in WA) used to have me come up to shop at Vancouver Mall with them for school clothes so I could show my Oregon ID and not pay sales taxes.

My friend's daughter lives in Portland. She just graduated from medical school there and she says it is paradise. She sends me pics and well, it sure looks like it.

It's on our list too, J.

I must say, I was actually born in Florida and then my family lived in Alabama. I was way too young to remember any of it. We have lived in Oregon since I was 5 and it makes it very difficult to visit other places without feeling way too hot! I love that there is not much humidity, because I cannot stand to 'glisten' (since girls don't sweat). I think the Willamette Valley is one of the only places where you will use your car heater in the early morning, the AC in the afternoon and the heater again at night!

I also heard that Oregon is one of the places that sells the most sunglasses since we always misplace them during the fall/winter/spring months when we don't use them everyday! It doesn't take too long to grow webbed feet!

I Just wanted to update everyone. The poops are thickening (no accidents today) and my son ate a great breakfast, asked for a snack between breakfast and lunch, and is currently devouring his lunch. His bum is also no longer sore. He says his tummy does not hurt and he is doing great.

Who would have thought he could make such a turn around after a day of the runs!

I just wanted to say thank you again for all of the support, concern, and advice. I cannot stress enough how great it is to have people out there who not only care, but listen and just get it!

Currently 59 degrees at 9:00 am in Oregon. Supposed to get up 82 today! We still have lush green grass and no sprinklers yet this year!

I am a teacher at a school and while most teachers and school personnel will work with you and accommodate, A 504 is still as good idea. I would particularly add into the 504 that the people who work with your child are 'educated' about your child's needs. There are many people who have never even heard of celiac before.

What is ravenwood?

Ravenwood is another member on this forum.

I would be very interested to hear if you find out any information on the red burning skin on the backs of your hands. My oldest daughter used to get this often, usually in the wintertime. Her doctor just dismissed it as eczema, but I never really bought that. After a few years, she started getting a similar rash on her neck along with her hands.

The only thing that she said helped was the spray on Eucerin cream.

There is, I recall, an opportunity for a medical expense claim in the US, but I do not know anything about the details. Maybe someone who files a Form 1040 can comment.

If I remember correctly, with the medical expense you have to itemize your deductions. If you just claim the standard deduction, it would not matter. If you do itemize, I believe that it then depends on how much you make as to whether it makes a difference.

I am not 100% on this, but I know we were checking into since we put 3 kids in braces last year!

Lfrost,

Smoking tobacco does, for some, suppress celiac symptoms.

I am almost hoping that it is celiac related! I REALLY do want to quit, but when I did (5 years ago) I had not heard of Celiac, so didn't know about gluten free. The canker sores began 7 months after quitting and I suffered through them for about 8 months before starting smoking again!

My mother is in Canada right now and has been hunting down a home test kit, but hasn't found one yet. (she is skeptical, but willing to do the home test). She has Ulcerative Colitis, hypothyroidism, arthritis (hip replacement surgery this coming February), chronic canker sores, breaks bones easily (currently in a boot for a broken toe). Basically, if she tests positive I am going to quit and will retest for Celiac. We might also then pursue the testing with my son. Also my older children would then be tested.

So I guess it all rides on Mom's diagnosis! LOL. If she can't find a test kit while in Canada, I will just buy her one off the Internet!

Try the Open Original Shared Link? I think you're looking for something called Celiacsure?

Yes, that is the test (or bio card), but don't they actually have them on pharmacy shelves? Since she was in Canada, she was just going to pick one up.

From what I understand, IgE antibodies are what are called 'true allergies'. These allergies cause immediate reactions and at their worst can cause anaphylactic shock.

IgA and IgG antibodies show food sensitivities. These reactions are not immediate and can take up to 3 days to develop. Here are some references that I found:

Open Original Shared Link

Open Original Shared Link

Your doctor probably ran an IgE allergy panel on your daughter.

Also, the food allergy tests that were run here look like they were testing specifically the proteins in the food.

I hope this helps!

Thank you. We did get an appointment with an allergist, but not until the 17th. I called my human resources department for my work to see if we need a referral to a GI, but she hasn't gotten back to me, yet.

I have been doing more research and the more I do, the more I think we need to get him in to a GI. I mentioned before that what started us on allergy testing was the fact that he started vomitting each morning for a month straight. When we found his allergies, I thought that was it. The weird thing was that his vomit actually smelled like poop. Now I read that that means SEVERE constipation. Even doing this 'clean out' it makes me worry that we might be dealing with a blockage of some sort. So, we see his 'doctor' on the 11th and the allergist on the 17th. Between the two, someone better get us an X-ray, or better yet, a GI! I am debating just taking my boy up to urgent care (even though there isn't anything so 'urgent') to see of we can get referred!

Is the Mt. Dew colored stool going to be liquid, too? The boy's poor bum is hurting right now from the liquid poops. We have been putting A&D on it.

I had heard that home test kits for Celiac Disease were available in Canadian pharmacies. My mother is up in Canada and went to 3 different pharmacies, but each said they have never heard of them. One even told her they were only available in US pharmacies. Was I mistaken?