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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Ditto. Some labs have a normal range of 0-2, whereas others are 0-20. You'll need your reference ranges to know where you stand.
  2. nvsmom
    It appears to be hashi's. I don't appear to have any food allergies, just celiac disease and lactose intolerance. When I started taking natural desiccated thyroid (T3 and T4 combo) it caused massive hair loss - this was about 9 months after going gluten-free, and after my hair had thickened up a bit. My hair recovered some after my body got used to...
  3. nvsmom
    Mine thickened up a bit when I went gluten-free but my hypothyroidism balanced it out again fairly quickly. LOL
  4. nvsmom
    Good point!
  5. nvsmom
    Celiac testing is different than allergy testing: false negatives are more common that false positives. With celiac disease blood testing, the specificity is usually around 95%, which means only 5% of people get a positive result that was not caused by celiac disease, whereas the sensitivity can range between (approximately) 20 to 95%, meaning these tests...
  6. nvsmom
    I find (and this is just my experiences) that when my autoimmune system flares up, whether it is from a glutening or some other AI problem, it often feels like an illness. Often I'll describe the feeling as "flu-ish" or like I'm coming down with something but never get the full brunt of the illness. The difference for me is often how sick I get. When...
  7. nvsmom
    I agree. Test first and then go gluten-free if at all possible.
  8. nvsmom
    It can take months to a couple of years for the autoantibody levels to drop to normal. Until that time, his body will still be under attack so symptoms like nutritional deficiencies, anemia and slow growth may take some time to improve. My guess is that he'll improve in a couple of month to 15 months from now. Sometimes growth doesn't improve much...
  9. nvsmom
    I hope you are feeling better soon too!
  10. nvsmom
    That was awesome! LOL
  11. nvsmom
    Yeah, I'm afraid that the others are right. A celiac does not always get extreme symptoms from a glutening but exposures will damage your health unless you are very careful to avoid cc. Anything under 20 parts per million (20ppm) is deemed safe for the typical celiac. Anything more than that, which works out to approximately one crumb of bread...
  12. nvsmom
    Yeah! Finally, some closure!!
  13. nvsmom

    ARCHIVED I Want To Cry.

    nvsmom replied to Shade's topic in Coping with Celiac Disease

    ((HUGS)) You have had a rough go. How unfair to you.... I'm so sorry that you've had to go through that. The other ladies gave some good advice, so I'll just send you my best wishes. I hope you start feeling better soon, and that things turn around for you this spring.
  14. nvsmom
    Like Cyclinglady said, damage is rarely visible during the endoscopy. Sometimes there is a bit of redness, that's it. With so many positive tests, and tests that are as much as six times over the normal limit, I would say that there is little doubt that you have celiac disease. The tTG IgG does catch some celiacs, but it can miss as many as 60% of all...
  15. nvsmom
    Most seem to be done in a week or two. The EMA IgA takes the most time because of the titre (dilutaions).
  16. nvsmom
    ((hugs)) This report discusses some of the biopsy descriptions on pages 7-10: Open Original Shared Link Stage 3 is usually needed for a celiac disease confirmation, but many doctors seem to accept stage 2. Stage 1 is often early celiac disease but doctors won't sign off on a diagnosis with that. I'm sure you'll find many offers of help. Some...
  17. nvsmom
    LOL I don't like doctors much either. I have to write everything down, in the order I want to say it, or I get flustered and forget things. My new doctor is a much nicer human being so it's a bit easier now than with past doctors, but still... I turn beet red as soon as I start talking. I'm 41, you'd think I would've outgrown that by now. LOL Many...
  18. nvsmom
    Understandable. Good luck!
  19. nvsmom
    Your GP should be able to order all the tests I've mentioned, as long as they are willing to listen to you that is. Try to get a copy of your test results. I had no idea how badly my health had been managed by my doctor until she retired and I got my records from her - there were so many things that should have been looked into more closely, including...
  20. nvsmom
    I luckily did not have depression as a symptom, but I did have low energy. I would say that my fatigue got worse before it got better. I experienced a withdrawal when I went gluten-free, when I was very tired, moody, and cranky. It wasn't a fun time. After a month my energy increased by a lot but then I had a return of arthralgias, which always is proceeded...
  21. nvsmom
    LOL I understand that. When I walk through a bakery or the flour aisle in the grocery store, I feel like I am surrounded by "evil gluten". LOL I know that it is perfectly safe but I still get a bit of the heebee geebee's. Gluten just needs to be washed off. You should be safe if your home is gluten-free.
  22. nvsmom
    The tTG IgA (tissue transglutaminase immunoglobulin A) test can have different ranges. Some go from 0-3, 0-4, 0-5, 0-9, 0-14, or 0-20. You'll need the reference range to know where you stand. Did you get the total serum IgA run? If you are low in IgA (not tTG IgA), which 5% of celiacs are, then your IgA based celiac disease tests (tTG IgA, DGP IgA...
  23. nvsmom
    You should be fine to be tested after only 4 days gluten-free. It usually takes weeks, and sometimes months, for autoantibody levels to drop to normal. If it worries you, just wait a couple of weeks and eat 1-2 slices of bread daily. I agree that you should get your thyroid checked, but get it checked thoroughly. I have Hashimoto's, but I tested as...
  24. nvsmom
    Eight weeks is a long gluten challenge for the biopsy. Most doctors go with two to four weeks, with a few going with six. Because yours is so long, you can probably eat the minimum amounts of gluten needed - don't overdo it and make yourself sicker than needed. Most doctors ask for 1/2 to 4 slices of bread (or equivalent) be eaten per day. I think...
  25. nvsmom
    I'm one who skipped the biopsy. I had undeniably positive tTG IgA and EMA IgA, and my symptoms and family history supported a celiac disease diagnosis. My doctor said I could pursue the endoscopy but he was comfortable diagnosing celiac disease. If you are happy to go gluten-free now, and your doctor is willing to diagnose celiac disease based on...
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