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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    That TSH indicates hypothyroidism. It really should be close to a 1. I don't know your T4 range so I can't comment on that. When you get labs done, get a free T3 and free T4 along with the TSH. The free T's will tell you more than the T4 or T3 will. Good luck!
  2. nvsmom
    You would need the normal range of the serum Iga to know if your 0.4 was normal. Most labs have ranges into the hundreds so I suspect that your lab is not using the typical range. Open Original Shared Link The tTG IgA is not perfect and can miss up to a quarter of all celiacs. It really is a good idea to get the tTG IgG, DGP IgA, DGP IgG, and maybe...
  3. nvsmom
    Do you have any good keto resources or links? I'm always looking for more info and motivation.
  4. nvsmom
    I tend to dabble with low carbs but then break it with something starchy or sugary before I truly get into ketogenesis. I am trying to get into ketogenesis in the next few weeks. I am a recovered celiac but I have other issues (arthritis, fatigue and migraines) that make me suspect other AI diseases could be affecting me. I'm hoping it would help. Plus...
  5. nvsmom
    I find it helpful to be proactive. I don't let myself get into situations where I'll be sitting hungry while others eat. I always bring food with me when I go out. I will bring some dishes to a dinner and people's houses and turn it into a bit of a potluck; it costs more, and I'm the one who always brings the most, but I can eat and enjoy myself. I will...
  6. nvsmom
    I'm glad you got a firm diagnosis. Many celiacs find it best to avoid restaurants for the first few months gluten-free. I would guess that celiacs are glutened about a third of the time that they eat food prepared by others. If you do eat out you will lessen your chances of being glutened if you stick to the higher end restaurants. Wishing you a...
  7. nvsmom
    The gene tests for DQ2 and/or DQ8 are pretty good at letting one know if they are in the higher risk category for celiac disease. About 97% of celiacs have the genes, so if you don't have them it is unlikely that you have celiac disease, but it is not impossible. We do have one of two people in the last few years who appear to have celiac disease without...
  8. nvsmom
    LOL Good update. I'm glad it was nothing! Annoying that he caused you so much stress... Dud is right! LOL
  9. nvsmom
    Looks good to me too. You may want to request the tTG IgG (Tissue transglutaminase IgG) if you can. It's not the best test for celiac disease out there but it can occasionally catch a celiac that the other tests miss. If you can't get it, you are well covered. My labs also do not run the EMA IgA unless the tTG IgA was positive. The EMA IgA is very...
  10. nvsmom
    I agree. It really varies a lot between people. Over all though, the longer a celiac eats gluten, the most consistent and frequent symptoms tend to become.
  11. nvsmom
    I didn't get these links on here in my last post because I was on another computer. This journal article shows that the sensitivity of the tTG IgG can be as low as 40%, which means it misses up to 60% of celiacs: Open Original Shared Link This paper shows the DGP tests are very reliable (pages 11-12):Open Original Shared Link And says on page 12...
  12. nvsmom
    That was very true for me before I was diagnosed, and in the first year after going gluten-free. Sometimes I would have symptoms and other times I was fine... Actually I still get like that but with less frequency.
  13. nvsmom
    Eating safely as a celiac is a lot of work. Even though you are not gluten-free yet it looks as though you are taking good care of yourself and very conscious of you diet. I'm sure you'll do well once this biopsy is over and done with!
  14. nvsmom
    I would guess, yes, to a certain extent. When my autoantibodies were still slightly elevated at about 9 months gluten-free, I still did not feel well. I was better in SOME symptoms but others hadn't changed (like constipation) and some were just partially better. Symptom improvement, and types of symptoms, are slightly different for everybody so it is...
  15. nvsmom
    The test diet period is usually to judge symptoms and how they have changed on a diet. For the gluten free diet, one usually needs 6 to 12 months to judge the effect it is having on symptoms because so many symptoms will not improve in that first half year, often arthritis, neuropathies, ataxia, comprehension and mood issues. The 1-3 years is how long...
  16. nvsmom
    I doubt you will continue to lose 3.5 lbs per week for much longer after you go gluten-free (I assume you are still eating it in preparation for the biopsy) but the weight loss may continue for a while after going gluten-free... perhaps a few weeks or even months but it will taper off. It won't stay at 3.5 lbs per week. It will stop, but it may take time...
  17. nvsmom
    Try to remind yourself that they are coming from a place of ignorance. Hopefully they would behave more kindly if they fully realized how hurtful their behavior was. Still... It makes me want to serve her something that most people find distasteful, like tongue, and then act insulted when she won't eat it. LOL
  18. nvsmom
    I agree. With those test results, there is almost no chance at all that something other than celiac disease is the root problem. I had the same two positive tests, with similar numbers, and I chose to skip the endoscopic biopsy because I was so sure (as was my doctor) that I had celiac disease; plus I know the endoscopy can miss a large enough minority...
  19. nvsmom
    Is your doctor willing to diagnose him with celiac based on the positive tTG test? If so, the scope isn't really needed for a diagnosis. The tTG IgA test is specific to celiac disease about 95% of the time. That means that maybe 1 in 20 positive results are caused by something other than celiac disease (usually diabetes, crohn's, colitis, thyroiditis,...
  20. nvsmom
    I was going to guess xylitol too. The artificial sweeteners can often cause stomach upset and the D. Welcome to the board.
  21. nvsmom
    I think your doctor was pretty clueless to rely on only the tTG IgG test to detect cs in a child! To begin with, the tTG IgG is not very sensitive and can miss as many celiacs as it catches. It is the type of test that can NOT rule out celiac disease because of its high level of false positives. Also, the DGP tests are the best tests for detecting celiac...
  22. nvsmom
    Sad... Maybe they need to hit rock bottom, hope it doesn't kill them when they are down there.
  23. nvsmom
    One third of men cheat? Wow. That's just... rather pathetic. So order a manly steak with potatoes and egg, which a whiskey to go along with that... I don't get it.
  24. nvsmom
    I agree. it could be either one. If the stomach upset lingers for a couple of weeks, I would assume it was gluten. If he gets a fever and runny nose, it was a virus or bacteria. Either way, I hope he feels better soon.
  25. nvsmom
    LOL I would just say that you cannot eat gluten for health reasons, because you will become sick if you eat it. You could also state that you were tested for celiac disease and now have to eat gluten-free. Let them assume what they want. Or just say that you were diagnosed NCGS and must eat gluten-free on the advice/orders of your doctor. All...
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