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Hornet

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Everything posted by Hornet

  1. Hornet
    One other thing. As far as I know, there is no formal referral process for a 504. It is a federal accommodation plan for general education students. It is completely unrelated to special education, which requires many formal issues such as a psych eval to see if there is a learning disability. Be sure you don't get the issues confused as the departments and...
  2. Hornet
    Have they gotten sick frequently and miss a lot if school. Accommodations need to be reasonable to the student and illness. I think anything relating to food, cross contamination is important and perhaps a health class should be done to teach kids about Celiac, so they can both understand it and that they cannot catch it. It is best for teachers and cafeteria...
  3. Hornet
    From my research xanthan gum gum can come from soy, corn or seaweed. It most often comes from soy but not listed as an ingredient. The only way to find out is by calling the manufacturer for the info. I have a soy issue and found this out the hard way. Be very diligent in checking out all ingredients and don't assume they are gluten or soy free if it is...
  4. Hornet
    I saw Dr Leffler one of the big guns in Boston. Gave a list of all the symptoms I'm having. Not sure what I have. Had a systemic allergic reaction to a drug I've taken 100's of times and everything makes me itch. Have been gluten-free since May which he did not think was very long. He did several blood tests including the genes and wants me to do the camera...
  5. Hornet
    Self diagnosis is not safe or healthy. You could be doing your body more harm than good. Yes all those things will change stool color, but you need an MD and maybe a nutritionist to help you do what's right.
  6. Hornet
    I have a new problem with soy and I have learned that it depends if it is the soy protein that is used. My understanding is that is where the allergens come from. I don't know why this soy garbage is permeating the gluten-free food and so many others. Processed soy uses all kinds of chemicals if my sources were accurate. I try to avoid it all together. If...
  7. Hornet
    An allergist/immunologist would be the one to make this determination. They can do some through blood tests and others through skin tests. If you don't want to do that you can eliminate each food one at a time and keep a log of your reactions. If you do it all at once, you won't know which one you are either intolerant of or allergic to. Hope this helps...
  8. Hornet
    I avoid all labels that say gluten-free but are not made in dedicated gluten-free facilities. I don't know in reality why it can be called gluten-free if there may be traces of gluten, soy or other allergens. Ultimately you have to decide what is best for you and if eating traces of wheat poses a problem for your health.
  9. Hornet
    Lots and lots of pop up food allergies, weight gain, worse constipation, migraines, lots of itchiness and benedryl. You are not alone. Everyone reacts differently and I am told it can take years for your gut to settle. Hang in there and feel better!
  10. Hornet
    I am not an MD and I believe you need to get your medical ppl together or see a different GI doc for a second opinion. I can't speak for others who will reply, but I would not change anything until you meet with your doc and discuss what is better, what isn't and get these questions resolved. Good luck.
  11. Hornet
    I am going to see an MD for a dx in a few weeks. I am told to stay on my gluten free diet until I see him. Can someone provide an accurate list of lab tests by name do I can discuss these when I see him. I have read look the sections and haven't come across a specific list. Thanks for helping me out.
  12. Hornet
    I started with severe stomach pains under my left ribs. One day I could eat gluten the next day terribly sick from it. Told to start an elimination diet. Out of the blue got suck from soy. I have had all sites of issues like fibromyalgia, iron defiant anemia and the latest is to get an itchy burning face, feet and eyelids whenever I eat anything, including...
  13. Hornet
    Hi are you the one who was to see Leffler at the BI CELIAC CENTER in Boston? I was told he only sees patients on Fridays!!! Are you are you appointment was with him or Dr Kelley? I only ask because I could maybe see him sooner. Good luck
  14. Hornet

    ARCHIVED Celiac Specialists In Boston

    Hornet replied to Hornet's topic in Doctors

    Thanks. I have an appointment with him in a few weeks. Hope he can helP me with all of my strange symptoms.
  15. Hornet

    ARCHIVED Celiac Specialists In Boston

    Hornet posted a topic in Doctors

    Has anyone had any experience pro or con with Dr Daniel Leffler at BIDMC? He is the head of the department.thanks.
  16. Hornet
    I keep tweeting Scott because I see no option to introduce a new topic or get in on a thread like asking about a dic? Please email me. Thanks
  17. Hornet
    Well this is a club I too am in! Who would know there was soy in so many gluten-free products. I get pain and an itchy face. Do you ever get itchy reaction? I am not yet diagnosed with anything, but have extreme GI issues and these pop up out of know where allergic reactions to foods and medications. One day I am fine with yogurt, next day my face it itchy...
  18. Hornet
    I have always been constipated since before I became gluten intolerant. I take a Maalox type product 1-2 x daily and milk of magnesia at night. Sometimes it works and others not. There is Smoothe Mive Tea that hasSenna ion it. The longer you steep it the more you'll go. I had an allergic reaction to the senna. Activated charcoal helps with gas and bloat....
  19. Hornet
    Interesting. I am going to see Dr Leffler in Boston and have been gluten-free for a few months. They told me that if you have the genes it doesn't matter if you are eating gluten. Either you have it or you don't. I agree about all the tests but the only one that I was told was changed by being gluten-free is the unreliable IGA (if thats thr correct name...
  20. Hornet
    You can ask your MD if activated charcoal is right for you. It will eleviate gas. It has helped my gurgling. It must be taken one hour before or after any other meds as it will reduce the effectiveness of other meds. Good luck.
  21. Hornet
    Does it have a gluten-free setting?
  22. Hornet
    I tend to have a more conservative approach. It's not a question of being wrong. It's a question of asking the MD why you need these tests, what will doing them tell you that is new or different and how they might change the outcome rather than just going on the diet. This is not a dx to fool around with. I am not a fan of any invasive tests, so I want reasons...
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