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GlutenFree-MLDub

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Everything posted by GlutenFree-MLDub

  1. GlutenFree-MLDub
    It's true that a nice restaurant wouldn't use that 'mirin style' stuff. Open Original Shared Link is one of the nicer ones around and they use mirin to season their rice, but they cut it with soy sauce. Another restaurant I was at a couple years ago told me the brand of the rice vinegar they use (and it was a nice place as well), but that brand of rice vinegar...
  2. GlutenFree-MLDub
    Ah, here we go. This mirin has fermented wheat protein as an ingredient. (You have to click on the 'nutritional info' link to see the ingredients) It doesn't indicate why theirs has soy sauce in it, but it's some evidence that it exists. I'm glad I finally found this. Another restaurant showed me this before and a the time I didn't know what mirin was so...
  3. GlutenFree-MLDub
    I knew this was a questionable area and haven't located an exact answer on the forum here, but I just found out a little bit more tonight at a sushi restaurant in Bellevue, WA. Awhile ago, I discovered there is a rice vinegar that contains a gluten ingredient. I can't seem to find that now, but will keep looking. In the meantime, this restaurant wouldn...
  4. GlutenFree-MLDub
    I keep thinking it can't possibly be the food from shared equipment because my TTG antibodies were only mildly elevated when they were. And I had three clean biopsies and a fourth that showed mild flattening and broadening of the villi. I can't seem to accept high sensitivity like this when the tests run on me had trouble finding it. I may have to start a...
  5. GlutenFree-MLDub
    I'm pretty sure I've now been glutened twice by Trader Joe's products that were made in shared facilities. How can I know what products I can try? I really don't want to be so vigilant. Once, I marinated chicken with their Romano Caesar dressing. SICK. Very sick. Then, I ate their black bean chili... also made in shared facility with wheat. Again... SICK...
  6. GlutenFree-MLDub
    My issues are severe enough that I'm not sure my ND is going to be enough. I had severe neuro complications. I'm not sure if Dr. Wangen can help me to the degree I need either. Part of me wants a celiac specialist from one of the centers to tell me that what I've been experiencing the past few years can all be attributed to untreated celiac. Even though I...
  7. GlutenFree-MLDub
    I really needed to read this post right now. I was going to write a post, but never know where to start. I can't tell you how to deal with what you're dealing with because I'm looking for the same guidance. I'm not going to be an inspiration right now, but knowing there are other people out there like me is helping. I have lost the past year and a half of...
  8. GlutenFree-MLDub
    I've been reading and searching and asking since I've started ditching stuff from my household and this is one topic I can't seem to get a straight answer on. What IS the deal with this stuff? I read on the forum somewhere that one of the moderators/admins said he didn't think vitamin e from wheat would be a problem (although don't quote me on this)...
  9. GlutenFree-MLDub
    I don't have Crohn's, but have a couple friends who do. They tend to eat gluten free when they're having flare-ups, but said that honestly, when they're having a flare-up, it doesn't matter what they eat, it doesn't get better. And when they're NOT having a flare-up, it ALSO doesn't matter what they eat. Seems frustrating. One of them used to take the medication...
  10. GlutenFree-MLDub
    Thanks Susan for the welcome! I'm going to keep Dr. Wangen in mind. Currently my insurance covers 100% in network, but that is going to end next year at which point, it may not be that much different to see someone out of network. I'll wait and see. I keep hoping there's a Peter Green type doc here, but it doesn't seem there is.
  11. GlutenFree-MLDub
    I'm glad you mention this! Particularly for young girls to read. It really is true. I think someone who's been your boyfriend/husband for awhile and is persistently not accepting your needs on the Celiac front is a candidate to be kicked to the curb. But I think as we all know, it's hard to accept some of the requirements of this disease... even for ourselves...
  12. GlutenFree-MLDub
    Hi, Does anyone know of a 'real' celiac specialist in Seattle? I know about Driscoll... and he's not what I'm looking for. He told me not to worry about my Celiac because I had a biopsy after a month on GFD last year and it was clear. I had records in my hand from Columbia 2004-2006 (from when I lived in NYC) which stated a Celiac diagnosis (although 'mild...
  13. GlutenFree-MLDub
    Everyone here has good answers for your questions. The one thing I'll respond to is about the alcohol. I have no idea for sure, but I have lost my ability to tolerate alcohol. This happened BEFORE I was gluten free though... in the last couple years. I have read that this can happen with leaky gut (which is effectively a damaged gut that allows stuff to leak...
  14. GlutenFree-MLDub
    Oh. And the guy is really nice so far - I think he is understanding-ish... but when you're not attached to someone, wouldn't you rather date someone who doesn't have a thing like this? Like he doesn't drink because he's in AA... and I'd probably rather be with someone who doesn't have that, right? It's just hard to drop bombs on people you're new to dating...
  15. GlutenFree-MLDub
    So, since I didn't have any gluten, do you all think I probably got the stomach ache from the guy's 'filthy' mouth? How do you know what's causing issues for you when there are other variables like foods or cosmetics that may be giving you problems? Do you think people who don't get symptoms in the same situation are just not as sensitive or not...
  16. GlutenFree-MLDub
    I drink a lot of tea as well. I buy loose leaf tea and put it in tea bags (that you can buy online or in Asian markets sometimes). I also use a mesh tea ball like thing. In my investigations into the teas I drink most (I wrote to the companies), David's Tea (from Canada) and The Tao of Tea (I think from Portland) have assured me that their teas are gluten...
  17. GlutenFree-MLDub
    Well, I'm oddly shy about writing personal stuff online, but I need some advice or something! I'm newly acknowledged Celiac (I was biopsy diagnosed in 2003 and ignored it with the help of my own denial skills and some idiot doctors). Now I'm gluten free since the beginning of June and feeling better, but oh man do I have reactions to CC! I'm also single...
  18. GlutenFree-MLDub
    I am able to tell I've gotten glutened because I start out by getting dizzy. Then I get really depressed and fatigued. I also tend to get a little weepy, but that may just be because I feel horrible when it happens and start pouting that I'm going to be sick for the rest of time. However my doc said weepiness goes hand in hand with the gluten. I sometimes...
  19. GlutenFree-MLDub
    Thanks for the reply. The ingredients (most of the time) are listed in English. I'm thinking about cross-contamination in those situations. Is it likely? I'm curious if anyone's tried to communicate the woes of using the same equipment to a specialty Asian market? I could certainly do the dry ones. I had them the other night.... not my best work, but I'll...
  20. GlutenFree-MLDub
    Hi. I'm new to the forum, but have read it on and off for awhile. I decided to start participating because I need to be very strict about gluten it appears. I don't currently have a good support group and making my own food has never been my 'thing'... so cooking is a bit of an adventure and a challenge right now. Anyway, I was wondering if any others...
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