JoyMurphy
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steph, I didn't grind it myself...I stayed away from it completely until the past month. It was bobs red mill. I just remember even on the diet, I was having more severe neuro symptoms...they were bad the past few days, along with the stomach issues...It may be a huge coincidence...but it's very suspicious to me. when i was so sick a few years back....
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colleen, I have been tested for so many AIs. Nothing has come up possitive...I actually had a Rhuemy tell me that my high ANA meant nothing. That it was a phenomenon. I am a 640.....it has dropped to 320 but has gone back up and never goes below. I don't believe that it means nothing. If I was healthy and it was high, I could see that....but there is...
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kareng I ate the rice cakes almost two years ago when I was severely ill. I haven't touched them since then. On the Fasano I ate only 100% natural foods, fruits and vegtables. Nothing with a wrapper, nothing touched by man. The one thing that increased was rice...it became the main staple. The rice was plain and prepared in the rice cooker with...
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I have been trying to put all the pieces together since my diagnosis 1.5 yrs ago. I have been having lingering neuro symptoms that no one can figure out. I have been checked for seizures, all other autoimmunes etc...and of course, my file at the hospital needs it's own zip code. I know there is something else wrong....could it still be the damage from...
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ARCHIVED Got My New Red Apple Lipsticks In The Mail Today!
JoyMurphy replied to answerseeker's topic in Gluten-Free Foods, Products, Shopping & Medications
I am obsessed with their lipsticks. they always look so good! the hibiscus grew on me.....it's dramatic -
ARCHIVED Nuts Dot Com Is My New Favorite Website
JoyMurphy replied to ItchyAbby's topic in Gluten-Free Foods, Products, Shopping & Medications
I love nuts.com They are so prompt! I order and it seems like I turn around and it's there! mmmm pistachios! And they have gluten free almond paste for holiday baking.... can never find that anywhere...last year I had to make it myself -
oh, I have said some very inappropriate things.....Oh my.....afterwards I just think about it, and think....omg what did I do? It's just very odd. The frustrating thing with this disease is there is no certainty...no exact manual...no one path.....we all have different and overlapping symptoms and severity's. support groups like this keep me grounded...
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ARCHIVED gluten-free Beer - What Do You Drink?
JoyMurphy replied to squirmingitch's topic in Super Sensitive People
Steph, unfortunately for me, I bought my truck load of glutenberg 2 weeks before they put me on the Fasano. Sadly, it has all sat there in the fridge alone. I came to the end of the Fasano a few months ago. Since then I have been very careful about bringing things back. I have though enjoyed a couple glutenbergs since then, with no problems. Sadly for... -
ARCHIVED gluten-free Beer - What Do You Drink?
JoyMurphy replied to squirmingitch's topic in Super Sensitive People
daura is delicious but it gave me an instant headache...too many ppm. -
ARCHIVED gluten-free Beer - What Do You Drink?
JoyMurphy replied to squirmingitch's topic in Super Sensitive People
you can get glutenberg in boston. New England def has it. Other areas not so much yet. Not a fan of the American Pale Ale, but I don't like IPA and the red...it;s an aquired taste....but the Blonde....YUM!!!!!!! And a cool oil can too! I drove from Plymouth to Stoneham the day they got it in and cleared them out. Now a lot of places have it. Some... -
ARCHIVED Severe Muscle Wasting
JoyMurphy replied to totoro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi, you don't have diarrhea, just constipation? That still can be a sign. I had diarrhea, bad...but my daughters, both of them had severe constipation. The one with the less severe symptoms tested high on the blood test and had a lot of damage in the endoscopy. The one with the worse stomach problems tested fine on both, but has the gene. They told... -
I have actually been gluten-free for one year and nine months, but who's counting. I was diagnosed one year and five months ago.... I have recovered to some extent. I can function better. But I am not the same person I was. I am hoping that will come in time, or if there is something else wrong, some doc will figure it out....I have a lot of neuro symptoms...
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I was worried about the coffee too. I know I am supper addicted to it, and I have actually increased the amount of coffee I drink. Good lord, there goes all the fun! TBH I would rather do things I can control rather than trying different types of meds.
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ARCHIVED Severe Muscle Wasting
JoyMurphy replied to totoro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had a 55 lb weight loss in about 2+ months. I was losing a lb a day. Previously I had to be on weight watchers to loose anything. I was fit, did zumba and weight training almost every day. At my worst I couldn't lift the brush to brush my daughters hair. I would force myself to eat every day. All I could manage was a rice cake w/ PB, a small piece... -
steph, I have found this to be true. Since getting so sick, I have been forced to be more creative in my cooking. I have always loved to cook. Always a cook, not really a baker....Now I'm a great baker too? My cooking has definitely evolved. Even with the Fasano, it forced me to be more and more creative. Some of my best recipes came out of cooking...
